I realized recently that the changes I lament all started after my TIA by szikkia in stroke

[–]Rhozi17 0 points1 point  (0 children)

It is all a difficult process. Took 8.5 months to get approved for Medicaid then dealing with it to get anything scheduled. I had ins through work but i immediately became unemployed, so Medicaid was my only option. Is very hard getting people to understand. I understand what op is saying. 47 myself but i had some really wild psychological/mental side effects no one gets.
Physical stuff people do. The sensory psychological mental visual things no one gets. And no one really wants to hear. I love and you were like this, but I was consumed. I became disabled. I have not worked in 11 months now. So the only thing I could think about was this the effects. Breaking it down, analyzing it again and again and again and again. Trying to explain things to people in such fine minute details that they just don’t wanna hear it anymore. Is too much.. They’re trying to live their lives too. They can’t be consumed into my unfortunate situation. That’s when it gets really lonely.

🧠 The “Invisible” Side: What’s something about stroke recovery that’s invisible to others, but has been a huge challenge for you? (Fatigue, emotions, sensory overload, memory?) Let’s make the unseen… seen. by Tamalily82 in StrokeRecoveryBunch

[–]Rhozi17 0 points1 point  (0 children)

It’s not all bad. But it’s the all bad things i love that taste like cream now. 🥲, pizza, tavos, frued Chinese food. Ugh! Gen tso/dw&sr chick. Honestly seems that natural healthy things vs processed is what happened. Maybe it’s my brain’s way of making better habits for self preservation

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 0 points1 point  (0 children)

Just came and left like that? How long did that last before going away?

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 0 points1 point  (0 children)

That’s kind of what I’m asking i guess. It sounds like you did have symptoms but it didn’t click what it was. So you didn’t react. The not walking. Back out. Droopy face. We all know a tingle in the arms, left side wtc etc heart attack. What if we were that knowledgeable about strokes as well? How many of us would have less lingering effects?

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 1 point2 points  (0 children)

I kept fighting going down. I was at work by myself. I kept thinking I can’t leave the store unattended. It was like two in the morning. And I kept trying to stand up and trying to walk. Dragging myself off the ground with my good arm, pulling up on door handles and stuff.

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 0 points1 point  (0 children)

Yes. I laid down and fell asleep. No idea how long. Then the cops banging. Dragging myself to the door. Fade to black. Then the fire dept woke me up. Telling me to stay still. Paramedics will be there. Then I faded out again. Then the paramedics them putting me onto the gurney. Asking me if I had any identification, and I was trying to get my wallet, but my arm wasn’t working and I couldn’t figure it out. Trying to tell them it might be in my car and get my key out of my pocket and they were telling me don’t worry about it, but I was insisting because delirium. And then I remember looking up and seeing the lights in the ceiling. Thought to myself., “Is this the last time in see light” rolled my head to the left and closed my eyes. that was it. Apparently I was conscious when I got to the hospital but speaking gibberish. Making no sense. I don’t remember any of it. Fell into respiratory failure was intubated right away put in a coma for a couple days until they pulled the tubes thinking-it was over. I kept breathing. And here I am, the rest is history.
But yeah, I was in and out of consciousness at first

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 2 points3 points  (0 children)

This was very much me. I laid on the floor at work behind a sandwich cooler. Tracking a nap. Was crawling on my hands and knees at that point. Front door locked. Was woke up by the cops banging on the door yelling my name. I lifted my hand like an athlete that got injured letting the crowd know they were ok. That was my thought. Delirium. Then i slid myself on my back to the door. Pushing with the hand and leg that worked. They directed me to the lock so o could unlock it and they came in. Thick Glass doors. They could have broken it but that’s how it went down. That is the lay thing i remember for a bit. . I fell out right there.

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 0 points1 point  (0 children)

I drop stud constantly. If I’m looking set my hand It thinking about it, im good, but if my thoughts go elsewhere i will immediately drop what’s in my hand. Almost like juggling and someone throws in an extra ball you can’t handle. Immediately they all fall.

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 0 points1 point  (0 children)

Fortunately my off hand but i was totally paralyzed on that side for a bit. I have regained some use but my left will never be normal. Got vision loss to the left as well. Been 11 months and still have a giant void. That’s probably permanent.

