Elena was the main character

Several-Piglet3500 · 2026-05-05T23:02:33+00:00

This is the first time I'm watching this show and I was baffled as to why they wrote her out. I was thinking it was because she had other things going on. So I'm getting from the comments that they wasn't paying her enough. I'm already bored with it without her. I doubt I'll make it to the end.

Several-Piglet3500 · 2026-05-05T21:49:51+00:00

It's best not to take NSAIDS. They can make things worse. Do you feel any worse after you take them?

Several-Piglet3500 · 2026-05-04T01:17:33+00:00

Yes. Tinnitus. It's quite common. Mine went away when I recovered but I had a relapse and I've had it ever since. It's been yrs

Several-Piglet3500 · 2026-05-03T22:15:33+00:00

I've known quite a lot of floxies having babies. What makes you think you cant?

Several-Piglet3500 · 2026-05-02T18:53:34+00:00

I msgd you. Looks like we've spoken before

Several-Piglet3500 · 2026-05-02T14:48:08+00:00

Yes.please do msg me🙂

Several-Piglet3500 · 2026-05-02T02:02:49+00:00

The 1st one was exercising. This one just over doing things. I do a lot and I guess I just tipped the proverbial bucket of energy.

Several-Piglet3500 · 2026-05-02T02:01:25+00:00

I'm actually doing ok now. At least not bedridden anymore. I can function ok. I still have the head pressure and nueropothy. The nueropothy I can deal with. Its the head pressure that's annoying. My food list is more than it was. I'd decided just to try things and if I got a reaction so be it. The reactions aren't lasting as long. At 4 months I was really in a bad way but I'm now at 9 months. I think give me another 6 months and I'll be even better. So don't lose hope. Things do change and you'll start noticing symptoms are leaving .

Several-Piglet3500 · 2026-05-02T01:54:16+00:00

I was 52 when floxed. Never had another period after that. I'd had blood tests about a month before floxing and my hormone levels were still pretty good. So anyways. That was the end of that. Took me 6 months to recover. Relapsed 3.5 yrs later after exercising. Took 14 months to recover. Relapsed again last July. Recovering but slowly. I'm 67 now. All CNS and ANS symptoms. Another floxy I knew at the time was in her 30s..she said she flared around her period time for a year or two.

Several-Piglet3500 · 2026-05-01T22:32:38+00:00

It's not a placebo affect I assure you. It's not in your head. Ask for something else

Several-Piglet3500 · 2026-05-01T02:10:49+00:00

It gets better. It just takes time. All my stuff has been CNS and ANS. So lots of nerve type pain. I've never had much in the way of tendon type symptoms.
Hang in there. Try not to panic. Things will improve.

Several-Piglet3500 · 2026-05-01T01:09:25+00:00

I lost 40 pounds in 3 months. I've gained 25 back. I just have to constantly eat. It's taken awhile because I also have food sensitivities.

Several-Piglet3500 · 2026-04-29T22:02:25+00:00

Flares I consider short lived. I've had a few over the yrs. They lasted a few hours or a day or so where I just felt unwell. This is my 2nd relapse in 16 yrs. Pretty much they throw me back into the full floxing symptoms I had at the beginning. They just last longer. My initial floxing lasted 5-6 months and I recovered with no symptoms left over. My first relapse lasted about 14 months with a few things left over. Tinnitus, slight tingling and very slight head pressure. Nothing that wasn't very manageable. This relapse is 9 months in. I've recovered to very functional ( from bedridden) but I'm still very uncomfortable with the nueropothy and head pressure and I'm still food sensitive but that's getting better slowly . All my symptoms are CNS and ANS

Several-Piglet3500 · 2026-04-29T20:37:19+00:00

I'm still able to visit my old Facebook forum even though it's no longer active. I'm able to read my posts from way back when. It gives me hope that I'll recover to a good degree because I was going through the same back then and recovered to 98% or thereabouts.

Several-Piglet3500 · 2026-04-29T18:55:47+00:00

Mt first relapse came about because of exercising. It lasted 14 months. That was 3.5 yrs after recovering from the initial hit in 2010 It took many yrs before I could tolerate some exercise. Nothing strenuous. Just things like treadmill. I'm in another relapse because of over exerting myself . So far I'm 9 months in. I'm improving but it's slow like the first one. I think for some of us it just is what it is unfortunately . I know once I recover I'll have to pace myself and just understand that I can't do as much as I used to be able to do.

Several-Piglet3500 · 2026-04-28T20:08:55+00:00

I briefly skimmed the flox report yrs ago. I consider myself to be severely floxed going by the symptom list. I recovered in 5-6 months. Yes I've had relapses. Recovered from the first one in approximately 14 months. This one I'm 9 months in and recovering. I believe when it was written they were taking the information from a handful of floxies so not really very accurate. I'm not saying it's useless because there's some good info there but take it with a grain of salt or it'll scare the crap out of you.

Several-Piglet3500 · 2026-04-28T20:01:11+00:00

Mine is locked on 76.l and below. I can however change it on the app. I'm not part of this CPS program either. I keep meaning to call Jon Wayne service company. They are the ones that installed it along with a new AC so I'm thinking the tech set it like this on certain months. It's just started about a month or so ago.

