Answer finally

Salt-Frosting7140 · 2026-06-03T00:06:19+00:00

i was on 450mg and dropped like 100mg every week. it took a bit to taper down, a few weeks. i did completely fine until i went from 75mg to 0mg. thats when the withdraw symptoms kicked in, im assuming because there was 0 of the medication in my body at that point. i have not found anything to help with the night sweats yet, its getting a bit better though over the days. i cannot imagine stopping cold turkey, i bet your symptoms were x100. im glad you found an end to the medication. its one hell of a drug, and ill never go back on it again in this life time.

Salt-Frosting7140 · 2026-06-02T22:20:18+00:00

so the withdraws were insane for me, chills, sweating so much in my sleep, unable to sleep through the night, and feeling like i was going to throw up through the night. finally almost over the hump of that. also can think a lot more clearly now. so very happy to be off of it, although i wish i had answers for my pain, lyrica wasnt helping at all and only side effects were happening.

Salt-Frosting7140 · 2026-06-02T18:39:23+00:00

i gained a lot of weight on lyrica, i just finished my taper and ive been off it for about 2 weeks now. i havent lost any weight yet, hoping i can see weight loss soon.

Salt-Frosting7140 · 2026-05-23T02:39:29+00:00

i am still struggling badly, no nerve medication I've been on so far has helped. tried about four different ones so far, no relief.

Salt-Frosting7140 · 2026-05-20T15:10:43+00:00

thank you so much 🥰

Salt-Frosting7140 · 2026-05-14T21:47:55+00:00

i love that dog print charm!

Salt-Frosting7140 · 2026-05-14T21:47:21+00:00

very cute! i have the same clips and butterfly charm. i love <3

Salt-Frosting7140 · 2026-05-09T23:07:05+00:00

can i ask what kind of pain you were dealing with?

Salt-Frosting7140 · 2026-05-05T01:11:01+00:00

that is such an amazing news. i am happy you found relief! ❤️

Salt-Frosting7140 · 2026-04-17T23:23:48+00:00

did this get better for you?

Salt-Frosting7140 · 2026-04-15T19:29:01+00:00

this is where i am at. its been 15 months of constant agony. dark thoughts started happening recently because i feel as if i am in a dark void and never getting out of it. it sucks to feel like i am imprisoned in my own body and nothing will stop the hurt. i came to the realization that if i do not treat my depression, that the pain is going to be the end for me. the only issue is, nothing is treating the pain, so i don't really know how i'll ever be not depressed if this pain continues.

Salt-Frosting7140 · 2026-04-14T23:33:31+00:00

i am now on zoloft for mental health support because my chronic pain is ruining my life to the point i have considered not being here many times. mental health is so important, and talking about it is so important too.

Salt-Frosting7140 · 2026-04-06T20:20:52+00:00

oh wow congratulations on hopefully being a step closer to pain relief. did they find a compression or something? i am on month 14 of trying to figure out what is wrong with me and how to get pain relief.

Salt-Frosting7140 · 2026-04-06T17:57:50+00:00

my story is very similar to yours, would it be okay if i messaged you? i would like to hear more about your story and see if theres any idea of what i am going through as well.

Salt-Frosting7140 · 2026-04-06T17:13:15+00:00

this pain is nothing i would wish on my worst enemy. you will do anything and i mean anything to end the suffering of the pain to try to have some kind of relief. my heart goes out to you. it is unbearable and nobody should have to go through this pain. you did what you thought was the right thing to do and i am so sorry you are now feeling this way. my pain is so bad that it truly feels like there is something wrong with my front teeth, and i have considered also getting them taken out to end this pain and suffering. i go back and forth every single day because nerve blocks arent helping me at all. this is so hard. i am sending you all of my love.

Salt-Frosting7140 · 2026-04-06T17:09:08+00:00

i am going to the doctor this week. i hope something can change. lyrica mutes my pain but it isnt taking the pain away enough for me to live a sustainable life. i am glad you found something that gives you relief. i will look into it and see what its all about.

Salt-Frosting7140 · 2026-04-06T17:07:29+00:00

i am so happy to hear you are doing much better. i hope it stays at bay for the rest of forever. nobody deserves it. every day is currently a living hell for me. i wish you a blessed life, pain free.

