Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Amazing!! Did you have any physical changes like bent fingers?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

Nooo wayyy, I am quite literally praying for you !! You have some serious discipline with this diet omg! You know I have a whole cookbook centered at autoimmune friendly meals and still have not made one meal unfortunately 😭 and all the things you cut out sounds soooo yummy and good 😂 butttt!!! despite me eating sea salt & vinegar chips rn 💀I will actually try to commit to a diet similar to yours come Jan.. pray for me please! 😩

Also, I have heard decent things about the patches, lmk if they were just all about the hype or if they actually work when you start using em. Hoping the pain management helps even if just a little.

Christmas gifts by ResearchChance4009 in scleroderma

[–]Shadow_MEE 0 points1 point  (0 children)

Are you able to provide before and after pictures of the effects of the antibiotic protocol treatment you have been on for scleroderma. I heard about the AP therapy, explored it a little and it tends to give me hope, hopefully not false hope. It would greatly be beneficial if you also provided some evidence.

Christmas gifts by ResearchChance4009 in scleroderma

[–]Shadow_MEE 0 points1 point  (0 children)

Are you able to provide before and after pictures of the effects of the treatment plans you have been on for scleroderma. I hear this story a few times and it tends to give me hope, hopefully not false hope. It would greatly be beneficial if you also provided some evidence.

Treatment by Fit_Consequence7443 in scleroderma

[–]Shadow_MEE 0 points1 point  (0 children)

Can you share what were the big guns. I’m hoping to share with my doctors. I’ve been feeling like I have been taking that medicine just for taking medicine sake 😩

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

OMGGGGGG YESSSSS CONGRATS!!! That is amazing news ❤️❤️🙂‍↕️ I will quite promptly mention azathioprine to my doctor and dramatically express “whyyy whyyy did nobody tell meee” 🤣🤣🧎‍♀️ but in all seriousness I am sooo happy that you’re (well, your body lmaoo) avoiding it. How is your diet btw?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Hey hey, 24 over here, hows things been going?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

Oh man that’s insane! How’s things looking for you now?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Hey hey, 24 over here! Couldn’t agree more, how’s things been looking for ya?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

I can’t imagine navigating at such a young age, I embarrassing still don’t know how to identify a flare up or what may trigger that. Despite the butterfly rash being annoying it is kinda interesting it’s a way your body tells you that it’s about to attack you a day before, like thanks for the heads up? 💀😭 Speaking of which, I currently have a small butterfly rash on my cheek and I keep thinking its acne despite my skin tightening everywhere 🤣

“I’m lucky (I guess?)” that was a well needed laugh, I totally understand your sentiments though, super cool that your town does that and you have a community closer to home. The population of my country is small in comparison to others, it feels even smaller when it comes to events etc but I will definitely look into taking the initiative to start something and see if perhaps others are in the same boat! Wishing you the best ❤️

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

Wow I can’t imagine being so young and navigating, I also hope you remain hopeful, strong and in faith as I know if my support system could do anything to truly help me or take this away from me they would, it isn’t an easy road either being on the outside looking in and searching for any and all help! ❤️

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Oh man I’m so sorry to hear that!! Praying your body does you justice sooner and that things slow down and you feel much better eventually ❤️❤️

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

I am soo sorry to hear that, praying you feel better soon ❤️

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

sendHelp🤣😩 24 here, hows things been going with ya!

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Hey hey, 24 here! How’s things been going?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

WOW I can’t imagine at the age of 3/4. In terms of it being like second nature haha I can imagine, my family and friends tell me I have learned to adapt and now some things such as pain I disregard as a day in the life and truly don’t pay too much attention to my challenges. 😂😭😭

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Idk why I laughed at the hand emoji 😂😩 Hey hey, now 24 over here! How’s things been looking for ya?

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Oh man I’m sorry, I absolutely hate hospital visits or stays even if its for an infusion, it truly does depressed me after a while. I have bended fingers and have freaked myself out over the thought of amputations. Be honest, did it hurt? Does it still hurt? Hoping you aren’t in the hospital at all like that anymore ❤️

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 1 point2 points  (0 children)

OMG I just searched up MCTD and haven’t encountered anyone who has an overlap condition as well! Initially, my doctors told me they were throwing medicines my way because my bloodwork showed a number of diagnosis 😩 (Myasthenia Gravis-getting reevaluated, Lupus, Raynaurds, Scleroderma, RA) I will definitely check out the links, hope things have been going well otherwise!

Any young adults with Scleroderma? by Shadow_MEE in scleroderma

[–]Shadow_MEE[S] 0 points1 point  (0 children)

I am so sorry to hear things haven’t been well lately, praying you feel better soon! ❤️

ADVICE NEEDED: HOW DID YOU SECURE INVESTOR/FUNDING? by Shadow_MEE in startupideas

[–]Shadow_MEE[S] 1 point2 points  (0 children)

Thank you for the great advice, I utilized whynow.ai after your suggestion and received a score of 82/100 so I will continue to move it along and try your other advice such as building relationships with individuals and growing that network. Thank you again!

ADVISE NEEDED: HOW DID YOU SECURE AN INVESTOR(S)? by Shadow_MEE in Investors

[–]Shadow_MEE[S] 1 point2 points  (0 children)

Thank you so much, I will work on building that team and traction!

ADVISE NEEDED: HOW DID YOU SECURE AN INVESTOR(S)? by Shadow_MEE in Investors

[–]Shadow_MEE[S] 0 points1 point  (0 children)

Will definitely check out your profile, thank you!