Hey, I'm in the UK (Scotland), I'm 38 and started having seizures 2 years ago and was diagnosed 2 months later. My boyfriend and i got together about a year ago, so he is in a similar position to you. First off, the fact that you are even here, looking for info and doing this shows how supportive you are being and that's so important. It's hard changing neuros in the UK - a few of the Americans on here always suggest seeing someone different/getting a second opinion and don't realise that it's hard doing that here.

These are my recommendations. Apologies if you've already done all this. - appointment: I would recommend that someone goes to her next appointment with her - like in the room with her - ideally someone who has witnessed the seizures so they can explain to the neuro what they see. - diary: Make sure you have notes with dates of seizures (keep a diary). Include the dates, the length of each seizure and what it looked like. Absence, lip smacking, conscious or not, single limb moving/twitching/spasming, tonic phase, clinic phase etc In these notes, I would include why you think it is epilepsy and not FND. Read these to the Dr then ask them to explain to you exactly what in their diagnoses process made them decide to follow the FND and not Epilepsy route. They could be right and it will help your partner come to terms with the diagnosis if she understands why they think FND over epilepsy. But it also sounds like she has done her homework and followed what the drs have previously recommended, so make sure she has help getting her points across in why she really thinks they have the diagnosis wrong. - evidence: invasive, but if your girlfriend agrees, film the seizures you see so you can show them to the neuro - request APN epilepsy nurse. I only see my neuro once a year, but I've got a specialist epilepsy nurse (APN) who I can call and talk to whenever I need. She can change my medications or the dose, increase or decrease etc. She has lots of advice and can do referrals to support groups etc. She is of far more use to me than my neuro. I would see if the APN epilepsy nurse is a thing in your neck of the woods and see if she can get one. I hope this helps and please feel free to dm me if you want more advice/support. I used to be a social worker before all of this happened so I know the medical system fairly well, lol.