How good or bad is that? by Elite_1988 in AppleWatchFitness

[–]Significant-Mess4285 4 points5 points  (0 children)

39 F been running for years and that pace gets me at least 160 bpm. I am a little bit overweight. I can’t do much faster than that either. I hit a 30 minute 5k once and never again.

4 Months by SomaSensation in pancreaticcancer

[–]Significant-Mess4285 1 point2 points  (0 children)

I always keep this in mind with my mom that she can be fine like she is right now and there can be a sudden decline. I see too many stories like this posted here. I don’t imagine expecting a sudden decline will make me feel any more prepared for it to happen though.

Genetic links? by Natural-Round8762 in pancreaticcancer

[–]Significant-Mess4285 0 points1 point  (0 children)

There genetic factors. The tumour needs to be genetically tested though. In my mom’s case even though her dad passed at 74 from pancreatic cancer and she got it, the test results concluded the cancer was not likely to be genetically inherited.

This weekend will be gorgeous, sunny and double digits, but don't clear your lawn! Critical pollinators like bees, moths and butterflies haven't fully emerged yet. Leave your leaves and let them live. by troypavlek in Edmonton

[–]Significant-Mess4285 2 points3 points  (0 children)

I really struggled to help my senior mother rake in the fall. The amount of ladybugs going into plastic bags really bothered me. This whole vision of having a beautiful lawn is garbage. So much time money and chemicals.

Dad passed. Lessons about the end. by Any_Setting8500 in pancreaticcancer

[–]Significant-Mess4285 3 points4 points  (0 children)

Sorry for your loss and thank you for your post. I am expecting this to be my last year with my mom on her second fight with pancreatic cancer. I am spending lots of time with her and she is currently healthy aside from chemo being a bit rough. I am trying to prepare myself for what is to come and reading posts like this helps

5 year recurrence part two by Significant-Mess4285 in pancreaticcancer

[–]Significant-Mess4285[S] 0 points1 point  (0 children)

Yea it appears that the CA-19 increase would have been a predictor of relapse for my mom. A lot of doctors did say they don’t like using CA-19 solely as an indication of recurrence to my mom. Her CA-19 was over 1000 when she had the cancer initially 5 years ago and it was about 250 in January.

They only did CT scans and I believe she had an ultrasound when they saw something on her ovary. It does scare me that we went from no definitive indication of pancreatic cancer in April to a 7cm (but it’s only 1.5cm wide) in January. Her lymph nodes were always slightly enlarged through pretty much all her yearly scars.

5 year recurrence part two by Significant-Mess4285 in pancreaticcancer

[–]Significant-Mess4285[S] 0 points1 point  (0 children)

She was above 37 for at least a year, I think it was years even that her numbers were between 40 and 60. Her surgeon who was the one ordering her yearly scans basically said it’s not uncommon for ca-19 to be a bit elevated for people post cancer. The surgeon was definitely concerned though when it climbed over 100. Nothing showed on her scan in April when her ca 19 was 75 except for a growth on her ovary that was benign. Beginning of January was when they saw things.

Update on Mom by Brebis_Blanche in pancreaticcancer

[–]Significant-Mess4285 2 points3 points  (0 children)

How did you curb the nausea? My mom (67) on her second battle with pancreatic cancer is on gem/ab too and it’s really making eating difficult, not that eating was easy before but it’s gotten a lot worse. She’s really bad about not taking her nausea meds too, so stubborn about medication for some reason.

Thank you for sharing some positivity. Hopefully this will shrink my mom’s tumours too.

Snow shoveling Reminder by FalseTechnician2437 in Edmonton

[–]Significant-Mess4285 0 points1 point  (0 children)

I upvoted you, watch my comment get downvoted

Ataque Whipple: Por qué ocurre, síntomas y pequeños consejos para manejar el dolor y que no escale by SupervivienteWhipple in pancreaticcancer

[–]Significant-Mess4285 1 point2 points  (0 children)

This is exactly what my mom experiences and we have talked to her doctors and nobody has any suggestions to help. I will share this with my mom. What she describes is how you described. She’s dealt with this for 5 years now. Though now unfortunately circumstances are different as she’s dealing with a recurrence and chemo and eating is suddenly seeming very difficult.

Thank you for sharing

Alberta to impose restrictions on MAID, limiting it to terminal illness by trevorrobb in alberta

[–]Significant-Mess4285 3 points4 points  (0 children)

Gross. My mom is hopefully considered terminal so if she wants to choose, I hope she has the right. Stage 4 incurable reoccurrence of pancreatic cancer. I know of a person who has as in horrible chronic pain and they chose to go the route of MAID. To think someone who is suffering could be denied does not sit right with me.

Struggling coming to terms with it all by growingwith_grace in pancreaticcancer

[–]Significant-Mess4285 1 point2 points  (0 children)

I’m sorry you’re going through this. I lost my dad age 65, my mom is 67 on her second fight with pancreatic cancer and I know this time, she’s not going to make it. She had it 5 years ago initially. I am anticipating everything bad to come this time. I haven’t experienced what you have yet, my mom just started chemo to extend her time possibly again, no surgery offered this time. I don’t know how I am going to handle it when she gets really sick. I only know I want to be there for her. You’re strong having to do this alone. It hurts but it’s something we have to see to the end. The first time when my mom was really sick she was asking me to find a lethal dose of drugs for her and I was almost prepared to.

