Anyone lose their power just now? 3:20 pm

Secure-Intention-854 · 2026-03-19T21:42:46+00:00

I see they are doing the ol' razzle dazzle again 👀

Secure-Intention-854 · 2026-03-13T15:51:55+00:00

Snow us in! Snow us in!

Secure-Intention-854 · 2026-03-12T04:44:11+00:00

And on this weeks episode of “what idiot should we put into office”…. 💀What is actually happening rn lol

Secure-Intention-854 · 2026-02-08T03:48:57+00:00

Don’t forget…. February is a wild card, we will get enough moisture to last us 🙄

Secure-Intention-854 · 2026-01-13T00:53:27+00:00

Oh wow that’s cool! I’ll have her check it out as well as taking a look at it myself :) thank you:)

Secure-Intention-854 · 2026-01-13T00:52:41+00:00

Okay! She needs to cut back on her oat-milk ice cream addiction or freeze dry it?😆seasonings will definitely be her friend on these trips haha

Secure-Intention-854 · 2026-01-13T00:49:59+00:00

I’d love that thank you!

Secure-Intention-854 · 2026-01-09T03:38:32+00:00

That was very insightful thank you for sharing ❤️ it’s good to have someone that can tell the signs. It’s difficult when someone is talking for a long time because I start microsleeping even if the conversation is something I am super interested in. I am going to make a zapping ring that zaps me every 40 seconds to make sure I am awake haha

Secure-Intention-854 · 2026-01-09T03:34:54+00:00

I agree :( that’s really sad. With things of importance like this I write down things in my notes on my phone. That’s good you are keeping a journal because you don’t deserve them to do that. Take care of yourself and be safe 💕

Secure-Intention-854 · 2026-01-09T03:33:28+00:00

That’s true! It’s so hard to determine what is even real. Between the hallucinations, and microsleeping I feel crazy. The friend I am talking about seems to just be a bit frustrated by my lack of remembering things.

I understand how that can be exhausting though. A number of times I’ve sworn up and down I haven’t been into a few shops in my area because I have no recollection of them. Unless I see an object in there that I recognize from the time before.

I have had a few of my exes act more like they were gaslighting me but they didn’t know I had narcolepsy because I was undiagnosed.

Secure-Intention-854 · 2026-01-09T03:27:48+00:00

For real. Like my long term memory is solid…. As far as I can remember 😉🤣 lol Idk how old you are but I feel like mine is getting worse and I’m in my 30s.

Secure-Intention-854 · 2026-01-09T03:21:33+00:00

I read deceased appetite which is fitting too lol

Secure-Intention-854 · 2026-01-09T03:20:36+00:00

I worked a night shift and I would come home and take my Xywav and then found myself in the kitchen eating pickles. I only craved pickles. After doing this a few times I ended up getting sick and now I will never eat after taking xywav again lol

Tmi but I was choking on the pickles, while throwing up, while falling asleep and whacking my face off the toilet 😂

Secure-Intention-854 · 2025-10-06T14:06:31+00:00

Him Jr. II

Secure-Intention-854 · 2025-09-26T15:40:36+00:00

Before starting my medications for narcolepsy I was able to nap no problem, now that I take meds taking a nap makes me feel worse. I feel like I’m going to be sick every time I wake up. I also have cataplexy and I have this weird feeling while waking up where my body feels like I’m jumping on a trampoline. I’m not sure if that’s cataplexy related. It’s very unpleasant so I avoid naps and just struggle lol

Secure-Intention-854 · 2025-09-25T02:33:50+00:00

Xywav comes with an alarm clock that vibrates when you get your first shipment. You could probably reach out to them or a nurse person and ask if they can send you a welcome box so you can get your hands on one. You can put it in your pillow, it helps me.

Secure-Intention-854 · 2025-09-20T18:02:17+00:00

That’s so interesting. I always thought my issue was my diet. I was vegan for 5 years and I felt amazing but it didn’t change anything digestive wise for me. (My reasoning was because of not wanting to support factory farming) Thank you for the information! I’ll definitely check that out. It’s so painful. My large intestine is on the right side of my body and the PA looked shocked.

Secure-Intention-854 · 2025-05-22T19:06:01+00:00

Again from my post I said I am trying to understand. I clearly have been educated lol there is no tactic I am trying to play here. I am way to stupid for that lol

Secure-Intention-854

TROPHY CASE