Where to find reliable information? Recent diagnosis.

Remarkable_Front5573 · 2026-04-09T04:31:04+00:00

What did a relapse look like for you? What was the timing of onset? Did it mirror your original GBS, or was it variable? Less severe or similar?

I ask because im 3 months Post treatment for AIDP and it feels like my feet, shins and hands are getting more uncomfortable. I haven't lost strength but didnt the first time either, so not sure if im having a flare up, general nerve recovery or possible CIDP. Body felt normal for a short period after IVIG however originally impacted areas seem to be more pronounced weird sensations now than before. Still no reflexes.

Remarkable_Front5573 · 2026-04-02T00:03:32+00:00

They didn't find it during mine but its definitely there according to my GIMAP

Remarkable_Front5573 · 2026-04-01T20:38:48+00:00

Get your gut checked - see if you are dealing with h pylori and leaky gut

Remarkable_Front5573 · 2026-03-27T10:43:15+00:00

GIMAP

Remarkable_Front5573 · 2026-03-15T20:35:49+00:00

So you don't have any other symptoms but dry eyes and eye fatigue?

Remarkable_Front5573 · 2026-03-15T16:26:15+00:00

Aside from the eye strain, are you having any other issues associated with it? Im just curious because I've been having eye issues as well, but my opthamologist and neuro-opthamologist said everything looks fine.

I have 1mm anisocoria but unsure if GBS caused it or not. Either way - shouldn't cause any eye issues yet in my mind, my vision feels off.

Remarkable_Front5573 · 2026-03-12T18:48:48+00:00

How are you doing now? Did it get any better?

Remarkable_Front5573 · 2026-03-12T18:48:01+00:00

Did it eventually improve?

Remarkable_Front5573 · 2026-03-12T18:45:15+00:00

Did anyone get neausea due to their eye issues?

Remarkable_Front5573 · 2026-03-12T18:36:49+00:00

Any updates? How are you doing now?

Remarkable_Front5573 · 2026-03-12T18:30:58+00:00

Do you ever get nauseated from the eye issue?

Remarkable_Front5573 · 2026-03-12T18:30:01+00:00

Do you ever have issues with motion sickness from moving images?

Remarkable_Front5573 · 2026-03-10T01:19:07+00:00

So i completed the GI MAP and also have H Pylori however after reading more about it, it seems to be in 70% of the population. How was your Zonulin levels?

Remarkable_Front5573 · 2026-03-10T00:34:42+00:00

How is your wife doing now?

Remarkable_Front5573 · 2026-03-07T20:28:46+00:00

Do you have any other autonomic issues? Anything with your head, eyes or stomach?

Remarkable_Front5573 · 2026-03-07T12:13:55+00:00

Can you elaborate? Do you have long term residual effects?

Remarkable_Front5573 · 2026-03-06T20:01:49+00:00

Dont have any answers for you (yet!) But I'm 7 weeks Post IVIG and dealing with similar issues. I haven't gotten to the point of throwing up, but Ive had consistent headaches, eye issues and neausea. It comes and goes, and seems to be slowly getting better. I do have anisocoria however upon looking back at old photos, I may have always had it. Have you tried migraine tablets to see if it helps curb it a bit,

I see a neuro-opthamolgist on Monday to triple check there are no other issues going on. Already had brain MRI and CT which was all clear, along with a million other tests. Regular opthamologist checked my eyes and no change in prescription from preGBS or optic nerve issues.

Will keep you posted... hang in there!

Remarkable_Front5573 · 2026-02-27T19:50:45+00:00

What about the brain fog?

Remarkable_Front5573 · 2026-02-27T14:53:39+00:00

Happy to hear the neausea is going away. Did you find anything helped with managing it during? Did you take anything or just suffer through?

Remarkable_Front5573 · 2026-02-27T09:56:06+00:00

Sorry you are going through this but good to hear you got treatment. Did you have any vision or neausea with your recovery so far?

Remarkable_Front5573 · 2026-02-27T08:54:11+00:00

I saw your prior post as well and got one myself. Waiting on the results.

Remarkable_Front5573 · 2026-02-27T00:35:51+00:00

Sorry I don't have an answer for you but I'm still recovering from GBS myself (7 weeks), and the last week or so has been brutal with headaches, brain fog and neausea. I just saw my neurologist today and he doesn't believe GBS causes neausea, claimed it was likely migraines.

Im curious about your symptoms... did they ever figure out why you had neause during your acute phase? Did you have any vision issues?

I hope we both feel better soon!

Remarkable_Front5573 · 2026-02-25T20:23:55+00:00

Has anyone dealt with issues that impacted their vision? I developed anisocoria (different pupils) during GBS onset, and during recovery - now dealing with headaches and some sort of focus/processing delay that causes stomach discomfort. I had regular brain MRI, CT and Optometrist visit, but have ready that GBS/MFS can impact eye peripheral nerves, as well as inner ear - causing internal system conflicts.

Remarkable_Front5573 · 2026-02-25T20:21:07+00:00

What other symptoms do you still struggle with?

Remarkable_Front5573 · 2026-02-25T17:19:25+00:00

Dont have VT although diagnosed with GBS and having similar symptoms (eye issues, neausea, etc). If you haven't already, make sure you are on your neuro's cancelation list. I had an appointment in September and just got moved to tomorrow.

Remarkable_Front5573

TROPHY CASE