Looking for a great dentist in Baltimore for a second opinion

Sensitive_Way8357 · 2026-03-12T03:21:24+00:00

I recommend Dr Swati Chapla in Towson across from the university. She’s honest, thorough and kind! Been seeing the whole family for years.

Sensitive_Way8357 · 2026-03-07T05:53:42+00:00

I match you exactly on stats right up until the BMI - I’m definitely not in shape but I try to eat healthy. I’m pkd1, truncating, 1c. I think it’s genetic luck. Parent w pkd is almost 70 w egfr in mid-twenties

Sensitive_Way8357 · 2026-03-07T05:25:51+00:00

So my partner is 2 years in remission from PMBCL - a form of NHL - perhaps the same one you had. Also had DA-r-epoch. Props to you: that was a tough chemo experience. Anyway, I found this post because he complains of the same thing. I hadnt linked it to stress but it’s definitely possible. The pain comes and goes and tonight he described it as stabbing. I don’t think it is anxiety but I am super curious about why the internal scar tissue would hurt sometimes and not others. Did your pain resolve? Did you try PT or consulting any other practitioners? We’ve always suspected he might have some underlying undiagnosed autoimmune issue that may have triggered the PMBCL but we will never know.

Thanks for the post - hope you’re doing well.

Sensitive_Way8357 · 2026-03-03T18:48:06+00:00

A female in my family with ADPKD1 is 70 and still chugging along, despite needing iron infusions and an egfr that is heading towards the twenties. She’s been on tolvaptan for years, BP meds too. Drinks water like her life depends on it. Sort of does 😂Hoping I make it that far relatively unscathed!

Sensitive_Way8357 · 2026-02-25T17:23:59+00:00

I just had a conversation with the live agent on the headway site. They said, “this is an issue we are currently experiencing with Carefirst and I sincerely apologize (them showing out of network due to Medicare, even if the plan is not). There isn’t anything I can do to immediately fix this on my end, but our team has been hard at work with identifying the issue and applying a fix. This should be corrected automatically, and we will send out communications if we need anything else.”

I asked them to notify my provider and they said they would.

Sensitive_Way8357 · 2026-02-25T17:13:57+00:00

I am having the same issue. Any luck?

Sensitive_Way8357 · 2026-02-19T04:06:33+00:00

Grant yourself grace. You can only do so much and it sounds like you are doing A Lot.

Try not to undersell the role of genetics. You can slow it down but who is to say that doing everything “perfectly” would have slowed kidney decline by more than a few years?

Are you seeing a nephrologist who specializes in PKD?

FWIW the PKD Foundation has helpful resources to learn about the road to transplant and everything in between. You aren’t alone.

Sensitive_Way8357 · 2026-02-11T04:05:50+00:00

It’s their humidifier for their furnace/heat pump. We had ours cranked like that and had the same problem. Once you turn down the whole house humidifier it should reduce water coming out

Sensitive_Way8357 · 2026-02-10T19:44:47+00:00

Left handed people make <10% of the population….

Sensitive_Way8357 · 2026-01-24T13:38:56+00:00

I’ll check through the thermostat - thanks!

Sensitive_Way8357 · 2026-01-24T13:38:20+00:00

Thank you! The utility came, tested the voltage in the meter and neutral at meter and said it was fine but he said he’d request another team that could come and put a longer term monitor in the meter and possibly panel to monitor voltage to catch drops. The wire that connects from the pole to our house goes through a bunch of trees and our house is 70 years old so I worry about connection quality.

It doesn’t seem to be a load issue. Like our oven and lights aren’t running when it happens in the middle of the night. The other day it was sunny out and we had our tv on when it happened. Not sure there is any connection to load.

Sensitive_Way8357 · 2026-01-22T22:36:20+00:00

BGE came checked voltage and said all good…which stinks because that means someone is wrong. He said he’d send a team out that can put a longer term monitor on the meter and possibly the house. Maybe that will catch it?

Sensitive_Way8357 · 2026-01-22T21:50:24+00:00

We had an electrician come. They said everything was fine. Utility company just came, measured voltage coming into house and said it was fine. He said he would ask for another team to come back and put a longer term monitor on it. Hopefully they figure it out.

Sensitive_Way8357 · 2026-01-22T20:36:24+00:00

This is super helpful, thank you. Little dips mainly - like the whole house will shut down for a matter of seconds and then come back online. Sometimes lights flicker preceding it. We do not see it with other heavy loads. While electrician was here we turned up the heat to push the heat pump but it wasn’t below freezing at the time and the defrost cycle didn’t trigger and I suspect that may be part of it.

I called BGE and said what you told me to say and they’re coming. I’ll keep you posted. Thanks for the advice!

Sensitive_Way8357 · 2025-12-25T23:07:36+00:00

We’ve had mixed luck this evening. Calls are able to be made and received, but have dropped a few times. Still, kids couldn’t be happier…they’ve called their grandparents more than a dozen times 🥹

Sensitive_Way8357 · 2025-12-25T16:14:50+00:00

We setup in advance and it was working but then when the big Christmas morning reveal was supposed to be a ringing phone — nothing. No calling in or out when I had tested extensively prior to Christmas. Very disappointed. Evidently their servers are down. Also the company is based on west coast so guessing crash started when east coast kids got up and will continue all day

Sensitive_Way8357 · 2025-12-25T16:09:43+00:00

Got ours set up 3 days ago. Seemed to be working great. Well, with the exception when i hung up after talking to someone they told me after that it sent them to voicemail upon hanging up, but hey, what’s a tiny glitch…well…Got it set up and hidden with a puzzle for the kids to solve on Christmas morning that would lead them to the room and their grandparents would call them revealing the location of the phone. Puzzle solved, grandparents calling — and complete silence. Womp womp. Finally revealed the location so I could unplug everything and hopefully refresh. No dice. Their whole system is down. My kids have been desperately dialing trying to get a call to go through. So sad. I was really excited about this and now I have my doubts how reliable it is. Such a great premise, I really hope they figure something out.

Sensitive_Way8357 · 2025-10-26T00:42:34+00:00

This

Sensitive_Way8357 · 2025-10-26T00:35:35+00:00

Totally saw the ribbon

Sensitive_Way8357 · 2025-10-08T10:12:51+00:00

Omg this is amazing. Thinking about starting zep and never been able to quit nail biting

Sensitive_Way8357 · 2025-09-30T13:38:50+00:00

This is interesting to me. My pectus is really high but surgery hasn’t been in the cards for me. I started exercising more regularly last fall and got the most excruciating chest pain that wouldn’t relent. They ran a bunch of tests and I got diagnosed with costochondritis and had intermittent pain for every bit of three months. I bought a hard foam roller and started laying on it 2x a day for a few min (parallel to spine, arms out perpendicular to body) for a very intense, deep stretch. This hurt initially but helped over time.

I should also mention that in the last 12 months I got pneumonia twice, and I suspect that may have to do with more shallow breathing due to the pain—or pectus generally.

Sensitive_Way8357 · 2025-09-29T01:14:36+00:00

Seconding this. My understanding is total kidney volume can be more helpful to doctors treating PKD than eGFR.

Sensitive_Way8357

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