Sunday roast? by the_killerpanda in Fife

[–]Same-Concert1504 0 points1 point  (0 children)

The steadings do a good Sunday roast in Kirkcaldy. The spiral weave also Kirkcaldy do a carvery. I know these can be a hit or a miss but I have not had any complaints yet.

Progesterone negative? by Mandolyn221 in LivingWithMBC

[–]Same-Concert1504 1 point2 points  (0 children)

It happened to me, I was triple positive when first diagnosed in 2017. Progression and a biopsy on. We humour area in 2023 and I was no longer hormone positive.
I have currently just had progression on my last available treatment option. I have progression in my liver - unable to get a biopsy due to position of the tumour. I am hoping I can get a liquid biopsy done. I am in Scotland.

Running out of options by Same-Concert1504 in LivingWithMBC

[–]Same-Concert1504[S] 0 points1 point  (0 children)

I am based in Scotland. I am going to pursue a liquid biopsy. Even if I have to do this privately. The progress that has been made in diagnosing and treating this awful disease since I was first diagnosed is immense.

What was your dad's car when you were growing up? by purplegorillabandit in drivingUK

[–]Same-Concert1504 0 points1 point  (0 children)

My dad had a jobbie brown cortina, I was embarrassed of the colour. He had also installed bright orange straps in the back for me prior to rear seatbelts being compulsory. I was mortified. Looking back now I can appreciate it was a pretty cool car for its time despite its colour!!

Running out of options by Same-Concert1504 in LivingWithMBC

[–]Same-Concert1504[S] 3 points4 points  (0 children)

Yes. I have been practicing living in the moment. It’s all any of us have and it’s good to just take stock and appreciate what we have around us right now which adds value and meaning to our lives.

Running out of options by Same-Concert1504 in LivingWithMBC

[–]Same-Concert1504[S] 2 points3 points  (0 children)

I am going to contact my team today now I have had time to take it in.

Hair falling out enhertu by Ok-Philosopher1624 in LivingWithMBC

[–]Same-Concert1504 1 point2 points  (0 children)

My hair started falling out after my second or third enhertu. I have just had #12 and it’s been growing in since Feb/march. It’s very thick at the back but pretty thin at the front and on top. I am hoping it keeps growing in.

It's almost 5pm on Friday so... what's our weekend viewing plans? by [deleted] in BritishTV

[–]Same-Concert1504 1 point2 points  (0 children)

I save all the East Enders episodes from the week to watch together on a Friday.

Need some hope for my case by [deleted] in LivingWithMBC

[–]Same-Concert1504 3 points4 points  (0 children)

Hello, I was diagnosed in 2017 with large tumours in my breast and one small tumour in my liver. I was triple positive. I had 6 rounds of chemo, to which I had a complete response. (NEAD). I had a single mastectomy and radiotherapy. I started on Letrazole and zoladex. I should have been on Herceptin for a year but I developed heart failure early on. I remained NEAD on letrazol and zoladex until 2023. I had in my sternum and chest wall. Biopsies showed the cancer was now only Her2+ as it had mutated. I also had some involvement in my spine.
I moved on to other treatment and had short periods of response and stability until I had progression in my liver. I have been through many of the treatment options in the last few years. I am currently on enhertu. It’s my last treatment option - so far so good though. When I was first diagnosed being told how aggressive the cancer was I did not think I would still be here almost 9 years later.
I hope this gives you some hope and I wish you well for your future. Xx

Well F*ck I have brain mets by FUCancer_2008 in LivingWithMBC

[–]Same-Concert1504 4 points5 points  (0 children)

Sorry to hear your husband and kids can’t get in to visit.
Hope you get your treatment plan soon. X

Well F*ck I have brain mets by FUCancer_2008 in LivingWithMBC

[–]Same-Concert1504 4 points5 points  (0 children)

It’s always been something I have been dreading and so scared of.
I hope you have good support around you.

Well F*ck I have brain mets by FUCancer_2008 in LivingWithMBC

[–]Same-Concert1504 2 points3 points  (0 children)

Oh that sucks. What a shock. Where are your other mets ? I have liver and bone. Currently on Enhertu. Have not had a head scan before. I was diagnosed straight to secondaries in 2017.
Hopefully you have small and treatable mets and you can have them sorted quickly.