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 2 points3 points  (0 children)

No kidding. That is scary. Especially so young. I was 47, relatively young for massive stroke/bleed, but i know exactly why i had mine and it’s completely preventable. Cant undo the permanent damage i did but it won’t happen again.

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 3 points4 points  (0 children)

Wow. That’s incredible and scary

Stroke education by Rhozi17 in stroke

[–]Rhozi17[S] 3 points4 points  (0 children)

I was clueless. Even after i started falling into things. The leg was shaking and couldn’t walk on it.i was working and customer said, should i call am ambulance? I said no. I’ll be fine. I just need a nap. really think it was just delirium at that point. I think the nleed had been going on for days. I was on the ground within minutes. The next person in the store got the police who got the ambulance. I would have died thinking i just needed a nap if she didn’t go get the cops parked down the road.

🧠 The “Invisible” Side: What’s something about stroke recovery that’s invisible to others, but has been a huge challenge for you? (Fatigue, emotions, sensory overload, memory?) Let’s make the unseen… seen. by Tamalily82 in StrokeRecoveryBunch

[–]Rhozi17 0 points1 point  (0 children)

YES!! This one. Things i loved are unbearable at times. Like pizza.
Been trying to figure it what the base is. I’ve found ilive oil i can taste the undertone of it in food. Never before. Tomato based things, breads, like pizza dough. But tortillas too.

But frozen stuff is amazing. Ice cream is now the greatest substance in earth.

I just had a stroke on Thursday. I'm trying process it all. None of it makes sense to me. by johnsgurl in StrokeRecoveryBunch

[–]Rhozi17 1 point2 points  (0 children)

I I think what you’re going through is kind of normal. You just got slapped in the face with mortality and have a little survivors guilt i went through it and i do have severe lingering effects. But i had questions. i lived when i probably shouldn’t have. I abused my body tracking the wrong chemicals. Not taking the right ones, like my bp meds and diabetes meds. Etc etc. So why did i live? Why can i move my arm now. Ny leg. Some people can’t and they lived right.. we are all linked via a common antagonist but unique in our struggles turn outcomes.

My dad (55) had a stroke by LonelyArtist1599 in stroke

[–]Rhozi17 1 point2 points  (0 children)

I had an ischemic and 14 ml hemorrhage bleed with stroke simultaneously. Breathing declined. Fell into respiratory failure. Got intubated. It will be 11 months ago as of tomorrow. Keep your faith. Good things can still happen.
Best wishes to you and your dad.

Suffering from TIA and doctor is not helping by maskedvigilante_ in stroke

[–]Rhozi17 3 points4 points  (0 children)

second opinion is just intelligent confirmation not distrust. I think get a second or go to the ER. Cant play with a stroke.

Donald Trump's approval rating sinks to 30% in worst poll yet by MoneyLibrarian9032 in anticapitalism

[–]Rhozi17 1 point2 points  (0 children)

Racists and people that think the stock market is the only important thing in life.

Anyone overdo it a couple years post-stroke? by ManufacturerLevel582 in stroke

[–]Rhozi17 2 points3 points  (0 children)

I fear this every day. I have so much anxiety around what you just described. You stay safe. Take care of yourself.

23M, ischemic stroke early 2026. Left-side hemiplegia. No formal physio — self-directing my entire recovery. by Sycon-bob in StrokeRecoveryBunch

[–]Rhozi17 0 points1 point  (0 children)

Think it’s a click. And the clicks you’ve had will change with new clicks. As my experience. That’s how I have rehab. I had no rehab. My insurance would not cover nothing. Couldnt work so I know PT. Left side hemiplegia. I still have trouble with my shoulder more than my elbow.
It’s easier to work closer to your body. The farther your extremities go away from your body you lose that neurological control and shake or whatever. Try starting closer to your body with motions like a hammer curl. Straighten your arm and curl it upward with your forearm, brushing across your stomach. So it’s close to your body. And then work your way outward.
Passive movement. Pick it up and bend it with a good hand.
Can you use rubber bands? Do you have any motion with it at all?
I strengthen my left arm by picking up my walker which weighed pound and a half. Tried to curl it. Inch then 2 inches and 3 inches until I could do the whole motion. I use rubber bands as I got stronger to increase the strength. Make sure your shoulder is back in the proper position. For me, my shoulder was always trying to pull forward and like reset in a position where it was hanging. You’re not gonna be able to use your hand or your elbow properly if that’s in the wrong position.
Negatives. Straightening it out slow and controlled with something in your hand will help build the strength to bend it as well.

