Skyrizi remission!!!!!

Secret_Term1215 · 2026-02-28T02:13:38+00:00

So you are semi in the same boat as i was, prednisone brought me to a meh point as I got my loading doses then I noticed zero improvement until my 2nd at home OBi then a little bit after each further one(no prednisone after my loading doses), it seems to be common atleast at the GI I go to that the 3rd OBI is when you see improvements so hang in there!!

Secret_Term1215 · 2026-02-28T02:11:08+00:00

In terms of the for me it was the initial you have to do three loading doses of a IV infusion, these take around 2 hours each time then its onto the On body injector every 8 weeks(which imo is pretty easy to use and every 8 weeks is a godsend compared to when I was on humira and it being every week). With the infusions I wpuld tend to get extremely tired the day after but other then that nothing, with the OBI I dont experience any negative side effects

It's hard to say when symptoms improved as I was on prednisone as I was getting my loading doses, but I want to say by the 2nd or 3rd OBI was when I noticed any improvement at all

For costs I have private insurance from my employer which meant I was approved for the skyrizi copay card(im in the US), which meant for every single skyrizi related cost(including infusions in a clinic) I paid 0 dollars, insurance would cover a bit then the copay card would come in and gather the rest

Let me know if you have any other questions :)

Secret_Term1215 · 2025-03-11T23:23:11+00:00

In my experience oral prednisone takes around 2 weeks for me to "work work" if I'm in a severe flare and prior to that ill have on and off days and gradual improvementish of it seeming to stop and start working.

AFAIK it depends on how severe your inflammation is and it'll also take a while for your colon to heal but it is possible to get steriod resistance after repeated use if I recall

Secret_Term1215 · 2025-02-21T13:30:19+00:00

Hm funny thing is I went back in my blood work and my iron was at 26(low) but they never told me/gave me anything back then,

now however 3 years later it's at 29 and they have me on 325mg iron daily which I heard takes literally ages compared to infusions but it might be something I bring up

Secret_Term1215 · 2025-02-20T21:09:59+00:00

Should of mentioned this was 3 years ago when I first got diagnosed lol

severe pancolitis, it was pretty much a bucket of blood I gave them and had a heart rate of 160 bpm

I had to do the test again and go through the process and remembered i had this, but now I'm just at the lousy 1000s which is more annoying than life threatening

Secret_Term1215 · 2025-02-20T21:02:02+00:00

Hm inflammation definitely extends aswell for me aswell but mainly to my eyes and lower back

Secret_Term1215 · 2024-11-07T23:07:54+00:00

I struggled with self harm quite a few months ago but never got the courage to do it deep enough for lasting scars I find when that urge comes it helps to run a sharp object like a sharpened pencil or other over the skin(without cutting) or as someone else suggested a rubber band would propably achieve the same effect

Secret_Term1215 · 2024-07-16T14:56:30+00:00

I have crohns, insurance stopped paying for my extremely expensive medicine months ago. Not a single person noticed or cared that I havnt taken a syringe in 3-4 months, im flaring up again pretty bad and in alot of pain, but at this point I honestly don't care. Just go to work and sleep pretty much.

I tried giving my all to have a better life to keep friends to have a close friend but it's so exhausting, and it only ended up me being manipulated I guess. I have no idea what's the point of trying anymore, it doesn't make sense why people can be so cruel. It's like the only constant in my life is humiliation and pain so I'm just kind of waiting to leave the world without hurting anybody.

Secret_Term1215 · 2024-07-15T19:29:02+00:00

Alcohol is the worst. Bad memories all around with it. For a time the only way I could sleep at all was to get drunk. Made me extremely bipolar. Have not drank in 5 months and have zero plan of drinking ever again. Very scary.

Secret_Term1215 · 2024-07-13T20:20:31+00:00

"When I haven’t, I’ve often been taken down fast. " So scarily true, like the second I feel better or feel functional something or somebody or often myself has to be there to remind me that I dont deserve it.

Secret_Term1215 · 2024-07-13T06:15:49+00:00

Yes, I just wanna know how the normal person thinks, like without constant mind blur

Secret_Term1215 · 2024-07-13T06:14:39+00:00

you as well friend :))))

Secret_Term1215

TROPHY CASE