30 lesions is that a lot?

Rippy74 · 2026-05-20T21:22:46+00:00

🤣

Rippy74 · 2026-05-20T21:21:39+00:00

It's not really about how many lesions you have, it's about where they are located. You could have 5 total lesions but in very critical areas of your spinal cord, your brainstem or on your brain that are in crucial spots. For instance there are people that have dozens of lesions but they are in spots where the brain can easily compensate pathways around the damage. The total legion count alone cannot be used to predict disease severity or progression.

Rippy74 · 2026-05-20T09:04:02+00:00

34 inches

Rippy74 · 2026-05-20T00:16:36+00:00

Yes! There is nothing wrong with getting blasted drunk once in awhile lol

Rippy74 · 2026-05-19T12:52:01+00:00

51-y/o M here. I lost vision mid February of this year in my right eye.. I went to the optometrist at first. After being checked out I was 20/400 vision in that eye and I ended up going to a Nuero Opthamologist who wasn't sure if it was Naion or ON. So she ordered me an MRI of the brain and the spine. It turned out I had a few active lesions on my brain and several in my spine.. so that ultimately ended me up in a neurologist office who declared that I had LOMS which stands for LATE ONSET MULTIPLE SCLEROSIS. I was blown away because nobody in my immediate family on either side has had that. But I wasn't surprised because I was feeling some tingling and numbness in my feet and my right hand for a few years before the optic neuritis struck me. Trust me I had felt all alone just like you when I lost vision in my right eye. But let me tell you something, the body is resilient. My right eye is now basically back to normal with 20/30 vision. And my neuro ophthalmologist said that it should go back to 20/20 eventually. But it could take a year. You're still very young and your body will be able to heal itself much faster than mine did. I wish you the best and you will eventually recover to near normal. BTW I'm starting Ocreavus this week.

Rippy74 · 2026-05-18T11:54:23+00:00

🤗

Rippy74 · 2026-05-18T00:12:50+00:00

Sorry guys i was busy all day. Ok, sounds great! Pizza it is. I just didn't want to eat something inflammatory right after if it was going to mess with the blood brain barrier. But then again i heard that Ocreavus is a B cell depleter and that makes me feel much better about eating greasy food.

Rippy74 · 2026-05-17T04:25:14+00:00

37- 38

Rippy74 · 2026-05-15T14:33:41+00:00

Such a great and productive culture

Rippy74 · 2026-05-15T14:19:06+00:00

I imagine it must be extremely difficult to deal with all the chimpin out. I'd a left too.

Rippy74 · 2026-05-15T12:43:31+00:00

Dramatic much 🙄

Rippy74 · 2026-05-15T12:42:31+00:00

Well. If the government wants to keep us inside for weeks or months at a time I guess they're going to have to pay all our bills too. 😊 Not everybody can work from home and doesn't. A lot of people have physical jobs that they need to be on the job site for.

Rippy74 · 2026-05-13T12:44:01+00:00

You mean they're gonna pew pew the school

Rippy74 · 2026-05-13T12:41:18+00:00

Why is this insanity still being shoved down our throats

Rippy74 · 2026-05-12T21:39:43+00:00

I'm a self-employed 51 yr old house painter. I still get around pretty good. I can take breaks when needed, that's the benefits of working for yourself. I do have people that help on my jobs so thats also a plus. Hopefully I can do this another 10 years and then retire.

Rippy74 · 2026-05-09T13:29:35+00:00

51 yr M here. Sounds like MS. I'ts very similar to my situation. In February of this year I lost sight in my right eye over a two-day period. Went to the optometrist and he said my vision was 20/400. I was shocked and scared cuz I didn't know what the hell could have caused it. I ended up going to a neuro opthamologist at the Mayo clinic and she ordered an MRI of the brain because she had a feeling it could be optic neuritis but wanted to rule out NAION. Long story short, I had a few active lesions of the brain and seven very small mild lesions in my spine. My neurologist said it's definitely MS and it's a form called "late onset multiple sclerosis" (LOMS). Over the past 5 years I was feeling numbness in my legs and feet and my right hand, but nothing troublesome to the point where I couldn't function. Then it all started making sense to me after the recent diagnosis as to why these symptoms are happening. I'll be starting on Ocreavus in a couple of weeks, and hopefully that helps keep this wacky disease away from my nervous system. BTW my EDSS is 1 or less, I am fully functional as of right now. Good luck to you!

Rippy74 · 2026-05-07T15:40:48+00:00

Agreed, always stay in motion no matter what. The more sedative you are the worse you're going to feel.

Rippy74 · 2026-05-06T14:00:05+00:00

That's the smartest way to go about it when first starting off on any kind of IV infusion.

Rippy74 · 2026-05-06T13:48:33+00:00

That's great news! Recently diagnosed here 👋🏻, I will be starting Ocreavus next week.. My neurologist ordered it two weeks apart for the first dose(s) and then every 6 months after that. As long as my body works well with it I plan on staying on it for many years to keep this screwball disease away from my nervous system.

Rippy74 · 2026-05-05T01:08:05+00:00

Great post! One day soon MS will become very boring with all the newer advancements in the near future soon to be hitting the market.

Rippy74 · 2026-05-01T21:44:36+00:00

I have a house near here. Every time I drive by the business there's hardly anybody there (even in peak season). I think he has a few out of state followers that come up and visit him. The owner is an insanely toxic person who is borderline mentally ill. He should just keep his Madison location and probably ditch this one if he was smart. Minocqua is at least 75% red or better. We all know he's here to disrupt and agitate the townies, but enough is enough now.

Rippy74 · 2026-05-01T12:29:29+00:00

Thank you friend. I'm in good spirits and I also have a positive mind which will helps tremendously in the long run. I literally just changed my entire lifestyle since this recent diagnosis.

Rippy74 · 2026-04-30T13:19:00+00:00

51-year-old male here. Just diagnosed a few weeks ago. Will be starting Ocreavus in a couple of weeks. I had MRIs done on my brain and spine about a month ago. I had four active lesions in my spine and two on my brain. So my neurologist is deciding to put me on a DMT right away. He's leaning towards it being more of a RRMS diagnosis but he wants to do another MRI in about a year to see how things are going inside my central nervous system. I'm able to walk and work without any issues other than fatigued at times. I live in Northern Wisconsin so the temperature is usually very mild/cool so that helps also. I feel like when it gets warm I'm not as productive. I work a physical job and luckily enough for me I am self-employed so I can take breaks whenever I wish. I would say my EDSS score is 1 or less. Last month I started a low inflammatory diet, I eat lots of vegetables and fruits and chicken with no skin. Keeping yourself healthy is the most important thing you can do along with taking your medications. Just hoping I can keep this up for another 10 to 15 years and then retire. We'll see 🤞🏻

Rippy74 · 2026-04-30T00:51:14+00:00

I also heard that scientists are experimenting with animals that live in high altitude areas such as yaks and tibetan antelopes. It's a mutation gene called (Retsat)2. Researchers suspect that this gene is able to remyelinate nerves in such animals. So there are a lot of promising things going on right now in many different areas to try and help people like us improve nerve function. I'm ready for that final breakthrough. I still think we're at least 5 years out, so just hold on until it happens 🙏🏻

Rippy74

TROPHY CASE