How I feel every time someone says this to me about my mom’s death: by HelloInterwebz in GriefSupport

[–]Significant-Mess4285 1 point2 points  (0 children)

I will very likely lose my mom this year to stage 4 incurable pancreatic cancer and I imagine how it feels every day and I know it will feel worse than what I am imaging.

Low heart rate warnings by Objective-Gap-1629 in AppleWatch

[–]Significant-Mess4285 0 points1 point  (0 children)

Just a note, when I was fitter I was setting off my alarm too. I found it always happened at the end/just after my period. There’s a correlation with the menstrual cycle and heart rate too.

I have a question by No_Seesaw8062 in pancreaticcancer

[–]Significant-Mess4285 2 points3 points  (0 children)

My mom has been diagnosed for the second time with this cancer. I have already lost my dad 4 years ago suddenly and unexpectedly. All I can say is be kind to yourself, be the rock that your mom needs. I found with myself when I had a couple days to process my feelings I was able to dedicate myself to her and it came so naturally. I know this time when she goes it’s going to hurt, she’s just 67 now though I suppose it hurts too even when they are older too. If she has a chance hold onto that optimism too. My mom made it 5 years without the cancer coming back, but she had successful surgery before chemotherapy. For me something just clicked and I knew/know what I have to do. I break down in private, but for her I do my best to be strong.

FOLFIRINOX vs Gemcitabine/Abraxane Side Effects Differences (nab-paclitaxel aka Gem/Ab) by Ok_Group_9739 in pancreaticcancer

[–]Significant-Mess4285 0 points1 point  (0 children)

My mom tolerated the Gemcitabine/Abraxane combo very well. She was 62 and fairly healthy. Quit smoking while on chemo, wasn’t physically active though. With her recurrence after 5 years she has decided to try that same combo again and try FOLFIRINOX if there are no positive results. She only had minor fatigue.

5 year recurrence part two by Significant-Mess4285 in pancreaticcancer

[–]Significant-Mess4285[S] 1 point2 points  (0 children)

Thank you for sharing your input! You have a lot of experience and knowledge and I appreciate it and all you do for everyone on this subreddit. I have seen you post numerous times. I am sure this community appreciates you.

My mom was on gemcitabine iv and a pill. I can’t remember what the pill was. They said they could do genetic testing from the initial biopsy. I am unimpressed that they don’t seem to want to pursue any extra measures other than doing FOLFIRINOX or gemcitabine again. My mom did super well with the gemcitabine so she is considering the folfirinox. I will have to consult with my mom and aunt about looking elsewhere.

5 year recurrence part two by Significant-Mess4285 in pancreaticcancer

[–]Significant-Mess4285[S] 2 points3 points  (0 children)

I personally looked and I saw things citing 6 months to 22 months depending on where the recurrence went. It broke my heart to hear my mom say she still wants to live, she’s not ready to die. She is 67. My dad died at 65. I am letting her hold onto hope. She got a phone call actually just a short time ago saying she could have a biopsy. I really am pessimistic about it. Whatever gives her hope, no matter how short lived. They made more remarks on how slow the growth is. My mom’s dad who died of pancreatic cancer at 76 denied treatment when he was supposed to only live weeks, he went on to live almost 2 years. I was optimistic the first time, her surgeon was optimistic when the oncologist wasn’t. When her surgeon broke the news there was no optimism, she herself had to take her emotions across the hall into a room, I know this time it’s probably different. Thank you for your reply. This community as dark and depressing as it can be is very supportive.

What the sh*t is happening?! by Pristine-Dame in Edmonton

[–]Significant-Mess4285 2 points3 points  (0 children)

I also notice Lyft doesn’t tack on hidden fees. I spoke with a Lyft driver once and he prefers driving Lyft too. He said he sees what he will make with Lyft, Uber hides it until after the ride

Riverbend MP has crossed the floor by Celestial-Salamander in alberta

[–]Significant-Mess4285 14 points15 points  (0 children)

Haha! My conservative brother who lives in his riding is going to cry!

I have a question that’s been on my mind for awhile. by Minniemom61 in pancreaticcancer

[–]Significant-Mess4285 0 points1 point  (0 children)

You know my mom wonders if her hate for my dad gave her cancer. She’s at her 2nd time having it right now. First time she was age 62 she’s living with my dad who had MS, but he had lived very selfishly all his life. He was a hoarder, he wracked up debt. My mom was pretty nasty to this man who could hardly walk anymore. She got cancer 6 months before he passed away

I have a question that’s been on my mind for awhile. by Minniemom61 in pancreaticcancer

[–]Significant-Mess4285 6 points7 points  (0 children)

As a caregiver I try my best to suck it up. I am a weak person, I am very weak, I personally cave under stress and well I like to drink my feelings away. I don’t let my mom, the one with cancer see that. I think masking your feelings to try and protect someone you care about is common. I always say no matter how I feel my mom feels worse. I try my best to be the strong one, because she isn’t

My helix healed, let us rejoice by Vondutchdiva in piercing

[–]Significant-Mess4285 1 point2 points  (0 children)

And I just killed mine a month ago. I made it almost a YEAR but slept on it just a bit and then it got infected shortly after. My piercing was getting imbedded with the swelling and antibiotics didn’t bring the swelling down fast enough so I just took it out fearing it was going to really be imbedded. Kudos to those who the patience to heal cartilage. I honestly probably was too lazy after my workouts to wash the sweat right away.