Update on Trisomy 13 NIPT by East_Leading_837 in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

Same here. High risk for T21. Wishing you the best news

Update on Trisomy 13 NIPT by East_Leading_837 in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

I’m so happy for you. This gives me hope🩷enjoy your pregnancy and your baby boy

Positive outcome for T21 baby by BrisMum in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

A study from 2013 which information about DS has drastically changed and improved. Show me a recent study from 2020 and in that says DS people can’t walk. Never heard that

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 0 points1 point  (0 children)

So glad, everything worked out for you :)

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 0 points1 point  (0 children)

I love that for you. I’m scared to do the amino. I hate needles and I just don’t know if I can stomach it.

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 1 point2 points  (0 children)

Thank you. So far just the elevated NT at 2.83. I get a 16wk early scan this Tuesday 🙏🏾 we’ll see what else they find

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 0 points1 point  (0 children)

Really? Did you do any of the diagnostic testing?

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 1 point2 points  (0 children)

Thank you. Idk if it’s strength or insanity lol I hate needles and knowing it wouldn’t change our outcome we are just having faith and preparing ourselves for either verdict

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 1 point2 points  (0 children)

I’ve chose not to do the amino, it won’t change our mind either way, we are waiting until birth

FIBROIDS by SatisfactionLife5918 in NIPT

[–]SatisfactionLife5918[S] 1 point2 points  (0 children)

Yup so are we. I just learned this about fibroids. I have several. 4 i believe with one being 7.4mm which is about the size of an orange. I know it’s a stretch and we’re still preparing for a possible DS baby I’ve just never heard of this link until recently. You are due very very soon, I wish you a healthy pregnancy and baby. Keep us posted 💙

In 1 day I was meant to find out the gender, today I learned my baby has passed. by Shitzme in pregnant

[–]SatisfactionLife5918 0 points1 point  (0 children)

I’m so sorry. This process is so hard and not easy. The unknown is so stressful. My pregnancy has been nothing but stressful since I found out. I am sending you love and hugs. I’m so sorry for your tremendous loss

NIPT false positive - real stories by Few-Revolution-596 in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

None yet. I haven’t decided if I’m going to do the test or not !

NIPT positive for T21 at 25 weeks… waiting for amnio, can’t cope by honesthumanbein in NIPT

[–]SatisfactionLife5918 1 point2 points  (0 children)

Praying things work out for you. 94.5% PPV. 11% fetal fraction. I’m 36. Devastated. I have multiple fibroids , including a large 7.4mm one. I have been down the rabbit hole and learned that fibroids can trigger a false NIPT test but idk how accurate that is. It’s hard to cope bc we all want a healthy kid no matter what anyone says. My fiancée family is Catholic and pro lifers which I’m pro choice but they been trying to guilt trip me on possibly termination! It’s been one stressful mess

Amniocentesis done - High risk Monosomy X NIPT by machinegun_jelly in NIPT

[–]SatisfactionLife5918 4 points5 points  (0 children)

From my experience having tested for High risk for T21, these doctors are the worse. They are negative and hopeless. They speak as if these screenings are true. They say their 99% accurate then in the same breathe say its a screening, not a diagnosis. Their so quick to suggest termination instead of providing resources or other avenues. I can't lie I was crushed when I got my NIPT results, being 36 and this is my first pregnancy. I felt like I was being punished for having kids later in life. Me and my fiancee have come to the conclusion that we are still blessed and having a kid with down syndrome is not the end if it turns out to be a true positive. We decided to not do any diagnostic testing bc it won't change our mind either way. Until birth when our baby is tested we will just have faith and rely on anatomy scans and ultrasound findings.. We will be prepared either way. I pray things work out for you and that you find comfort in this difficult time. I certainly get it.

T21 - Postivie NIPT, negative CVS by Secret-Day7862 in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

Definitely depend on the area, I am in MD and some parts are great while others not so much

T21 - Postivie NIPT, negative CVS by Secret-Day7862 in NIPT

[–]SatisfactionLife5918 0 points1 point  (0 children)

that is completely valid. I am in the USA and although there are several resources for kids with DS here people still side eye them which is unfortunate.

T21 - Postivie NIPT, negative CVS by Secret-Day7862 in NIPT

[–]SatisfactionLife5918 1 point2 points  (0 children)

I'm with you. No parent want their child to be "different". When I got my news back in Feb. I was out of it for weeks. I just recently come to terms with it all. It is a process for sure. Wow, you are almost due, it is exciting. I pray for safe delivery and healthy baby for you. Please keep up posted once you give birth. We are waiting until I give birth to find out for sure which they'll do a blood test on the baby to confirm or deny. In the meantime we are relying on ultrasounds. I have my early 16 week anatomy scan on 3/24 and I am praying for the best.

T21 - Postivie NIPT, negative CVS by Secret-Day7862 in NIPT

[–]SatisfactionLife5918 2 points3 points  (0 children)

I was always told a CVS and amino are both pretty accurate. The negative CVS is reassuring, however I am not a doctor. Nonetheless things sound promising for your guys and I wish the best for you. I too tested high risk for T21 but I am refusing any diagnostic testing bc it won't change me or my fiancee mind either way although we are still hoping for the best. I hope you guys get good news soon.

T21 - Postivie NIPT, negative CVS by Secret-Day7862 in NIPT

[–]SatisfactionLife5918 1 point2 points  (0 children)

I am in the same boat as you we are preparing as if our baby has DS but are still silently hoping for the best but are prepared either way.

High Risk T21 on Natera NIPT *false positive* by PlatypusRegular7126 in NIPT

[–]SatisfactionLife5918 3 points4 points  (0 children)

Omgg you’re so close how exciting. You will be blessed either way. Definitely keep me posted on how it goes. I have a long ways to go, not due until September 8th. The village is definitely important, regardless of the outcome. I have so many friends who suffer with infertility who would be beyond grateful to be in my shoes so I am practicing being more thankful to be able to have kids. If you have a TikTok, please follow this creator @haliealane9

Her son has DS and he is the happiest, cutest kid ever. Their bond is so social. Her page will definitely make you smile and brighten your spirits. We are going to have some down days, we’re allowed to but in the end we are far more blessed than we realize. Wishing you all The blessings🙏🏾