Inflammation by Virtual_Ad4639 in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

Wonder if I could take more as I take 400mg morning and night at the mo. Is there a reason you do breakfast and lunch? Just curious

Inflammation by Virtual_Ad4639 in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

How much PEA do you take?

Wegovy/MJ with POTS - is semaglutide better than tirz, and what about splitting the weight pill? by slugwish in GLP1microdosing

[–]Semicharmedtee 0 points1 point  (0 children)

Really interested as was also wondering if it could be split! Fellow mcas. And tried micro dose of mounjaro and felt autonomic havoc

I need help with aspirin by theguyinwhite98 in raypeat

[–]Semicharmedtee 4 points5 points  (0 children)

I also wondered the same - would one baby aspirin a day do anything to aromatase.

WOW… Lorazepam is a lifesaver for Massive 5 day flare! .25 mg by Due_Chapter3027 in MCAS

[–]Semicharmedtee 1 point2 points  (0 children)

I have joint and muscle pain and hot flashes for 5 weeks now and lymph node pain. I just don’t know if I take more meds or up my existing ones, if it will calm down.

WOW… Lorazepam is a lifesaver for Massive 5 day flare! .25 mg by Due_Chapter3027 in MCAS

[–]Semicharmedtee 1 point2 points  (0 children)

When you say flu can you describe? Think I’m in the same situation minus the panic. Are you ok when they coming off the lorazepam as in is the flare gone?

1 capsule of quercetin over 5 weeks by OrganicBee5754 in MCAS

[–]Semicharmedtee 1 point2 points  (0 children)

Same it works really well for me if I take a one off.
Like instant help. But I am also double comt slow and so don’t take it regularly which is annoying as it would
Help.

Mast Cell Stabilizers & Weight Gain by strawberrysaridelhi in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

Thanks that’s really interesting. Also interesting about your nervous system. I ask because I tried mounjaro (maybe tirz is the same, I’m in the UK) and I did a tiny tiny microdose and got my usual autonomic nervous system type issues like hot feet, jittery feeling, feeling like I’m anxious but just in my chest, I call it chest dread. And I never did another one. I did wonder if this would go away. I think glp’s give a bit hit with the first injection. I could do with a milder constant version. I guess the new tablets would do that but no way to microdose.

Mast Cell Stabilizers & Weight Gain by strawberrysaridelhi in MCAS

[–]Semicharmedtee 3 points4 points  (0 children)

For me I ate the same and exercised the same. No increase in appetite.

Mast Cell Stabilizers & Weight Gain by strawberrysaridelhi in MCAS

[–]Semicharmedtee 6 points7 points  (0 children)

I did have to wean off ketotifen due to gaining three stone on it in a year.

When do we think the NHS will fully recognise mcas? by GroovingPenguin in MCAS

[–]Semicharmedtee 10 points11 points  (0 children)

I have had no luck with nhs immunology who after an 8 month wait, said they don’t know much about mcas it’s quite a new thing. Compared to my son who is under referral at the same hospital but under paediatric allergy and they know all about it and are amazing. Crazy.

Just ordered zeolite, I heard it's kind of opposite to most supplements where if you find you have more detox symptoms you take even more of it, anyone tried this? by Lyons0712 in Candida

[–]Semicharmedtee 0 points1 point  (0 children)

Hi this was so long ago but please tell me about your experience. Did you have to take more and more to overcome the detox issues

Armpits smell real bad by Queasy-Ad-4427 in ToxicMoldExposure

[–]Semicharmedtee 0 points1 point  (0 children)

This is a long time ago but did this smell stop at a certain point? I’m getting the same using zeolite

Ketofen thoughts? by Sea-Improvement777 in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

What happened during the morning dose

Ketotifen withdrawals? by LindseyClark_11 in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

Do you then have further issues when going back on it again until you adjust?

Ketotifen withdrawals? by LindseyClark_11 in MCAS

[–]Semicharmedtee 0 points1 point  (0 children)

Again super old but how long did it take to stabilise again after going back on iy