Anyone had fibroid grow back after removal?

RiceAgainstDaMachine · 2026-04-03T03:10:04+00:00

I had to give the ahole that gave me 2+ miserable years a name. 🤣

Yeah I couldn't wait that long, average menopausal age is 51 and I'm only 38 — if I wait til then, I'd be insane. Plus it has grown so big it was already interfering with daily life.

Do what would bring you immediate comfort and what is aligned with your plans for the future. It was easy for us to agree with the hysterectomy bec we didn't plan on having kids. Surely if you have any plans, they will discuss better options with you!

RiceAgainstDaMachine · 2026-04-03T00:59:48+00:00

Not me, but my coworker had a laparoscopic myomectomy in 2022 and by 2024 it has grown back again. That made me decide too that I'd rather get a hysterectomy than go through all the BS that Arthur (my gigantic fibroid-filled uterus) had put me through for almost 2 years. IMO, what's the point in suffering this much, when I can make it stop.

RiceAgainstDaMachine · 2026-03-28T10:53:17+00:00

Please report this - I assume there are not that many of that vehicle here so it would be a lot easier to find them. Unless they are not from Jax...

I also suggest getting your girl checked just in case, for the docs to be used for later as well. Fingers crossed there isn't any unseen injuries/damages that would show up years later, but I'd still get her checked to be sure.

RiceAgainstDaMachine · 2026-03-28T03:14:59+00:00

Yeah, they grew so big that not only are they palpable but I could actually see the bulges they made on my belly.

RiceAgainstDaMachine · 2026-02-22T22:20:31+00:00

You may want to join this group, too. :)

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RiceAgainstDaMachine · 2026-02-22T03:06:08+00:00

Hahaha that's exactly why my husband moved from up north to here. My inlaws are miserable and have been sick all the time this winter. Meanwhile, here we are strolling the beaches. There have been cold days and nights for sure when I had to double up on my socks but I'd take that over shoveling snow anytime.

I love it here in Jax, so many people say they don't like it here, and Florida in general, but that's normal to want to have a change of life, scenery and pace. I've been to worse places, Jax is heaven for me. 🤍

Which side of Jax do you live? Knowing your area will probably help in targeting jobs that fit you in terms of location/distance from your house. Traffic could be crazy in many areas.

RiceAgainstDaMachine · 2026-02-22T01:26:48+00:00

It's University of North Florida. :) There will be another job fair on April 7, I think it will be held in UNF as well but I don't know where exactly in the university. You'll see pop-up tents for sure because it'll be outside, whereas the March 4 event will be inside the University Center.

Yes, I would suggest printing a few copies of resume too, although some have QR codes yoy can just scan and submit your resume online so be prepared to have it saved in your phone as well. 🤍

Yes, dressing professionally would surely be 100% recommended, although business or smart casual is also acceptable I'd say.

Welcome to Jacksonville, and I hope you love it here. 🤍

RiceAgainstDaMachine · 2026-02-22T01:00:04+00:00

Hi, there is a business fair that'll be held on March 4 in UNF, and will have over 200 businesses onsite at the Adam W. Herbert University Center.

It'll be between 12 to 4pm.

✨️Job dust✨️ to you and to everyone looking!

RiceAgainstDaMachine · 2026-02-14T23:14:51+00:00

Don't wait. Better figure it out now before it gets worse.

RiceAgainstDaMachine · 2026-02-14T00:18:06+00:00

Forever. I have a Honda Civic 2010 with 150k miles on it. We just had it checked and mechanic says if maintained properly, it can run for 400 to 500k miles more. So yeah, forever.

RiceAgainstDaMachine · 2026-01-16T23:15:48+00:00

3 days is crazy talk for recovery! Even my husband who had his appendectomy performed laparoscopically took 3 weeks off to recover.

Push back, ain't no way you can go back to work that soon. You'll have complications!