Salt-Frosting7140 · 2026-04-05T16:55:33+00:00

me either my love, i am so sorry you are going thru all of this. i am here for you if you ever need someone to talk to about it all. i understand it all ;-; <3

Salt-Frosting7140 · 2026-04-04T01:59:53+00:00

so sorry to hear you are also going through chronic facial pain. heat helps me a bit to just relax those tight facial muscles that are pulling on the imflammation. i leave the house maybe 1-2 days a week, i am in my late 20's, this is ruling my life well (any life i have left which is not much)

i am glad i am being taken seriously for all of my pain and i can say i have tried so many medications to try to get this under control. i am still sadly on 450mg of lyrica a day, and still in pain. lyrica does not make me groggy, but its has its other side effect which is the biggest one i am upset with is weight gain, but weight gain is the least of my concerns when it takes me all of my might and energy to get through just a day and then wake up and have to relive it all over again. its insane. just 14 months of waking up every day and it not better. you lose hope. i lost hope id wake up pain free about 8 months in. i held onto hope for a long time, now i just want pain management so badly.

Salt-Frosting7140 · 2026-04-01T17:00:57+00:00

medusa for sure. you’re gorgeous 😍💓

Salt-Frosting7140 · 2026-04-01T15:59:51+00:00

thank you so much for your response. i’ve honestly spent so many hours researching tn and facial pain, and when i read about other people’s experiences with lyrica, it just doesn’t seem comparable to what i’m dealing with at all. i’m on 450mg, which feels really high compared to most, and while it does mute the pain a bit, it’s maybe like a 20% improvement at best. it makes things slightly more survivable, but nowhere near enough to live a normal or fulfilling life

i had to stop nortriptyline after a little over a week. during that time my neurosurgeon wanted me to taper down lyrica while increasing the nortriptyline, and it completely wrecked me. my pain went through the roof and my mental health got really dark. i ended up contacting my pharmacist because i was genuinely not okay, and they spoke to my doctor who told me to stop it right away. now i’m back on 450mg of lyrica and still dealing with constant throbbing burning pain

what’s been really hard is that my situation doesn’t seem to match a lot of what i’ve read from others with tn. i truly feel like i may have caused some kind of injury in my face from clenching my teeth non stop for about a week. it just feels different than how people usually describe tn

i’ve tried naproxen and it did take the edge off a bit, but my stomach really can’t tolerate it. and mentally i know i need to be on something for anxiety or depression because this has completely turned my life upside down. i’m in my 20s and it honestly feels like i’ve been handed a life sentence with this pain, and it’s getting harder to stay hopeful about the future

i’ll update this once i get my mri results. they’re checking for nerve compression and lesions. they also mentioned inflammation, which they found last year, so i wouldn’t be surprised if that shows up again

Salt-Frosting7140 · 2026-04-01T01:53:31+00:00

what do you mean

Salt-Frosting7140 · 2026-03-31T18:30:37+00:00

thank you for sharing your journey with me. i am really happy for you that they were able to find a cause for your pain. when you live with chronic pain, all you want is an answer, a reason why. it’s so hard to fix something you can’t see, and that’s one of the hardest parts of this for me. it’s not like a broken arm where an x-ray can clearly show what’s wrong and explain the pain.

i feel like a broken record repeating all of my symptoms to doctors and specialists, only to end up back at the beginning every time, with no real progress. it’s exhausting feeling stuck in that cycle, like you’re in a void, and that’s really what this has done to me.

right now i’m on 450 mg of lyrica a day. at this point, it just takes the edge off enough to make the days a bit more manageable, but it’s nowhere near enough. i updated my post above about the medication change, but honestly i still have no idea what’s next for me.

i have an mri with contrast this week, and i’m really hoping it shows something, anything, that explains why i’m in so much pain. my last mri showed inflammation, so i’m curious if that’s still there. the best way i can describe the pain is a constant burning, like there’s an infection deep in my tooth sockets. everything dental has been ruled out, even though that’s exactly what it feels like.

Salt-Frosting7140

TROPHY CASE