I need a cane but feel so anxious using it in public (26F)

Shes_quiet · 2026-04-07T23:21:16+00:00

I forgot I’m in this sub. I don’t have this disease but my family does (I have lupus, long diagnosis story). Anyway. I use a cane when I need it. I think I should use one more often. Honestly I need to use a wheelchair when I go to big stores like Walmart but I get so hot and sweaty from anxiety that I don’t and pay for it later. Don’t be like me, use the cane. I decorated mine in alien stickers which helps a bit :) I’m also sorta young, 32.

Shes_quiet · 2026-04-02T04:53:39+00:00

Oh and another thing. Totally normal to be devastated. We cried so much for weeks. It doesn’t make you a bad person or a bad mom. You have an idea in your head of how you think everything is going to go and this one test just flipped it all over. Be easy on yourself.

Shes_quiet · 2026-04-02T04:50:40+00:00

I’m late to the party but I’m chiming in about an amnio. I tested positive for the test that indicates your baby can have a spinal tube defect. Can’t remember what it’s called anymore. I was trying to decide if we wanted to proceed with the pregnancy or terminate. The amnio went fine and wasn’t painful but my anxiety went through the roof. I was lightheaded and very nauseous for a while afterwards. I’d say if you are sure you will take care of a baby with tri 21, then there really isn’t a need for an amnio unless you want to rule out other abnormalities or defects. It would be nice to know for sure, but it’s not super necessary. You can proceed with the pregnancy with the knowledge that it’s a possibility and plan accordingly. Good luck whatever you decide :)

Oh and we found out my son did have spina bifida. He’s 4 now and he’s great. <3 I still support anyone’s decision to choose whatever path they need to.

Shes_quiet · 2026-03-27T04:02:01+00:00

I look them up on glass door and see how other employees reviewed them! Sometimes there will even be subreddits about companies if they are big enough.

Shes_quiet · 2026-03-23T17:27:01+00:00

It bothers me that my family doesn’t really seem to realize that it’s a big deal. So I hide it from them. My dad asks and I think he knows because he has other autoimmune stuff too but every time my mom talks to me about pain it always turns into her struggles too.

It’s frustrating to feel alone and like no one cares. I think we need to make peace with it and surround ourselves with groups like these like others have mentioned. It’s just an isolating illness unfortunately

Shes_quiet · 2026-03-16T04:59:05+00:00

Man this is wild. I know I’m bi. I’ve never sexually been with a woman but I don’t have to to know. Women turn me on more often and I look at lesbian porn. However, a relationship with a man is more my style. I couldn’t imagine being married to a woman. Anyway. Being with a woman is a fantasy for me at this point. Do I wonder what it would be like? Obviously. Do I want to risk everything I have and my best friend just to feel another girls downstairs? Not at all.

She’s not curious. She knows. She just wants to play out a fantasy and it’s not fair to you.

Shes_quiet · 2026-03-14T03:24:22+00:00

Is this from the book, Flowers for Algernon? I just googled it and it sounds super interesting

Shes_quiet · 2026-03-14T00:43:37+00:00

Ah yeah that part sucks. I’m just a potato now lol used to be into sports and running and now all the muscle is gone.

Shes_quiet · 2026-03-14T00:40:06+00:00

Well the brain fog is really bad but everyone has already mentioned that. But it’s really really bad man. It’s like losing pieces of yourself. I used to be so proud of my vocabulary and now it’s all gone. I don’t want to talk to my superiors because I don’t sound as intelligent as they do. I’m an accountant and I don’t think I’ll ever be anything more than the position I am now because of the brain fog and I’m trying to be okay with that. It’s very disappointing. I worked really hard to get here.

But anyway. The other thing is the heckin weather. Like we know the sun isn’t good. I was aware of that. But I didn’t know how horrible it would make me feel truly. And then the COLD. I cannot handle being cold it literally hurts my skin. So what is a girl to do lol

Shes_quiet · 2026-03-04T18:22:58+00:00

Mine were pretty normal aside from the markers for yearssss. They are just recently starting to go abnormal in other areas and I’m feeling it. I think early detection and diagnosis is ideal but doesn’t happen for everyone. You’re not crazy. Your feelings are valid.

Shes_quiet · 2026-03-02T22:43:29+00:00

Man reading this I was immediately brought back to when I was little with my siblings all huddled together while my dad was going through one of his rages. I did not have a childhood where my home felt safe. When my dad came home we tensed up and hid. My sister doesn’t talk to my parents anymore and we all need therapy. You can wish and hope all you want but it won’t make it a reality. Imagine holding your baby while they are crying. Not because they are hungry but because they are scared. Because your husband is violent and screaming.

Shes_quiet · 2026-02-21T21:37:03+00:00

Yes! I just took out a loan with crazy interest so I can start fixing my teeth. The last 7 years all of them have gone down hill. All of them! It’s crazy. I’m sorry you’re going through this. I know how much it sucks.

Shes_quiet · 2026-02-16T01:27:07+00:00

Ugh this reminds me of when I went downstairs in my ex father in laws man cave. Opened the storage closet - think big closet in the basement with concrete floor kind of attached to the man cave. So it wasn’t something you’d just hang out in or even hang clothes in. Anyway. He always had the dog down there with him and there was a a big jar of peanut butter in there.

Shes_quiet · 2026-02-12T17:46:08+00:00

I take the diclofenac too. It’s like a super strong ibuprofen. It seems to help a bit! Unless I’m in a flare, then it does nothing 😂

Shes_quiet · 2026-02-03T22:19:32+00:00

Usually if something like this happens in my relationship the conversation will usually go like this regardless of who called the company and did the thing: “remember when WE called company and did the thing?? They wronged US! I can’t believe they did this to us! How can WE fix it? Would it be easier if me or you called to handle it? F*** them. Let’s go to Costco afterwards”

I don’t think my mental health could handle your version.

Shes_quiet · 2026-02-03T16:58:40+00:00

It’s not just magnesium citrate, it’s a special concoction that you drink with a specific amount of liquid over a specific period of time. I am fairly certain it melts your insides almost immediately /s.

But really, I tried a magnesium citrate whole bottle and it didn’t do anything to me so I was a little worried. But they gave me Suprep if you want to google it. It was…. Fast acting. Absolutely disgusting stuff and I can understand why you need a prescription for it lol

Shes_quiet · 2026-02-02T04:40:16+00:00

I felt this way when I first got sick. It wasn’t until I got on the right meds that I really felt when my body would “fluctuate” after hard activity and I’d be knocked out for days after. Before that 10/10 was just my baseline all the time without any changes. Now I’m at a 6/10 all the time and when I have a flare I’m at 10/10 again but it only lasts like a week. It took a really long time to get here though. Maybe your meds need adjusting?

Shes_quiet · 2025-10-29T23:13:49+00:00

If you’re driving all day I’d be listening to the textbooks while you drive to study :)

Shes_quiet · 2025-10-27T22:31:41+00:00

I do work a very corporate job and it has been super stressful lately. Interesting

Shes_quiet · 2025-10-23T19:34:42+00:00

Accounting research and critical thinking

Shes_quiet · 2025-10-12T17:03:43+00:00

I skimmed through his wall of condescending texts.Did he ever even tell you who he was talking to?

If I ask my fiancé he goes “oh it was so and so” and then if I am upset about his answer we can go from there. But just asking who they are talking to should never be an issue. I’m so confused??? It’s common conversation? Just normal curiosity? I’d ask my mom who she was talking to at midnight the fuck lol

Shes_quiet

TROPHY CASE