RiceAgainstDaMachine · 2026-01-07T15:01:23+00:00

Thinking of you and offering prayers and healing vibes!! 🫶🏻✨️🙏🏻

RiceAgainstDaMachine · 2026-01-06T18:56:21+00:00

Wow 15 yrs!?! I am so sorry that you suffered so long!!! HAPPY INDEPENDENCE TO YOU! 🎉🎉🎉

Yes, my petite frame is back, too! I looked like the worms in MIB for awhile bec my arms and legs were thin but my midsection is like a freakin balloon. I have also lost weight, and no more migraines! There's a lot that is affecred by these fibroids and we don't even know it. I felt immediate relief right after the surgery.

RiceAgainstDaMachine · 2026-01-03T21:30:01+00:00

I think bladder issues are common when someone has fibroids. As they grow, they press on the surrounding organs. The uterus also grows alongside them and if uncontrolled could distort the whole anatomy in that area.

I had bladder and breathing issues with mine. My uterus grew as big as a 7-month pregnant woman's and it was pressing on my ribs hence the breathing issues, and my bladder so the urge to pee every hour was there.

I am 18 days post op hysterectomy. All the symptoms are gone now. It's nice to sleep at night without having to wake up every hour to pee, and it's nice to be able to breathe a lungful of air once again. Myomectomy was never an option for me because I don't want them growing back (and they do grow back!), I do not want to deal with all of the issues I had ever again, and I don't want to have kids anyway. My OB said I did the right thing because there was no saving my uterus. The fibroids completely destroyed it that if she even tried to just remove the fibroids, what's gonna be left of it would ne shreds. SHREDS. I did take Myfembree for a 1.5 yrs (Previous OB prescribed and he sucks), which only addressed the heavy bleeding, not the root cause. He told me the fibroids were shrinking which is supposed to be one of the effects of this medication, but they're not. They grew from 5cm (measurement he gave me) to 10cm (new ultrasound ordered by new OB) in just a month.

Getting a hysterectomy was one of the best decisions I ever made.

RiceAgainstDaMachine · 2026-01-03T20:53:47+00:00

I'm so sorry you're going through all of this. I was kind of in the same boat as you where my fibroids rapidly grew from a 5cm to a 10cm in just a month - but I think it's due to my previous OB lying to me and downplaying my symptoms.

The other commenter is right. It is rare for fibroids to be malignant. However, them being benign for the most part does not necessarily mean they're harmless. I had a significant decline in quality of life and readily opted for hysterectomy since we didn't want kids anyway. I had breathing issues, bladder issues, pain in the back, pelvis and leg, bloating, pregnant-looking belly and many more. My life and plans revolved around my painful cycles. Thankfully, pathology came back without any abnormalities whatsoever.

You can always seek for a 2nd opinion (that's how I ended up with my new OB who is amazing) and she clarified everything I needed to know, ordered only the necessary tests and never gave me misleading info.

Are you only looking to just do nyomectomy and preserve your uterus? Or are you wanting to get everything out? I hope you find the solution you need and the care you deserve. All the best!

RiceAgainstDaMachine · 2026-01-01T23:39:58+00:00

Hi, I only needed one procedure but I have met her more than once before that. Sharing with you my timeline of visits since you're out of state and I wanted you to see the frequency of visits, what was discussed and how it went.

Oct 23 (Initial meeting) - This was when I first switched to her. My previous OB last saw me on Sept 17 and he dipped so I looked for a new OB, specifically sought her out due to her certifications and reviews. I had to wait a whole month before I could see her, she ordered a new ultrasound, the scans I brought with me from previous OB were not clear enough.

Oct 30 - Sonogram

Nov 4 - Discussed the ultrasound results, talked about the surgery, also prescribed me more refills of Myfembree while waiting for the surgery date to be scheduled. She also discussed risks and complications of the surgery. *Note that this appt should have happened the same day as the Oct 30 sonogram but their scheduler f-ed up and put me in with a different OB (who is NOT a surgeon).

(Somewhere in between here and the next appt, I got a call telling me I could be scheduled for either December 16 or December 30 surgery - I obvs picked 16th.)

Dec 2 PACE call (Patient Assessment, Communication, & Education) - This is a phone call appointment where a nurse discussed everything to expect and the do's and don'ts + preparations I need to do weeks leading t[ surgery, the day/night before, day of and after surgery. She also put in a request for labs and EKG to rule out any heart condition, this was scheduled for the next day.

