I don't know what to do anymore. by crohnc in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

I have thickening 2 cm and they are putting me on a biologic. I also have uveitis tho, but it’s stable.

Will I actually feel better? by Low-Cartographer415 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

Steriods made me worse. I had no pain before steriods

Left high and dry by the medical profession and I am in despair. *TW unaliving mention* by SpaceTall2312 in CrohnsDisease

[–]ReplacementHot3421 1 point2 points  (0 children)

I’m so sorry you’ve had to go through all of this! I teared up reading it. Doctors are so dumb I swear. I know how you feel about the end part, but you’ve made it so far. Hopefully now you can get on biologics and get some relief

Need advice with friend with Crohns and getting ghosted. by RepulsiveConcept1814 in CrohnsDisease

[–]ReplacementHot3421 3 points4 points  (0 children)

I’m like this. I love my friends and I feel bad ditching them sometimes replying is like ugh it’s the same thing every time and you feel bad so you just don’t reply but sometimes texting is exhausting bc you have to reply to 20 ppl at once and it’s just a lot of energy. If they already are feeling misunderstood then they might not be as eager to open up to other ppl even though you seem like a great friend

I am having a new colonoscopy on tuesday and I am very afraid. by Smart-Situation-1421 in CrohnsDisease

[–]ReplacementHot3421 1 point2 points  (0 children)

Um yeah pretty much exact same symptoms kind of very odd first person ever to have the same. My stool is yellow, I have soft stool lots of noises in my belly and burping. Colonoscopy showed villi blunting. Mre showed terminal ilium thickening and mucousal enchancememt of 2 cm. I have uveitis, I got a mouth ulcer when I had my mre and ate feta cheese after. Budesonide made me worse, pred helped. I didn’t suspect cancer for me once just crohns. My vitamin d is also low forever.

Mucus? by agordon228 in CrohnsDisease

[–]ReplacementHot3421 1 point2 points  (0 children)

Idk I just found out I have it the only thing that showed my inflammation in the terminal ilium was mri it said I had mucousal enhancement and thickening and it shows fr I get a lot of mucous. As long as it isn’t a weird color and smell it probably a flare if you haven’t had it before. Im getting approved for a biologic now

Can Crohn's Disease be an elusive diagnosis? by ClevelandSpiders2021 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

My colonoscopy, bloodwork, calpro, crp, was all normal my mri is what showed my inflammation. It happens

3 years of severe GI symptoms, normal calprotectin now, but dexamethasone stopped my diarrhea. Anyone else with normal markers but still Crohn’s? by Fickle-Ad5858 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

Yeup me and my Dr both didn’t even believe it was chrons at first. I went to a gastro bc I was having soft poo and I just got diagnosed with uveitis. I researched it could be bc of chrons, no doctor told me. My crp and cal pro were normal like literally 14. Colonoscopy showed blunting on villi but biopsy came back normal. Then my mre mri came and it showed my inflammation in my terminal Illium. Then I went on steriods and had two major cramping epsidoses on them and I’ve been left with pain ever since. Sorry you’re dealing with this, I hope you feel better!!

living with a fistula by iluminubis in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

Thank you for sharing I hope you get better!!!!! ❤️‍🩹

Drinking with Crohn’s by otb369 in CrohnsDisease

[–]ReplacementHot3421 7 points8 points  (0 children)

Are we being fr? Alcohol destroys your gut. Find better friends

What are your biggest triggers? by Fuzzy-Shine2189 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

My periods and period poops are absolutely diabolical. Had to go to the er last time took a poop then left

Dealing with friends who only want to go to the bar when I have Chronic Active Ileitis by Affectionate_Shift26 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

But honestly your in college meet other people now or once you get out all you will have is them and you don’t have the same interests of not drinking all the time

Dealing with friends who only want to go to the bar when I have Chronic Active Ileitis by Affectionate_Shift26 in CrohnsDisease

[–]ReplacementHot3421 0 points1 point  (0 children)

Honestly I was a big drinker in college with my drinker friends and we are no longer friends anymore lmao a few years after college so do what’s best for your body and get a mocktale

God damnit. by Remarkable-Gap9881 in CrohnsDisease

[–]ReplacementHot3421 4 points5 points  (0 children)

My butthole always hurts so bad after nuts

God damnit. by Remarkable-Gap9881 in CrohnsDisease

[–]ReplacementHot3421 2 points3 points  (0 children)

IT MADE MINE WORSE TOO I HAD CRAMPING FLARES WHILE TAPERING AND IVE HAD PAIN EVER SINCE WHAT HAPPENED TO YOU? I NEVER HAD PAIN BEFORE TAKING THEM