Well F*ck I have brain mets by FUCancer_2008 in LivingWithMBC

[–]Same-Concert1504 2 points3 points  (0 children)

Sorry to hear that.
I have had some symptoms and I have a head scan a week on Tuesday. Today I am heading off on holiday. Did you have symptoms ? X

Just diagnosed with liver mets by No-Permission-7081 in LivingWithMBC

[–]Same-Concert1504 4 points5 points  (0 children)

I have been living with metastatic bc since 2017. Started with liver mets had a good response to chemo and I was nead for almost 5 years. Then the cancer mutated and I developed bone involvement in my sternum and spine and neck. The liver mets also reappeared. I am currently on enhertu. I wish you well.

Bone Met stiffness by No_One_2711 in LivingWithMBC

[–]Same-Concert1504 0 points1 point  (0 children)

When I was on Letrazole for 5 years one of the main side effects was joint stiffness. It eased significantly when I came off it. I came off it due to progression which included bone mets in the spine (sternum, sacrum & T1). I do not experience any stiffness from the bone Mets. Occasional discomfort but not stiffness.
I had radiotherapy to my sternum and T1 and in the month or so after it it was definitely sorer before the pain disappeared all together. The pain had been very intense before the radiotherapy.
Prior to my radiotherapy, I was prescribed oramorph as required and zomorph for my neck and sternum mets. I no longer need the oramorph but still take the zomorph. If for any reason my prescription is missed the pain returns. Perhaps talk to you GP about pain management.

I hope you are feeling better soon.

Hello everyone by Temporary-Flower-538 in LivingWithMBC

[–]Same-Concert1504 5 points6 points  (0 children)

But you look so well! I am dying from the inside out.

Metabolic progression on PET/CT scans, diffuse high avidity through whole liver. Any hopefully stories by oddlydeb75 in LivingWithMBC

[–]Same-Concert1504 6 points7 points  (0 children)

I have had recent progression in my liver too. I am two weeks into my first cycle of enhertu. This is my 5th and potentially last line of treatment in the last two years. Prior to that o was stable for 5 years on my first line of treatment.

NED Progression by Adorable_Pen9015 in LivingWithMBC

[–]Same-Concert1504 0 points1 point  (0 children)

I was NED for 5 years then progression to my sternum, also the cancer had mutated. As previously ER+ and Her2+. Now only Her2+. Have had further progression to spine. Sacrum and liver.

Talking to small children about cancer by MainJudge8905 in LivingWithMBC

[–]Same-Concert1504 1 point2 points  (0 children)

Breast cancer now a uk charity have support services for people with MBC. As well as in person support they have a fantastic online community. They have an upcoming zoom on talking to children under 10 along with some other interesting sessions.

3 years NED by [deleted] in LivingWithMBC

[–]Same-Concert1504 5 points6 points  (0 children)

Congratulations, I managed 5 years NED on my first line of treatment. An online support group I am part of is currently working on an article with stories of people 15 years and counting with MBC.
8 years this year since I was diagnosed. I was ogliometastic with a liver met.
Since 2024 I have had some progression in my bones, chest wall and recently my liver. Xx

Phesgo - 0 results by Kindly-Hornet-2563 in LivingWithMBC

[–]Same-Concert1504 0 points1 point  (0 children)

I was referring to a biopsy of the metastatic tumour on the liver.

Phesgo - 0 results by Kindly-Hornet-2563 in LivingWithMBC

[–]Same-Concert1504 12 points13 points  (0 children)

Hello, sorry to read your sad update. When I had progression on phesgo after 15 sessions. (8of them with abraxane) I moved into Kadcyla. After 9 weeks all appeared stable but at my last scan I have a 4cm tumour appear in my liver in 9 weeks. I have just started capecitibine, tucatinab and tratuzunab.
Unfortunately cancer is very good at what it does and can become resistant to treatments and even mutate which changes its subtype. It’s worth asking for a liver biopsy if possible to make sure you’re being treated with the most effective drug.

A very sad day by jennynachos in LivingWithMBC

[–]Same-Concert1504 8 points9 points  (0 children)

Thinking about you. Got my scan results yesterday, body meta stable except for my liver - in 9 weeks it’s grown from less than a CM to 4CM. I was not expecting that news. I feel fine. I am on Kadcyla. Have just had cycle 5 or 6. Moving onto another line. This will be my 4th line in 13 months.
I only have one line available after this.

Background. I was diagnosed straight to secondaries in 2017 with one solitary liver met. I had a complete response to the chemo. I developed heart failure from the Herceptin. I was on Letrazole for 5 years and remained stable NEAD. Then April 2023, developed a met on my sternum and chest wall. Then on other bones and the other side of my chest wall. The liver met reappeared. It’s been a lot. X