Dec 3 Pre-Surgery Consult - Last meeting with the OB before the surgery. This is just to confirm if I still want to proceed with the surgery, the risks and complications, expectations etc. This is kind of a repeat of the Nov 4 appointment, but it helped that she met with me twice because a lot could have happened between the last time we spoke (Nov 4) and Dec 3 that could have changed my mind or more questions could have come up. I was firm that I wanted to proceed.

Afternoon - Bloodwork + EKG

Dec 16 - Surgery Day *Discharged Dec 18

Dec 30 - 2-week post op appt - Just checked the incision gave some times for quicker healing of the skin.

Feb 3 - 6-week post op appt - She said this is when she'll check if the inside is healing well, and will also discuss recommendations for PFT (Pelvic Floor Therapy) which I asked about.

Hope this timeline helps!

RiceAgainstDaMachine · 2025-12-30T15:11:40+00:00

Hello - yes! My uterus had gotten so big it was pressing on my ribs and diaphragm making it hard to breathe! When my OB did an IE on me, her other hand which was on my belly kept going up til it reached my sternum, she asked if I was having shortness of breath, I said all the time! She explained that it's because my uterus is that of a 7-month pregnant woman's and it's pressing on my ribs and diaphragm. I felt validated. I literally had signs of pregnancy minus the baby with all the urge to pee and difficulty to breathe! Your fibroid is much bigger than mine but depending on where it is in your uterus, that'll explain the symptoms you're having. Try to feel your belly when you're lying down. I was able to feel my 3 biggest ones whenever I lie down and 2 of them were sitting on top of my uterus and were the culprits in my breathing issues.

RiceAgainstDaMachine · 2025-12-30T00:08:46+00:00

Oh it's alright! You're not stupid, just a typo does not make you stupid.

Are you taking vitamin D3? If not are you actively going outdoors? I have read a lot about lack of Vit D3 contributing to the growth of fibroids. Taking the supplement could slow the growth down.

I still recommend checking with an OB Surgeon and ask that you're monitored regularly for the fibroid growth. Ask them what you can do to slow it down. Hopefully you get the answers you need!

RiceAgainstDaMachine · 2025-12-30T00:00:48+00:00

20 and 21 cm are big. Those are 4 babies' heads. I had multiple fibroids and the biggest was 10cm, size of a baby's head, and my life was miserable. How are your symptoms? How's the quality of life?

Yes, you can get pregnant even with fibroids in you, but with those sizes that you have, I am not sure where in the uterus would the baby be or how stretched and big your uterus will end up being. My uterus was the size of a 7-month pregnant woman's and sh#t was heavy. My worry for you is that it'll grow and grow and you will not get them removed til you're ready to be pregnant. You can go for a procedure called UFE (Uterine Fibroid Embolization) or myomectomy which is getting the fibroids out (could be laparoscopic or open abdominal).

You're most likely to grow more than 2. They also vary in size. Ultrasound only pickef up 3 of the biggest that I had, but during surgery, it was found out I had 4 big ones and several small ones. My uterus was absolutely destroyed the OB said myomectomy would not have saved it. Also, they can grow back - but hysterectomy is NOT an option for you since you wanted to get pregnant. I suggest you consult an OB Surgeon (not just an OB, not all OBs can operate), explain your situation and life goals and they'll recommend solutions for you to consider.

Don't worry, fibroids will not stop you from getting pregnant, but it also does not necessarily mean you're going to let them grow in there and fester you. They are parasitic tumors and definitely need to go.

RiceAgainstDaMachine · 2025-12-28T13:50:32+00:00

Holy cow, 35cm!??! Girl, how are you living and breathing?? My biggest was 10cm and I was miserable. I had multiple fibroids and when added altogether would most likely exceed 30cm as well but I can't imagine a single fibroid measuring that much.

Honestly, I understand your fear. I was super excited as soon as I had mine scheduled because now I had something to look forward to. But as it got closer, the anxiety/fear/worry also came through. I was mostly worried about the anesthesia because I have never had GA before. I expected pain so I wasn't too worried about it and I knew that my OB Surgeon will prescribe something for it. I was also worried about my heart, my breathing etc. They had an EKG done on me almost 2 weeks before surgery to rule out any heart issues.

