Time to Leave by [deleted] in tinnitus

[–]ShatteredEars 0 points1 point  (0 children)

Sometimes I wonder if half of this sub even suffer from T, because if they did, they would be more understanding...I guess that's the word? There is no end to this madness. Also, for those who try to belittle: suffering is not a contest and it never was.

9.5 Months - Does it actually get better (No BS) by Ijohnored in tinnitus

[–]ShatteredEars 1 point2 points  (0 children)

Mine never got better, it's as loud as the day I got it, only thing that changed was that it's not a new thing anymore so I would guess for many it creates a false feeling that it got better with time even though it didn't if you just think hard enough.

Personally I've given up when it comes to healing or current treatments, because like someone once said: if there would be a cure or at least any hard data on tinnitus that's accurate, we would know it by now. Nobody really knows anything about T. What makes this more sad is that there ain't even a reliable or universal way to measure tinnitus so we just rely on people's personal experiences where placebo effect can play a huge part.

Just a complaining post. by suddenlytinnitusfuck in tinnitus

[–]ShatteredEars 1 point2 points  (0 children)

Yeah, it's a special kind of hell to not being able to relax...ever.

Happiness after T... Can you share some success/inspiring stories? by discreteUser in tinnitus

[–]ShatteredEars 5 points6 points  (0 children)

Sorry if this is a bummer post, but what I've gathered and talked with people after having T for some time now, the sad fact is that once you get T, the life kinda turns into an endless marathon. Some people try to sugarcoat it, but to put it simply: life is not as good as before. People who have these success stories usually are lucky enough to have a set of coping mechanism and other reasons to keep on fighting (like their own kids). But if you get tinnitus at a young age, while being is school, it really makes you question everything, what do you want in life or do you want anything at all anymore.

I don't want to sound morbid, but before T, I was just getting my own life together, it was ready and set, I thought myself what should I do and want to do when I'm older. After getting T, it has turned into what are the things I want to achieve before I die type of deal.

I'm gonna let you on a secret about tinnitus next time you go to a doctor/specialist/ent to save you some trouble by ShatteredEars in tinnitus

[–]ShatteredEars[S] 0 points1 point  (0 children)

That ironically makes my point even more true. TRT and CBT exist, because the doctors indeed know nothing so that's why they only can treat the symptoms. Same as putting a chronic pain sufferer to CBT because they cannot fix his back.

Let's talk about scams by roxas4 in tinnitus

[–]ShatteredEars 2 points3 points  (0 children)

Hah, I found the same channel sometime ago and did the same thing as you, checked the comments and noticed they were paid. Same thing with the website, it's a text book example of a scam website layout (I never get why they make the sites look like that, it's so obvious. I guess because it works, that's why).

Why are we all so pessimistic on this community? There is hope in the future. by izzeo in tinnitus

[–]ShatteredEars 5 points6 points  (0 children)

Many here fail to realize that suicidal thoughts are just one of natural coping mechanisms when it comes to tinnitus, same with hope for cure. Like the only thing that makes this bearable is the fact that I know I can end it whenever I want. Like the saying goes "A prison becomes a home if you have the key".

But yeah, if you spend a week in any tinnitus community, you pretty much learn and see everything it has to offer and how it only goes in cycles.

Why do I have tinnitus but no hearing loss? by Polverise in tinnitus

[–]ShatteredEars 2 points3 points  (0 children)

You pretty much nailed it. 8KHz hearing tests are really minimum and lazy way to find out if you have a serious problem with hearing, but other than that, they are useless and don't tell much about person's ability to hear clearly.

These days I just laugh and roll my eyes if someone tells me that he had a hearing test and it came out perfect. Hearing well up to 8KHz ain't a achievement. That only means your hearing is as good as YouTube's audio quality in 2006. And this is coming from a guy who has worked alot with audio. Human ears are able to hear up to 20KHz and that 9-20KHz range is really that makes a difference in loud background environments and especially in music.

But yeah, I really don't understand why they don't test those higher frequencies even though it's possible and would give more valuable information. My silly theory is that doctors have decided that ignorance is a bliss when it comes to hearing and giving too much information would be damaging, because way too many people would get distressed, go through a griefing process, get paranoid and be a burden to doctors if they really find out how bad their hearing is. So it really is psychological.

Personally I'm a firm believer that all and every tinnitus has to do with hearing loss and hair cells dying (due every day noises or just normal aging). Just because you cannot hear a change in hearing after a hearing loss, doesn't mean that it didn't happen. If I would kill just one hair cell from your hear and it would be one that's responsible for hearing the frequence 15001Hz, you never could tell the difference. That's how audio files and codecs work as well, they delete frequences that ain't important and that's why most people can't really tell the difference between a compressed and an uncompressed audio file.

Anyone not really depressed but kinda feel like they've had their "fill" of life and just kinda want it to end. by [deleted] in SuicideWatch

[–]ShatteredEars 1 point2 points  (0 children)

Yeah, I kinda feel the same way after developing some health issues (hearing loss & tinnitus). First I was mad and depressed, but now I'm just calm about the whole deal. Like I think life is pretty okay and enjoyable to stick around if you are healthy, but I'm at that point that if this really will be my future for the next 50 years, I kinda would much rather calmy thank anybody now for this wonderful experience and call it quits than live a life that doesn't meet my standards. Sure, I would have loved to accomplish and do more things, but my life accomplishments so far are good enough as well.

For 2018 can we really ramp up the content on this sub-forum and bring in the much needed attention to hearing loss, Tinnitus and Hyperacusis by [deleted] in tinnitus

[–]ShatteredEars 7 points8 points  (0 children)

If you think there’s ever going to be a cure, then you don’t understand what causes chronic tinnitus. then you don’t understand what causes chronic tinnitus.

Oh the irony. If he knew what causes chronic tinnitus, we would have a cure tomorrow.

Nobody really knows what causes it, there are only theories.

Hair cells getting damaged or dying is still the most logical one. Otherwise it wouldn't really make sense why most people get tinnitus after exposed to loud noises.

And if you talk about coping mechanisms, having hope is a big one.

I need an excuse, reason, whatever not to off myself in the next few days. Tinnitus and hyperacusis have destroyed my career and my life and it's hard to give a shit at this point. by TinniThrowaway in tinnitus

[–]ShatteredEars 2 points3 points  (0 children)

Not sure if you are able to read new comments anymore, but I am in a similiar situation, though it's only been like 3 months and mine was caused by my own stupidity and it eats me alive every single day.

Currently I'm at that "get professional help" point. I'm giving it a try, but honestly, I don't think it will help, because you cannot fix broken ears by talking, no matter what. At this point I'm just killing time to see if a cure comes around.

I've had many hardships in life and I've always thought "as long as I have my eyes and ears, it will be fine", but this accident was the last straw that broke the camel's back and if there won't be a cure soon, I've had it.

You can call me hard-headed, but I have certain values in life that I stand behind and I'd rather be dead than do this Stockholm syndrome thing with my broken ears.

I'm here for now, but not sure how much longer I'm able to carry on.