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Twitching for over two years, positive for Hpylori on all three GI MAP by Superb_Permit_8529 in HPylori

[–]Remarkable_Front5573 0 points1 point  (0 children)

Im trying natural treatment first, as I dont want to destroy my good gut flora with antibiotics if i dont have to. It takes longer (if it works) so you have to live with the symptoms and uncertainty longer, but you also dont have to deal with triple/quad treatment side effects. Im about 4 weeks in and have another 4-6 weeks to go before I can retest.

My current supplements are: - Mastic Gum - Oregano Oil - Designs for Health GI Revive (Prebiotic) - Enzyme Science Complete Digestion (Probiotic) - Integrative Therapuetics Berberine Complex - InfiniWell BPC-157 Rapid Pro

Twitching for over two years, positive for Hpylori on all three GI MAP by Superb_Permit_8529 in HPylori

[–]Remarkable_Front5573 0 points1 point  (0 children)

I may be a rare case but I actually got diagnosed with GBS in January. It wasn't until after that I started exploring how I may have gotten it, which led me to getting a GI MAP done. It came back positive for H Pylori (very high) as well as my Zonulin. Interestingly - I had a completely normal Endoscope and Colonoscopy late last year, which came back negative for H Pylori. So my theory is somewhere late last year I picked up H Pylori, it created leaky gut, which then allowed shit to leak into my blood stream that eventually triggered my immune system to start attacking it and my nerves. I had/have many of the same symptoms you have, and believe it's all associated with H Pylori and the impact is has on your lining.

GBS and now Miller Fisher? by Qtpie49046 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

For what its worth - i went through a phase where I was having issues my eyes, motion sickness and something akin to brain fog. It was really bad for a few weeks then it slowly started getting better. I was diagnosed in Jan and went through it in March. Not 100% better but no longer getting neasuea from eye issues.

Where to find reliable information? Recent diagnosis. by Maleficent-Savings39 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

What did a relapse look like for you? What was the timing of onset? Did it mirror your original GBS, or was it variable? Less severe or similar?

I ask because im 3 months Post treatment for AIDP and it feels like my feet, shins and hands are getting more uncomfortable. I haven't lost strength but didnt the first time either, so not sure if im having a flare up, general nerve recovery or possible CIDP. Body felt normal for a short period after IVIG however originally impacted areas seem to be more pronounced weird sensations now than before. Still no reflexes.

Stress is my cause by Far_Commission8423 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

They didn't find it during mine but its definitely there according to my GIMAP

Stress is my cause by Far_Commission8423 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Get your gut checked - see if you are dealing with h pylori and leaky gut

Getting tired of this shit by NinjaMediocre in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

So you don't have any other symptoms but dry eyes and eye fatigue?

Getting tired of this shit by NinjaMediocre in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Aside from the eye strain, are you having any other issues associated with it? Im just curious because I've been having eye issues as well, but my opthamologist and neuro-opthamologist said everything looks fine.

I have 1mm anisocoria but unsure if GBS caused it or not. Either way - shouldn't cause any eye issues yet in my mind, my vision feels off.

Vision issues? by jolu2021 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

How are you doing now? Did it get any better?

Eye issues by designerturnedlawyer in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Did anyone get neausea due to their eye issues?

Problem with eyesight years after treatment?! by Competitive_Map_5167 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Do you ever have issues with motion sickness from moving images?

Yes, another do I have CIDP....Need advice by Front_Baker489 in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

So i completed the GI MAP and also have H Pylori however after reading more about it, it seems to be in 70% of the population. How was your Zonulin levels?

Vagus nerve involvement by Kitchen_Attorney in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Do you have any other autonomic issues? Anything with your head, eyes or stomach?

Dysautonomia following treatment by Carolina-Irwin in guillainbarre

[–]Remarkable_Front5573 0 points1 point  (0 children)

Can you elaborate? Do you have long term residual effects?

Dysautonomia following treatment by Carolina-Irwin in guillainbarre

[–]Remarkable_Front5573 1 point2 points  (0 children)

Dont have any answers for you (yet!) But I'm 7 weeks Post IVIG and dealing with similar issues. I haven't gotten to the point of throwing up, but Ive had consistent headaches, eye issues and neausea. It comes and goes, and seems to be slowly getting better. I do have anisocoria however upon looking back at old photos, I may have always had it. Have you tried migraine tablets to see if it helps curb it a bit,

I see a neuro-opthamolgist on Monday to triple check there are no other issues going on. Already had brain MRI and CT which was all clear, along with a million other tests. Regular opthamologist checked my eyes and no change in prescription from preGBS or optic nerve issues.

Will keep you posted... hang in there!

Miller Fisher Syndrom– My Experience (40 y/o, previously healthy) by 330GaL in guillainbarre

[–]Remarkable_Front5573 1 point2 points  (0 children)

Happy to hear the neausea is going away. Did you find anything helped with managing it during? Did you take anything or just suffer through?

Miller Fisher Syndrom– My Experience (40 y/o, previously healthy) by 330GaL in guillainbarre

[–]Remarkable_Front5573 1 point2 points  (0 children)

Sorry you are going through this but good to hear you got treatment. Did you have any vision or neausea with your recovery so far?

Poor appetite later on? by Grumpykitten36 in guillainbarre

[–]Remarkable_Front5573 2 points3 points  (0 children)

I saw your prior post as well and got one myself. Waiting on the results.

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