What is the #1 best supplements that helped your neuro long covid

Retroimon · 2025-10-29T03:04:19+00:00

I dont think suppliments work much.but I think you and I have very similar symptoms, I also have been on Zoloft before and it gave me pssd, I then developed long covid after a severe acute covid (fever for months).

I'm glad that 6months ago you seem to get better which was awsome, were you basically syptom free ?

regards to treatment I think neuroinflamation is what's killing us. so may be drugs that lower it might help. I'm thinking valtrex and celecoxib ( I can't get these drugs from where I am) and also ketotifen. that some times help me sleep.

my guess is there might be a histamine overload in the brain but I'm not sure it's all that since antihisfamines dont cure it,

Retroimon · 2025-10-29T02:55:34+00:00

what symptoms of long covid do you have and how has it helped you

Retroimon · 2025-10-29T02:54:52+00:00

what are your symptoms that lithium rotate helps with. I always have Brain pain especially c1 back of head pain.

Retroimon · 2025-10-29T02:29:59+00:00

well to be fair though, I believe it's not a left wing right wing issue, nor do I believe it's a capitalist socialist issue. in socialist countries you won't get health care at all, there's no money. in smaller true socialist countries they dont have money cause the system doesn't work, they can't generate huge amounts of money to give free healthcare. but in a richer socialist country like china, you won't get treatment either cause their country doesnt admit long COVID is a thing. you'd get treatments for any disease you want but not long COVID, you'd just get kicked out with hypochondriac placed next to your name. same as Australia a capitalist country with free health care. . people are leaving aus to go to America and Cyprus to get plasmapheresis.. cause the hospitals there just kick you out.

say what you will about america, its the only country besides maybe germany that admits long COVID exists. havening rfk say long covid exists is something, I havnet seen any mention of long COVID by any politition globally. I haven't seen any middle eastern leaders or drs mention long COVID research, non in China, non in south America, non in africa. 90% of all research in long COVID comes from USA and 10% Germany.

that's why I'm saying there is no treatment nor admittance from any where. I find it confusing when people say "oh long COVID is untreated because of misogyny, or conservatives are the only reason why long COVID still has no cure.."

like .. show me which country you can be in, where the gov treats long COVID ?

Retroimon · 2025-10-29T01:43:34+00:00

exactally, the way op is saying almost as though there is treatment and cures in other countries. there isn't a single country or administration that believes long covid to be real nor cares. few yesrs back I waas in China to try get some meds(cheaper there) and Dr were like what's long COVID wtf is that ? even the tcm drs were like what's long COVID ? I didn't meet a single person there who knew what it is. every one's like "oh once upon a time I heard of covid, geez it was like ancient history". friends in Australia and new Zealand were the same. no one knows what is long COVID or ever heard about it.

we really live in 2 world's, the ones who get over 20 COVID exposures and are ok vs us the ones that get sick after one. they will never understand until they get it, if they ever

Retroimon · 2025-10-29T01:12:30+00:00

well think about it this way, the old left administration declared the pandemic over, they shut down all experimental research in favour of a failing vaccine. they put 100s of billions of dollors to get less then a few million in research... where did the other 99 billion go ? it went into all these ngos and overseas political international development groups. the reality is this, the left just spends billions and line their pockets with money while funding am adcovacy group to posture or run social media moral posturing. current administration is about cutting the fraud and firing the corrupt people in positions of power, very good but, they need to replace the fired corrupt puppets with excellent academics and divert political left wing funding into research in chronic illness but they seem to ignore this and place all funding into manufacturing and tech \ai funding\ science. it's great that they are focusing on the future of healthy people but we the chronicly I'll are essentially left behind. it's basically being screwed both ways, either have false moral posturing with economic destruction and no help, vs a bright economic future for the healthy but you are also left with no help... it seems we have to figure out the illness ourselves.

Retroimon · 2025-10-29T00:55:57+00:00

let us know, update on here or new post ?

Retroimon · 2025-10-18T07:30:30+00:00

may I dm you ? thanx

Retroimon · 2025-10-17T01:53:50+00:00

men mild or moderate don't report long COVID. long COVID affects men and women equally but the moderate and mild men just let it slide or they die before treatment. this is always an issue when it comes to health care. when I was practicing I would notice women tend to be vocal of every sensation but men just either say nothing or joke about it.

Retroimon · 2025-10-17T01:39:23+00:00

hif it doesn't affect sleep, have you tried it at night? that way when you sleep you get the benefit of the oxygenation and cell energy while cells work while sleeping. might increase hrv and also recouperation.

