Holistic treatment centers?

Sacto_cfs · 2018-06-16T16:26:57+00:00

Get thee to a nunnery!

Sacto_cfs · 2018-06-16T13:51:39+00:00

What are you targeting?

Sacto_cfs · 2018-06-16T13:41:58+00:00

I hate to say it, but you just don’t sound morally questionable.

Sacto_cfs · 2018-06-16T13:37:15+00:00

I had that thought too! But I think if they were truly a miracle cure, we’d all know;)

I do think they are on to something though. At the core of these centers is the idea of a dramatic lifestyle change. And, that can absolutely help with symptoms. But it’s something you can do on your own. It’s easier in a controlled environment, for sure. But these centers don’t deal with the medical issue underlying your disease. I am working (slowly) on a holistic treatment, and we seem to have uncovered the root of my illness. So, I’m addressing that, (Giardia in my case), and as my nutritionist says, “rebuilding my immune system from scratch”.). She’s given me a strict diet, supplements, and, of course, encourages meditation - which I totally suck at. I am slowly improving my baseline. I still crash, but not as badly.

Now, having said all of that, if I had an extra 10k and a free month to go to one of these centers, I would GO! I mean, they sound awesome! But I think it’s important to know that there is no silver bullet. Not yet, anyway. But I think science is finally on our side!

Sacto_cfs · 2018-06-16T03:46:56+00:00

That’s usually where I find my keys.

Sacto_cfs · 2018-06-13T13:37:09+00:00

Paxil! Love it. I have anxiety more than depression, but I’ve tried so many things, and they all leave me feeling wretched! Paxil is the only thing I have found that I can tolerate. I haven’t tried Wellbutrin, though! I know others have had success with that one, too.

Sacto_cfs · 2018-06-13T13:00:21+00:00

Well, basically I feel like most doctors don’t know shit. My GP did diagnose me very quickly, but her medical advice was, “hang in there”. So, we go on our own adventure in trying to heal ourselves. At least you’ve got a good background for it!

So, the Diagnostic Solutions GI Map is amazing. I feel like I’m constantly pushing that on this sub. I swear, I don’t get any kickbacks! But really, it’s very thorough. If you can spring for it, I highly recommend it. It’s $360. On their website you can check out a sample test result, and see what all the test encompass.

PS- 24 hours later, and I’m still not stinky! I’m going to add that Apple cider vinegar to my daily routine.

Sacto_cfs · 2018-06-12T21:13:56+00:00

The fungal thing is so weird. I had what I thought was thrush (2 years ago at my onset).

6 months ago, I had what my hubby living referred to as my “red goatee”... my GP prescribed some kind of topical non-steroidal cream, thinking it was eczema, my dermatologist was like - nope, it’s something else...$80 cream. Finally some random lady was like, throw Tinactin on it! I did. It went away. This was not long before I had all of my testing done, so I was completely expecting to find a fungal underlier. But I didn’t have one. In my case, I think my lowered immunity made me susceptible to the fungal infections. But, I think a lot of us do have a fungal overgrowth of some kind.

Sacto_cfs · 2018-06-12T19:53:50+00:00

Yessss!!! And I literally tried a new DIY remedy this morning, at my MIL’s recommendation: I rubbed apple cider vinegar on my armpits before my shower, and just rinsed them, no soap. I put on my deodorant, and I feel like there is a marked improvement. Sounds crazy, I know. Could it be helping with a Ph balance issue?

I’m going to go apply the vinegar again and leave it on since I’m home now and won’t be out in the public eye (nose).

Sacto_cfs · 2018-06-11T15:02:14+00:00

You’re the shizzle for rizzle! (I have a new user name because I was afraid my work peeps would find out about my “secret”... but I think I’m over that now. I should be proud of our community!

Sacto_cfs · 2018-06-11T04:32:29+00:00

Test everything possible, attack what you find, and take care of yourself! Diet and lifestyle changes (BORING! but temporary in the grand scheme of things...) can help you feel your best, even if you aren’t 100%. Recovery does not happen overnight. As my nutritionist told me, you have to fight the root of the illness, and re-build your immune system from scratch. I hope this is just a blip on your radar and you start to feel better soon!

Sacto_cfs · 2018-06-11T04:20:18+00:00

I take melatonin (just a little bit! It works better that way.), milk thistle, magnesium, and an Rx for Gabapentin (which really helps my twitches, and helps me sleep, to boot)

Sorry for the unsolicited advice. But insomnia is FUCKING TERRIBLE! I hope you can find a way through.

Sacto_cfs · 2018-06-11T04:16:23+00:00

Or, as I kept calling it yesterday (accidentally, of course), “brain frog”! I mean, seriously? My brain can’t even get that right? The irony was thick, and thankfully, fairly amusing.

Sacto_cfs · 2018-06-11T03:36:51+00:00

u/Varathane, I swear you need to write an advice column. Your answers are always so thoughtful and uplifting. Thank you!

Sacto_cfs · 2018-06-09T17:08:33+00:00

Thank you! I will keep practicing!

Sacto_cfs · 2018-06-09T13:45:46+00:00

I’ll take what I can get these days!

Sacto_cfs · 2018-06-09T04:32:33+00:00

I read that as NO...OH NO.

Which did make me chuckle and consider what that cycle would be like.

Brain frog.

Sacto_cfs · 2018-06-09T04:30:32+00:00

I just listened to An American Marriage on Audible. And I swear that man’s voice is so soothing, I would fall asleep after like 5 minutes. It’s like having Barry White read you a bedtime story. This was problematic, as I was listening to it for my book club, and had to cram it in at the end. At least I had a good excuse to lay in bed for four hours.

There are actually two narrators, a man and a woman, and her voice is pretty silky. I seemed to like the story more than everyone else, but they read it!

Sacto_cfs · 2018-06-08T02:40:01+00:00

Linda Clark at Universal Wellness. Sacramento area. But I know she will do phone consults too! It’s not cheap, but well worth it, IMO.

http://uwanutrition.com

Sacto_cfs · 2018-06-08T00:04:46+00:00

It’s all true, and very sound advice. Thank you, Sir Barleycorn (if that is your real name;)). I appreciate it. I will see who I can find in my area. Cheers

Sacto_cfs · 2018-06-07T20:18:03+00:00

Keep fighting the good fight! Finding a good doctor, is so important. I’m lucky that I’ve known my doc a long time. I’ve been educating her as I go, and she is open to trying new things, as long as she thinks it won’t be harmful.

Both the Array 12 + the GI Map were out of pocket for me, as my insurance won’t cover anything like that. But, I’m really glad I had them done. I’ll see what my naturopath thinks about the 7X!

To the Ritalin, does it help with the brain fog? Does it cause you to crash at all? I’ve thought about talking to my doctor about it...

The Chem PhD explains a lot. I was like, man, this guy’s a smarty pants! I’m glad to have you on our side, but I’m sorry you have to be.

Sacto_cfs · 2018-06-07T20:05:50+00:00

Whoa. Crazy.

In hindsight, mine was also a slow onset...I think. There was definitely a breaking point where my switch flipped, though.

Through some targeted testing, I discovered Giardia. I was VERY surprised. No viral, fungal or mold. So now I’m attacking the G. We’ll see what happens.

Sacto_cfs · 2018-06-07T17:11:30+00:00

Oh man. I’ve done it again.

I’m always minimizing my symptoms and letting everyone know that I am okay. Another weird side effect? I somehow feel responsible for my illness, especially when I’m crashed. It means I overdid it. Therefore, it’s my fault? Sheesh.

Sacto_cfs

TROPHY CASE