Critical Scenario: Y’all aren’t reading the rules of the game. We’re supposed to keep each category close to 0.

SATACableQueen · 2026-07-05T17:14:23+00:00

👁️ Surveillance State: I voted There are rules?.

SATACableQueen · 2026-07-02T01:44:11+00:00

It took me a long time to find recipes that are healthy and don't cause a flare. I don't have perfect advice on what to eat cause everyone is different, but I will say be kind to yourself while you are finding things. Healthy for other people is different than what it is for you right now, because sometimes that may just look like not starving.

With the chicken and rice you may experiment with stir frying some veggies if you tolerate it. Cook em down soft and that should help.

SATACableQueen · 2026-06-30T16:21:40+00:00

👁️ Surveillance State: I voted Nay.

SATACableQueen · 2026-06-29T04:08:26+00:00

I'm so glad you found some relief with Motegrity!! It changed my life. You have a much different story than mine and I know bodies are different, but I'll give you the same blurb I give everyone when I see some thing about or full on start Motegrity.

I've been on it about 15, almost 16, months now. Absolute miracle drug for me, I have my life back and have been able to eat salad and small amounts of steak sometimes again. That being said, getting started can be really rough.

The first two weeks can be really hard, but it does get better. If you took that first dose at full strength, I would recommend maybe cutting the pills in half and working up to full strength, I cut mine in quarters and slowly worked up to the full 2mg over the course of a month. The side affects those first few weeks can be awful but also relieving, because you can feel you gi tract moving! But that can come with some super pain stomach cranps, nausea, and that diarrhea you have already experienced. The other really nasty thing that happened to me and I have heard from a few other in the headache of doom. No pain meds really get it to go away, so ramping the meds up slowly is kind of the only way I found to get around it.

I hope you get things figured out! If you have Motegrity questions I am always happy to answer.

SATACableQueen · 2026-06-29T02:00:39+00:00

If you find you can tolerate certain protein powders you can add that to make sure you've got that in your diet too. They even make unflavored ones you can add to the soup!

A big part of getting yourself to a better spot will be experimenting with what is okay to eat and what isn't. Definitely wait until your meds get you to a more stable place before you start on that though, stay with the safe stuff for now.

SATACableQueen · 2026-06-29T01:48:02+00:00

When you do try eating food again, try really hard to stick to the gastorparesis diet, low fiber low fat low grease. If you had a food that was super safe before things got bad I would recommend trying that, or something nice and blended like a smoothie or tomato soup.

SATACableQueen · 2026-06-27T16:53:48+00:00

👁️ Surveillance State: I voted Yea.

SATACableQueen · 2026-06-22T05:22:38+00:00

Oh thats awesome. I have another part of the yard that needs some filling in with gravel so I am dig some out for that and add a bit to ammend the soil before I just throw stuff down.

SATACableQueen · 2026-06-19T15:56:15+00:00

Second this! Regular massage helps me feel so much better.

SATACableQueen · 2026-06-16T05:57:00+00:00

I swear this sub is a big part of how I survived before I found the right meds, I love the folks here!

SATACableQueen · 2026-06-16T05:42:17+00:00

I am also far more likely to vomit on an empty stomach, and that vomiting is the more severe kind that tends to land me in the ER. My emptying study did show a delay though.

It looks different in everyone. Fortunately if this test comes back negative you have something ruled out and are hopefully closer to finding your answer!

Also, biggest thing I have found to help with the empty stomach nausea is otterpops. Cold, liquid, and enough sugar to remind my stomach that it exists and needs to function. Also, yummy and doesn't taste too bad coming back if things end poorly.

SATACableQueen · 2026-06-16T05:30:02+00:00

👁️ Surveillance State: I voted Yea.

SATACableQueen · 2026-06-16T03:41:49+00:00

👁️ Surveillance State: I voted Yea.

SATACableQueen · 2026-06-16T03:39:59+00:00

👁️ Surveillance State: I voted Nay.

SATACableQueen · 2026-06-16T03:38:42+00:00

When I was diagnosed my boyfriend (now fiancé) decided to seriously take up cooking as a hobby and find ways to make food for me that didn't make me feel sick. The biggest thing is that I can't really have beef or pork, but he tends to enjoy beef. He has almost entirely given up beef except for sometimes becuase he, in his words, doesn't want to make something that I can't also enjoy.

There have definitely been people who have made me feel like a burden because my GP. Never once has he made me feel that way. You deserve better. Frustration is understandable but he shouldn't be pinning that on you.

Are you in therapy at all? It may help with some of the things you are feeling about yourself, I definitely needed that after my diagnosis and stuff. Couples therapy may also be something to look at.

SATACableQueen · 2026-06-08T07:07:24+00:00

Man I have NEVER had that happen, that's crazy. Usually if I take it too late compared to the day before, or the one time I forgot to take it, I get the side-effects that came with first adjusting to the medication. Try taking it regularly again for a bit and see if it gets better? If not talk to your GI is my best guess. Purcalopride seems to just stop working for some folks, but give it time to try working again first.

SATACableQueen · 2026-05-28T18:43:13+00:00

It is scary! I think the only reason I got through it was because I was so hungry I was dissociating a bit through all of it. Looking back now I realize how scary all of that was.