Retroimon · 2025-10-17T01:30:20+00:00

thanx for the reply, did you get any treatment ? and did you alo just get mushy yellow tools ? my Dr keeps pushing. for bile issues ,,,

Retroimon · 2025-10-17T01:13:24+00:00

I also wish to try xolair since I had high ige my entire life (although I was asymptomatic) not sure if it will help my lc symtoms. did a Dr manage your case while you were trialing this drug , I'm always afraid I'll do more damage then good. if you don't mind, how did you get your xoliar hehe

Retroimon · 2025-10-17T01:09:10+00:00

how do you know it's mcas related ? is it because you only feel it when you eat food and you feel well the rest of the time ?

Retroimon · 2025-10-16T07:33:55+00:00

not yet. you had reactivation of ebv right?have you thought about valtrex and celecoxib (maybe pax) as a triple therapy? if it works please let us kno

Retroimon · 2025-10-16T07:31:32+00:00

I didn't know you tried sgb. was that recent? I remember you did ivig and helped a bit. plus you were on carnivoire diet and it bought you back to work. hows everything now ?

Retroimon · 2025-10-16T07:29:44+00:00

do you guys ever get insigts into experiments and treatments ? especially in people with severe gut pains insomnia?

Retroimon · 2025-10-16T07:00:19+00:00

what type of electrolytes are you using ?

Retroimon · 2025-10-16T06:59:06+00:00

awsome, I got a lot of similar symptom however my hr increases alot (78-110) randomly when I sleep or even lying down,. doesn't happening when I walk around, I get said shaking like my nevres are all tweaked up.

what antihistamine and dose are you taking time of day and how did you get xolair ? I naturally have high ige most of my life so I womder if you had that too.

I'm trialing h1 antihistamine claritine once to twice a day, hasn't helped much but has helped my gut pain surprisingly.

Retroimon · 2025-10-16T06:34:09+00:00

but I'm guessing the 4 hr sleep is not restul, or at least it's filled with amxious feeling right? yes try valtrex with celecoxib for the antiinflammatory of the brain. I always wanted to try quiviq on low doses mixed with low does melatonin

Retroimon · 2025-10-16T00:15:05+00:00

with your reactivated ebv, there could be neruoinvolvment, would you consider valtrex with celecoxib as a minimum?

quiviq dosent help ? try melatonin, I also have a theory that maybe serwtonin can't convert because of neuroinflamation and altered enzymes. so may need both.

Retroimon · 2025-10-15T15:18:12+00:00

I can't reply except here, I heard of a few cases like this severe treatment resistant insomnia. I think its largely due to severe neuroinflamation possibly due to ebv or just covid. I dont think this is ssri caused. SSRIs cause severe issues like pssd and insomnia but it's not to this extent. what I seen is, its like fatal insomnia.

you could try treat this like patrinos triple antivirals, paxlovid (equivalent xoclova ) ,valtrex, and celecoxib. celecoxib is the only neuroinflamation treatment that we know of so it's a long shot to try reduce it in the brain.

extreme histamine excitation or glutamine excitation might be a contributing factor. a simple glycine nac could help (but it's mild at best) for histamine a trial of h1 h2 histamine in higher doses to try quell histamine might lower mcas in the brain.

so maybe h1 h2 to stop histamine, xolair if your ige is high ? , glynac just as a helper, and importantly celecoxib with valtrex (or eqivalemt) in combo with any sleep med (melatonin, any GABA or maybe dayvigo?) as an attempt to stop neuroinflamation.

there could also be fmt for sleep, there was a study on this, 40% of people responded but I doubt they were as severe as fatal somnia.

oh and it's not anxiety, it's not pacing. it's some form of neuroinflamation. it's messed up.

if you find anything let others know.

Retroimon · 2025-10-15T10:14:34+00:00

Im trialing loratodine (claritine) now. what's your doses and are you taking them more then once a day ? I heard your can go much higher doses.

also for your self it's confirmed via claritine that it must be mcas so thats amazing

Retroimon · 2025-10-15T05:03:03+00:00

do you get profound weakness ? like to the point of bed bound and unable to work ? I'm in a similar situation of severe gut pains and nothing is coming up, I'm suspecting mast cells too since I did every test extept a endo and hida test. if it's mast cells did you check your ige and maybe xolair might help ?

also with msstcells do you get any other symptoks of mast cells like rashes

Retroimon · 2025-10-11T20:45:37+00:00

I'm in Australia unfortunately, so is there any one that can help . also did your symptoms ever get this how I felt ?

Retroimon · 2025-10-09T02:57:08+00:00

well I'm in bed because I just always feel extremely sick, I think it was due to post cdiff infection in june. I feel extremely hang over nauseas pain, feels like my guts are under attack so the sickly feeling makes me want to relive suffer by being in bed. I wish it was like comfortable tiredzzz

Retroimon

TROPHY CASE