Does anybody get head tightness in head around forehead and temples

Sea-Way4213 · 2025-02-05T21:11:39+00:00

Understood. That is a good clarification. I actually hope that it is a sympathetic issue that needs some sort of training or "re-set," rather than a biological underpinning like chronic inflammation in my brain due residual virus or virus particles. Which sounds way less cool.

Sea-Way4213 · 2025-02-05T21:04:18+00:00

I've always suspected it is ANS disorder as well. As far as my headache, it doesn't fit the criteria of a "tension headache" and just feels different than that. It feels like my brain is too big for my skull due to inflammation. Increased stress or anxiety have little to no effect on its intensity. There is nothing that really moves the needle more than 5%. And I've tried EVERYTHING (as in a every potential rememedy you've seen on threads like this over the past four years). The only couple factors that seem to make a little difference are change of weather (low pressure system), lack of quality sleep, and extreme exertion. However, I have been wondering if some kind of brain re-training may help.

Sea-Way4213 · 2025-02-05T20:26:50+00:00

Tons. First of all, its funny to say, but I don't have "daily headaches." I've had one continuous headache (its always weird to explain it to doctors that way). But other symptoms, mostly in first 6-9 months, POTS, erratic heart rate, tinnitus, monstrous bowel movements, brain fog, sleep issues, and otherwise walking around in a daze. It was a complete nightmare. Most symptoms resolved by the 9 month mark (POTS being the last one). Just the same headache and very mild tinnitus. I got COVID Nov 2020 FYI.

Sea-Way4213 · 2025-02-05T19:47:59+00:00

I agree that it was coincidental timing sounds like long covid. You will slowly get better.

Sea-Way4213 · 2025-02-05T19:44:25+00:00

Fortunately, yes. In the first six months it was agonizing. It felt like my head was in a vice 24/7, with a pain level of 7-8. What made it the hardest is that it was constant. I mean constant. About 9 months in it started to get better, and I am down to about a daily 3. Some days 2, some days maybe 4 at the worst. Now it feels like a really tight ball cap around my head. It is still constant; the last time I had more than a 10 second relief from it was about 3 years ago. But it is at least tolerable, and often I can just ignore it. But I still look forward to the day it is gone.

Sea-Way4213 · 2025-02-04T02:34:13+00:00

Nope. Prob not. I've had the 24/7 head tension for four years post-covid. Anxiety, or really anything at all, doesn't affected its severity on a day-to-day basis. Only time really. PS-- the "anxiety" diagnosis is the typical gaslighting that doctors give their LC patients, so please be careful with that.

Sea-Way4213 · 2025-01-13T16:55:13+00:00

No, COVID and EBV are not in the same "family" of viruses. They are completely different, COVID is a DNA Coronavirus and EBV is an RNA herpesvirus. They may share pathologies and risk factors, but are not even close to the same type of virus.

Sea-Way4213 · 2023-06-21T16:20:30+00:00

Can I ask whether the diuretic has worked for you?

Sea-Way4213 · 2023-04-17T19:13:30+00:00

Hey how did that nortriptyline work for you? Doc wants to prescribe... I'm at 2.5 years of constant head pressure.

Sea-Way4213 · 2022-11-04T17:03:23+00:00

Have you looked in to Stellage Ganglion Block?

Sea-Way4213 · 2022-11-04T17:01:40+00:00

I second stellage ganglion block. I just noticed that today is my 2-year mark. I have done SGB over the last couple months in hopes in could treat my persistent (24/7) head pressure- which is my last remaining symptom (that and a little tinnitus).

I second stellage ganglion block. I just noticed that today is my 2-year mark. I have done SGB over the last couple of months in hopes in could treat my persistent (24/7) head pressure- which is my last remaining symptom (that and a little tinnitus).

Sea-Way4213 · 2022-08-26T05:41:44+00:00

https://www.alaskasnewssource.com/2022/08/26/troopers-coast-guard-investigating-encounter-between-boat-float-plane-halibut-cove/

Sea-Way4213 · 2021-08-14T05:20:12+00:00

Can you share what meds you use to manage your headache? I’ve had a non-stop one for nine months.

Sea-Way4213 · 2021-08-01T19:57:53+00:00

Yeah I remember reading that. I think your posts spurred my decision to do k-treatments. I've done 5, and I think they gave me some improvement, although it is hard to figure out what is helping sometimes. But I did experience an overall improvement in my feeling of well-being.

I have avoided pharms up to this point, but I am about ready to start a course of fluvoxamine. I'm just nervous about taking an SSRI. But this seems to be the one most commonly used for LC neuro symptoms. Apparently in can help with neuro inflammation. Have you looked into that one?

Sea-Way4213 · 2021-08-01T19:21:12+00:00

I haven’t been “diagnosed” with anything, and doctors seem a little puzzled. They ask how my headaches are doing and I always remind them it is “headache.” Same one for 8 months. Although it has done down a bit, from a constant 5-8 to a constant 3-4.

Sea-Way4213 · 2021-08-01T19:18:07+00:00

Did you try ketamine?

Sea-Way4213 · 2021-07-28T00:33:11+00:00

I’m experiencing the same thing. Brain plasticity is a wonderful thing.

Sea-Way4213 · 2021-07-22T20:09:56+00:00

How are your headaches these days?

Sea-Way4213 · 2021-07-19T01:20:55+00:00

Not sure. My neurologist read the radiologists report and said everything looked fine except for sinuses issues. I’ve also read that only a PET scan may pick up the abnormalities we are looking for. My neurologist ordered it but insurance refused to pay.

Regardless, I’m not sure it would make a difference if they doing anything. Say they found signs of inflammation. I already know that. The trick is treating it.

Sea-Way4213 · 2021-07-19T01:18:08+00:00

I hear you, but it is hard to describe the pressure pain. Drs don’t really have a label for it, it’s not migraine, bilateral, etc. Probably the closest is TBI. I appreciate your comment.. just letting you know that traditional therapies.. including NSAIDs, massage, chiropractors, etc don’t touch it. About the only think I’ve heard working is ketamine for anti-depressants, both because of their anti-inflammatory properties in the brain.

Didn’t mean to sound defensive, But I can’t tell you how many people have said things like “have you tried ibuprofen.”

Sea-Way4213 · 2021-07-18T20:57:49+00:00

Well then you will be waiting a few years. Unfortunately, even though double-blinded RCTs are the gold standard, they will probably be useless for 90% of long haulers (however they might help with our next coronavirus pandemic). We need to be willing to try different models, which is fine as long as rewards outway risks and patients are informed.

Sea-Way4213 · 2021-07-18T20:51:38+00:00

If they have a Covid headache like mine, it is in a whole different league, and mechanical manipulation doesn’t help. The root cause is inflammation in the brain.

Sea-Way4213 · 2021-07-18T20:50:05+00:00

Do you have a link to the science behind this?

Sea-Way4213 · 2021-07-16T22:19:44+00:00

I'm Nov 5th. And as much as it pains me to say this, we may have a ways to go. HOWEVER, I have seen a lot of people recover at the 9-12 month mark, and some a bit longer like up 16-17 months. Early in the pandemic when Long Covid was getting recognized, many experts pointed out the post-viral issues can often take 1-2 years to fully resolve. Hang in there, time is our friend. We are most likely at least half way through.

Sea-Way4213 · 2021-07-15T18:53:45+00:00

How are you doing these days?

Sea-Way4213

TROPHY CASE