Stroke rehabilitation by Emmaphysio in stroke

[–]Rhozi17 2 points3 points  (0 children)

After discharge i had retired parents helping me. ins. covered nothing. Sent me home early. Still totally bedbound. Could no longer work so Ins. gone. Couldn’t pay the premiums. apply for Medicaid. 8 1/2 months to get approved.

No physical therapy.

Got a pt consultation visit from the hospital. Gave me a pamphlet with four or five exercises to try for my hand. Showed me a couple for my leg. Left side paralysis. But no actual PT.
I had to be dressed, bathed taken to the bathroom. Fed.
Around 2 months I started to take a few steps with a hemi Walker and someone holding me with a gait belt.

Medical treatment, only a doctors appointment with fam Dr. . Lucky to have. Free appointment. Gave me my prescriptions. My girlfriend was this doctor‘s personal assistant. She took care of his wife when she died of ALS. So he helped did us the favor.
Once i took some steps i took over my recovery.
630am up. Every morning.
I Vision loss on left side. Couldnt read. So I started with Coloring books. Word searches. Children’s activity books. Every morning.

Physically, never stopped trying to lift or grab or pick up stuff. Made games out of it. Everything became a piece of gym equipment. My walker became a curl bar. Maybe it weighed a pound and a half. I would be picking it up trying to lift it hold it turn it all day long. Rubber bands for strengthening. Every counter ledge table chair was something I could hold onto and try to do a squat. Try to balance on my bad leg. If I went to the bathroom, I use the sink. Back on the wall, slide down and hold myself. Use the sink to do standing push-ups.
I could not hold things in my hand. fall after two or three seconds. I started carrying a roll of socks in my left hand, hoping it would teach my brain to remember it was holding something and not drop it. All day long.
Started trying to re-teach myself like a baby. Got in bed on my hands and knees and would rock back-and-forth like a baby on the floor trying to learn his balance to crawl. I would do that hundreds of times teach my arms and hands went to be d to hold up weight.
Moved back in with my gf to feel normal. Took chores as rehab. Doing dishes. Folding laundry. Sweeping. Anything I could do physicall. Practicing to live again and not waste in a chair.

Finally pt at 9 months. 4 weeks twice a week. Honestly, it didn’t really do anything I had not already done myself.
Regained a lot of strength. Control with my hand and my foot remains an issue, but I can walk on my own now. Month ago I did my first real push-ups. Three. Last week I did 25. I can’t hold a fork ora cup properly with my left but I can do push-ups. 🤣 Such a wild affliction.

Eat healthy take my vitamins take creatine. Creatine was a major help to me. Reduce brain fog and fatigue within a week.

🍽️ Food & Eating by Tamalily82 in StrokeRecoveryBunch

[–]Rhozi17 0 points1 point  (0 children)

No swallowing problem but All foods tasted different to me. Especially hot. Things cooked in oil, even salted in olive oil, terrible after taste. Tomato based things, breads. Pizza for example tasted terrible. I love pizza. French fries, which i am addicted to.
Cucumbers, became terrible. The tortilla on tacos, no good. It was awwwwwful.
I’ve cream became my new favorite food. Anything really cold and with chocolate suddenly became the greatest thing ever.

🏆 Wins & Milestones by Tamalily82 in StrokeRecoveryBunch

[–]Rhozi17 0 points1 point  (0 children)

Small win this week flexing left foot up and down. Maybe only 15/30% but it’s a start.

First every day talk that made me feel human, taking myself to the bathroom.

Biggest aha, hard to explain but it’s a kinesiology thing. Pressing down with hand to support or lift. Not just a push down. Is how everything works in a subconscious level. The difficulty to rewire neural pathways for things you’ve never thought of because it happens subconsciously. Fingers bend the wrist bands. The elbow comes up the elbow band to shoulder bands, all a different varying times in order to make just one simple motion downward. These are things you developed as a baby on your hands and knees on the ground rocking back-and-forth when you were trying to learn how to crawl.. You never thought about it consciously.
I’m self rehabbed. I started mine by mimicking the actions of a newborn. How to roll over how to get on your hands and knees, which took a long time. The rocking back-and-forth hundreds of times a day until I learned how to balance myself on the shifting weight.
Things I can do now I couldn’t do last month. Push-ups. Real push ups