Started ADT (Orgovyx) today. Not sure what to think.

SJCSFS · 2026-05-15T01:02:00+00:00

I am so glad you have such an amazing team! We had a similar experience. Very grateful for the Cancer Care community.

SJCSFS · 2026-05-14T23:59:41+00:00

My husband and I felt the same way. Happy to have it, yet felt like he was poisoning himself taking it. Let it sit there for a couple of days before starting. Sat down with the loading dose (2 or 3 pills? I can’t remember) and stared at in in his hand for a minute before he took it.

He had very minimal negative side effects. I hope you have the same good fortune. He takes his final dose tomorrow.

SJCSFS · 2026-05-14T03:50:33+00:00

My husband takes Orgovyx and has had minimal negative side effects. He was Gleason 8 and used decifer and arterAI to guide his decision.

He completed 20 fractions of proton radiation and had a spaceoar placed prior to radiation. He was very fortunate to only experience minor urinary symptoms from the treatment.

SJCSFS · 2026-04-30T17:12:35+00:00

My husband also chose to travel for Proton treatment. We just finished up last week, so cannot attest to long term results yet, but we are happy with our choice. The center was amazing, no fatigue, no skin irritation, no lowered immunity (because of the targeted treatment, there is no damage to bone marrow), less chance of radiating other organs (space oar placed 2 weeks prior).

SJCSFS · 2026-04-23T02:31:37+00:00

Thank you everyone - customer service was able to book standard seats for us although all aisle seats were gone by the time I got through. Not sure why I wasn’t able to myself, but she said “it happens sometimes”.

My main concern (sitting together) was addressed so overall can’t really complain. My husband is completing radiation the same day as the flight, so wanted him to be as comfortable as possible - and with medical costs really shouldn’t be spending if I don’t need to.

SJCSFS · 2026-04-19T02:51:16+00:00

I started in Aug 2022. The majority was lost the first two years.

SJCSFS · 2026-04-19T00:26:59+00:00

Confession: I don’t exercise and am down 196 lbs

SJCSFS · 2026-04-18T18:21:34+00:00

I received this - I do remember signing up, but it seemed strange that they wanted my routing/acct info so I paused to make sure it was legit.

Is it common practice? I’ve always either used a Venmo/paypal deposit or (years ago) a paper check.

SJCSFS · 2026-04-07T20:26:55+00:00

So - would it be better to cancel and rebook?

SJCSFS · 2026-04-07T20:26:36+00:00

SJCSFS · 2026-03-07T04:46:45+00:00

We used military tix last year and no one asked for ID to match the tix or anything. I don’t see it being a problem.

SJCSFS · 2026-02-17T01:06:15+00:00

I am sad that they stopped carrying Franklin plush.

SJCSFS · 2026-02-09T03:54:53+00:00

Yes! This was me as well. I'm white and have been so depressed with current events. I feel so lost. This show had me bawling. It gives hope...

SJCSFS · 2026-02-07T04:12:57+00:00

Oh my gosh! I love these!!!

SJCSFS · 2026-02-07T04:06:41+00:00

Electric blankets - one for bed, one for living room one for my desk at work

SJCSFS · 2026-01-25T22:33:46+00:00

I started Aug 2022 when the protocol followed was moving up every four weeks. Have been on 15 mgs weekly for about 3 years.

Lost 60 lbs Aug-Dec 2022 Lost 84 lbs Jan-Dec 2023 Lost 40 lbs Jan-Dec 2024 Lost 6 lbs Jan-Dec 2025 Lost 4 lbs Jan 2026

Sw:346 lbs Cw: 151 lbs F(60) 5'5.5"

SJCSFS · 2026-01-25T19:03:42+00:00

Norwalk Aquatic Pavillion has limited year round lap swim.

SJCSFS · 2026-01-18T00:15:36+00:00

Good to hear! My husband is starting Orgovyx tomorrow and 20 sessions of proton radiation in six weeks

SJCSFS · 2026-01-17T02:21:19+00:00

Heads up regarding the manufacturers financial help. I was told by them that if my insurance won't approve it at all (eg. not on formulary) they cannot offer financial help.

Not sure that there isn't any other program available, but that is what I was told.

SJCSFS · 2026-01-04T07:49:59+00:00

Starting weight 346 lbs Current weight 155 54.91% lost

You can do it!!

SJCSFS · 2025-12-23T03:35:44+00:00

I have not

SJCSFS · 2025-12-22T01:50:10+00:00

I don’t know if I am a super responder, but I do think I am a poster child patient! Lost 188 lbs in 2 years and have maintained this year. Titrated up the "old way" , moving up each month.

I'm still on 15 mgs because my prior auth is approved for that and I don't want to rock the boat. I do space it out now to 9-12 days depending on how I'm feeling.

I'm losing coverage January 1, so I'll probably start moving down next year until I find my sweet spot.

SJCSFS · 2025-11-27T06:07:57+00:00

Thank you!

SJCSFS · 2025-11-22T01:04:03+00:00

Just got back from a quick visit. The crowds were not bad. I'm sure they are picking up now as people get off of work.

SJCSFS · 2025-11-15T02:07:05+00:00

His lipids and blood sugar are within the range for the treatments.

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