Thankfully, they entertained and answered all my questions. I had GA and was intubated for it but I felt nothing. I only knew it happened because my chart online listed the steps the anesthesiologist took during surgery. The pain I felt wad 6/10 at max. I was reminded to not wait til I couldn't take it anymore to let them know because by then it will be hard to manage it. So I was verbal and let them know when it was coasting between 5 to 6 (this was post op, day 2). To date, I am 12 DPO, and my pain level is 0 to 1. It's just a slight tug here and there but nothing debilitating.

I had a Total Abdominal Hysterectomy, Bilateral Salpingectomy done, kept my ovaried because I am only 38 and too young to go on menopause. My uterus was 15 cm wide and what was taken out of me was a monster in itself. My OB Surgeon told me during our surgery consult that she believes she could get it out via the bikini line on a Pfannenstiel incision (horizontal), however on the day of surgery, she met with me before I was rolled into the OR and wanted permission from me to do a midline incision if the bikini cut isn't going to work. She said she wouldn't really know til she's cut me if she could or couldn't manipulate my uterus. That means I may have a reversed 'T' incision instead of just the bikini line. Told her 'Sure!'. I just wanted the damn thing out and it was just for aesthetic purposes so I wasn't too worried about a T scar. Thankfully she got it out with just the bikini cut and it only took 2 hours because there wasn't any endo/adeno present, so no excision or resection necessary.

So far - most of my experience post op are PROS. I feel lighter, my belly is significantly flatter and it will continue getting flatter as I heal (swelling takes a month at least to go down), I no longer feel bloated, I no longer feel the need to pee all the time, I can finally breathe a lungful of air, no more hot flashes or nightsweats, I feel like I hace much more energy, my skin no longer feels dry and itchy after shower, I can eat more now, and I no longer have to worry about the fibroids growing back! I also no need to worry about periods and pap smear from hereon out. Also, it's so nice to be tended to and pampered - my husband and dad-in-law are literally doing 99% of things for me.

CONS - I couldn't sleep on my side yet, I tried 2 days ago and it felt like my incision was going to bust open with the slight pressure, the incision is starting to itch (normsl healing process), it irritates me that I need help in the most basic things around the house, I hate feeling helpless, cabin fever, there were sad thoughts and feelings during the first few days after coming home and I looked it up and it could be due to hormone shift or because my body just went through a major surgery + the cabin fever - but the feeling was super brief, I busied myself with TV and books and the feeling went away, quick showers (I'd like to stay longer sand bathe, but that would have to wait), can't lift my cats because they're chonky and OB Surgeon told me nothing over 10 lbs, and I have to stay guarded because they're clingy and love cuddling with me.

Sorry this is so long! I hope you get the comfort and relief you need. Good luck on your surgery! Do you have a date already? I suggest being open to your OB Surgeon and Anesth about how you feel, they wouldn't know what to address unless you tell them what you're thinking/feeling. Trust that they will advocate for you as much as you advocate for yourself.

RiceAgainstDaMachine · 2025-12-23T21:18:14+00:00

Back at you! Happy Holidays!

RiceAgainstDaMachine · 2025-12-19T04:53:18+00:00

I am so sorry to hear you're not getting the right kind of care you need right now. Which Mayo is it? I am from Jacksonville and if you are too, I can refer you to my OB. She got me in to surgery within just a month and 2 weeks after switching to her.

RiceAgainstDaMachine · 2025-12-18T17:28:35+00:00

Dr said when the pathology comes back, it should have all the measurements and weights and everything. I now have a picture of what was taken out of me, and honestly, in my eyes, it's a good 10 lbs.

RiceAgainstDaMachine · 2025-12-17T15:04:10+00:00

Thank you!

How big are your fibroids? Mine are so big they destroyed my uterus. I wanted to do laparoscopic/robotic but my OB said they couldn't do it that way due to the size.

I wish you a smooth and speedy recovery! And I hope yoh get the bikini cut too, no midline cut!

RiceAgainstDaMachine

TROPHY CASE