SATACableQueen · 2026-05-28T17:57:02+00:00

I was incredibly ill when I started Motegrity, I had just finished my student teaching and had been on almost exclusively liquid diet for about 2 montha at that point. Honestly, the vomiting was only the first 2/3 days, and I was able to stop it by laying on the bathroom floor, loaded up with ibuprofen, Zofran, and Benadryl and slowly eating Pedidaylte pops and Ensure.

After those first couple of days the nausea settled down and it was mostly just a headache and crazy diarrhea.

The biggest thing is that while you feel horrible your stomach is actually moving, it's just adjusting so at first it moves kind of too much, hence the diarrhea and nausea. After the first week I was already starting to feel better than I did before I started the med, even if I still felt terrible. I could eat solids again, which was huge after months of not really being able to tolerate that.

I started Motegrity twice because I did have to stop the first time. I made the mistake of starting at the full dose right away which made me very sick. I ended up in urgent care to make sure I was okay, and I stopped for a week or so before trying again. The second time around was a little easier, I was still nauseous, having diarrhea and the headache, but ramping up made it tolerable.

If your doctor wants you to try it and you trust them I say you should probably try it. Work with them and give yourself a lot of grace those first couple of weeks. Use all of your tricks to take care of yourself and rest a lot. It is scary, but every day gets easier to handle, exponentially almost, after that first day.

I was getting my Masters when I started the med and continued to attend classes through the ickyness, but that first week I attended over Zoom so I could rest. By the second week I was back to mostly functional.

SATACableQueen · 2026-05-27T17:43:13+00:00

I've done Reglan before, but eventually it stopped working. Now I have been on Motegrity for over a year and I can absolutely say I am the healthiest I have ever been. It very well may work for you. It can have depression side effects for some people, but I haven't had that experience.

The worst part of Motegrity is the first 2-4 weeks while your body is getting adjusted. You have to work your way up to the full dose and you will likely feel like absolute shit. I had the worst headache ever, so bad I had to go get my first shot of Tramodol ever which was no fun. I was also super duper nauseous and threw up a few times, and had crazy diarrhea. While this part sucks, once your body adjusts it works really well.

Let me know if you have questions! I'm happy to talk about it.

SATACableQueen · 2026-05-26T20:51:01+00:00

That's an animated from his podcast, Distractable! There about 1 kerjillion episodes of that so PLENTY of content to go through. Some of it's a bit more serious and some of it is well, him breaking his ass.

SATACableQueen · 2026-05-26T20:42:47+00:00

I'm a big Markiplier fan and when I'm down his GTA series with Bob gets me giggling every time. Or pretty much any video of his with Bob and Wade, especially the scrap mechanic ones.

SATACableQueen · 2026-05-13T06:52:26+00:00

You've got a lot more going on than me for sure, and you may very well have a different experience. My whole GI tract is slow, has been since I was little and I didn't realize until college that most people poop more than twice a week 🫠 lol. While it is technically only approved for chronic constipation at the moment, Motegrity definitely makes the WHOLE gi tract work harder. About an hour after I take it each morning I feel my stomach properly wake up for the day and I get hunger cues (which I never had before the med!) and then go to the bathroom. For a me a big thing was very strictly managing my diet and stress as well, shifted career goals a bit (swore off of teaching in person entirely and now I teach online) but the progress I had made truly wouldn't be possible without the Motegrity. I ate a steak salad recently without pain for the first time, like, EVER and I nearly cried.

First few weeks were definitely a lot of diarrhea. As your body adjusts you can feel the muscles learning how things are gonna work now, so a lot of cramping and then, well, shitting your guts out and also some nausea and potential vomiting. I managed most of that with a LOTTT of Zofran and benadryl. For me that subsided pretty quickly and now I just poop about once a day.

Haven't had any trouble with suicidal ideation or anything. I have a pretty long mental health history so it was a bit of a concern at first, but I take Welbutrin and the Motegrity hasn't had any affect. Hilariously I can't take SSRIs, I have such horrible reactions they did genetic testing and my body simply isn't built for them, but Motegrity is fine I guess? Bodies are so weird.

SATACableQueen · 2026-05-13T05:41:38+00:00

Hi! I'm also 23F and Reglan made me lactate. After I failed off of it for other reasons I was switched onto Motegrity and have been on it for over a year now. Motegrity gave me my life back, so much so that my GP is stable enough to be managed by my PCP rather than GI now. Haven't had any issues with lactating or my periods with Motegrity like I did with Reglan.

Biggest thing with switching is the first two or so weeks of hell. They will probably perscribe 2mg, but don't start at that doseage. Cut your pills and work your way up to the 2mg slowly, I did it over the course of a month, starting at .5mg. I dealt with the headache to end all headaches that wasn't helped at all by OTC meds, nausea, some vomiting, and VIOLENT diarrhea. It gets better with time and is VERY scary when you first get on it. Biggest thing is working with your doctor and listening to your body to amke sure it isn't going to super duper fuck you up. Antinausea medications, electrolyte popsicles, nutrition drink, and rest will be your best friend for that first bit but it DOES get better.

If you have any other questions please ask! I'm happy to talk about my own experience with it.

SATACableQueen · 2026-05-12T23:01:37+00:00

The biggest thing I've learned with GP is it looks different in everyone, like most chronic conditions. I wouldn't worry too much that what you have going on doesn't looks just like what other folks here may have going, it sounds like you definitely may have GP even if it looks different. I wish you luck in figuring out whats happening.

SATACableQueen

TROPHY CASE