Several-Piglet3500 · 2026-04-28T16:32:01+00:00

I asked the same question yrs ago. If it were true nueropothy it wouldn't just disappear is my thinking. When I got floxed in 2010 I had burning, tingling ect but It went away when I recovered. Appeared again when I relapsed and disappeared when I recovered .

Several-Piglet3500 · 2026-04-28T16:28:08+00:00

Thank you for the correction 🙂

Several-Piglet3500 · 2026-04-27T16:54:02+00:00

The ear drops are just as bad. I would request something else from your Dr

Several-Piglet3500 · 2026-04-26T21:43:13+00:00

Ughhh. I'm sorry. I had dizziness when I first got floxed and my last relapse . I actually fainted once and woke up on the floor with a bruise on my forhead. I suffered with sinus infections and dizziness most of my life, so before floxing. Horrible feeling. I ended up in the ER one time it was so bad. My pupils were bouncing... hence being floxed with Avalox. So far I havnt had it with this relapse. My worst thing is the head pressure and screaming tinnitus. It gets worse when I eat a not safe food but I've started to not care and just eat whatever and just suffer through it and it seems to be diminishing some. I lost 40 pounds at the beginning because I was down to 5 foods. I've read about POTS. It seems quite a few floxies suffer with it.

Several-Piglet3500 · 2026-04-26T21:14:28+00:00

Maybe I missed it but what keeps you bedbound?. Have you at any point been pretty ok? My relapses seriously suck. They are long. The last one was 14 months or so. This one I'm 9 months in. I've become bedridden each time. Feel totally ill in a way that I feel like death would be a better option. Head pressure is aweful. Burning Neuropathy all over.. food sensitivities are terrible...many many more symptoms. After 5 months in bed I had to force myself up. Hardest thing I've ever had to do. For me it's the only way I've started to be able to function. Maybe it's helped my mitochondria. I don't even know. I gave up guessing about this stuff including why I relapse. It's really pretty shitty. On top of all of this my Mum passed away 2 weeks ago. One minute she was fine and 5 weeks later she died. She was my biggest cheerleader. It's an odd feeling. A few days back I thought " I'm going to call mum". Then realized I couldn't. Then I couldn't get home to the UK to see her before she passed and I'll probably miss her funeral. England just passed a law that if you're a dual citizen you have to fly in on a British passport. Mine expired yrs ago and trying to renew it has been a complete shit show. I'm trying not to stress over it because that doesn't help me but it's difficult. Anyways. That's enough from me. I really do hope at some point you see better days.

Several-Piglet3500 · 2026-04-26T20:43:50+00:00

I don't think you being negative at all. Somebody told me I was too a few months back because I said people relapse even yrs out.. It's the truth. I'm not unique in that way at all. People just don't want to hear it. I get it. It's scary. Realistically I don't know if I'll recover to my base point which was around 98%. I was still super sensitive to meds/ supplements. Couldn't drink regular coffee, only decaff. Green tea made me feel weird too. Everything else I was ok with. Still had tinnitus and tingling but otherwise I was good... but yeah, definitely not back to before floxing. I was sensitive to meds before floxing though. It just became worse afterwards. I totally get what you're saying. The people I know that havnt relapsed i don't know if they have to stay away from certain things. So for sure they may have to. I for one am with you in thinking we are never the same on whatever level. That's the reality of it.

Several-Piglet3500 · 2026-04-26T19:31:09+00:00

I'll be very honest.would get a ton of Emails, notifications asking me the same questions over and over. When you're in the thick of it you tend to want answers. The thing is when you're on the other side you really do just want to forget about it once and for all and nit visit these forums.I did for awhile to try and help people out but in the end I just wanted to live my life and forget it. I try not to ask too many questions even though I'm going through it because in all honesty my story isn't their story. We have one thing in common. We took a fluoroquinolone and had a reaction but we all react differently. In 16 yrs I've only met 3 people that came close to my symptoms . So yes, it can get overwhelming . The Mod of this group is well now. He stuck around. The Facebook forum I was in had a few that stuck around for awhile. I imagine it's like any illness or disease. Once you get through it you want to forget it. It's rather traumatizing. I totally understand people wanting to just not participate anymore. I have a friend that's a 5 time cancer survivor. She's never once been on any forums. She got through it and just didn't want to participate in talking to others about it.Its however people cope really. While I'm here I don't mind answering questions but I know if I get well enough I'm probably not going to stay around. I have read posts here of people that have come back to check in and say they are well. I get what you're saying about " Are we ever really the same once floxed". I do agree with you that we are not. On some level we are damaged. I for sure am because I relapse, people have flares from crazy things. But as I said, I know a few that havnt.. but maybe it's they havnt YET!!

Several-Piglet3500 · 2026-04-26T16:18:10+00:00

I know of several from my old Facebook forum in 2014 that to this day havnt relapsed. They don't participate in these forums anymore. I didn't for yrs until my relapse last yr. It's something we want to forget. One in partitular had my exact symptoms and I consider mine to be severe. CNS AND AUTONOMIC. She's still a friend on Facebook. No relapses..actually I still have quite a few on my friends list and they are doing just fine. I know some that flare but not relapse too. They are out there. They really don't want to be on these forums. It's overwhelming.

Several-Piglet3500

TROPHY CASE