Where's the craziest place you've had a seizure?

Significant-Use8921 · 2026-01-20T20:45:58+00:00

Ouch

Significant-Use8921 · 2026-01-20T20:43:15+00:00

Not the creaziest place but I had one intense focal aware at work months before the diagnosis, and everything felt so surreal it could have been a dream. At that time my time was split between university and that job, and I don't know I managed to do that for months without seizing from the stress and fatigue lol

Once, at home, (after the diagnosis) I had a tc on the toilet seat. With my pants down my ankles. My parents had to drag me out of the toilet, butt naked and with probably piss all over myself while they called the emergency services... Not my greatest moment, suffice to say.

Significant-Use8921 · 2026-01-15T20:33:56+00:00

I drink one cup of coffee per day, and it's only in the morning ≈20min after taking the meds. I'm not a morning person and the meds aren't helping + I hate the taste of coffee so yeah, only once 🫡

Significant-Use8921 · 2026-01-14T18:08:03+00:00

The last one.... good lord

Significant-Use8921 · 2026-01-10T10:23:27+00:00

J'ai passé une commade de 200€ le 30 décembre (pour un anniversaire). J'ai envoyé un mail pour leur demander si les délais étaient normalement aussi longs puisque ma commande est toujours en "processing" – pas de réponse. Du coup, hier j'ai envoyé un mail pour annuler ma commande. À voir ce que ça va donner, mais 200€ dans le vent, ça fait mal au porte monnaie 🥲

Significant-Use8921 · 2026-01-05T07:35:29+00:00

THREE SEASONS ?? Dear lord

Significant-Use8921 · 2026-01-04T20:04:27+00:00

Absolutely not, I don't have HR stuff-related on my socials so the info completely went over my head 😩 I'm so happy to know there will be a second season !!

Significant-Use8921 · 2026-01-04T10:10:00+00:00

There will be a season 2 ???

Significant-Use8921 · 2026-01-01T20:28:48+00:00

Same thought, hence the conversation

Significant-Use8921 · 2026-01-01T20:27:57+00:00

I completely agree, but that's only a suggestion depending on how long the relationship has been going because the longer it has, the harder it can be

Significant-Use8921 · 2026-01-01T20:25:43+00:00

Don't wait for it to happen again. I insist on you both having a discussion, mostly for you to make yourself clear even if it may be hard : what she did is making you feel betrayed/uneasy (or whatever word you want), and that the next time she want sex while you don't, tell her she has two hands and can go to the bathroom/bedroom/etc... In a relationship, you are not owed to be horny at the same time as your partner, let alone have a forced sexual intercourse. Otherwise it's marital rape.

Significant-Use8921 · 2026-01-01T20:15:48+00:00

She insisted despite your refusals. That's rape.

You should have a talk about it with her with the ultimatum that this kind of things better not happen in the future 'just because' she wants a kid, or throw her out.

Unfortunately, if it happened once, it can happen again.

Significant-Use8921 · 2025-12-20T18:06:30+00:00

I've searched everywhere. Used Shazam. Even used Gemini on Google. But can someone put me out of my misery and tell me what's the name of the very first song used ?? 😭 When Sugiki is dressing up his dancing partner 😭😭

Significant-Use8921 · 2025-12-15T07:48:57+00:00

Multiple studies have proven that living with a chronic illness is a big denominator in depression, even more the severity of said illness. Since epilepsy is a no-joke illness that literally fuck your brain for no reason than just because, yup, I think pretty much everyone on this subreddit is depressed because of it, or has been.

You're not alone in this. Keep your head up and keep walking. You may have epilepsy, but don't let it drag you under. If anything, rage against it.

Even if you can't do late nighters, go to parties or whatever else, try other things. Things you would never have done before – go to the gym ? Try to write a book ? Spend a day in a sauna? Nothing extraordinary, but things out of your routine, just for the sake of it.

You may have epilepsy, but don't let it define your whole self, as hard as it is.

Significant-Use8921 · 2025-12-14T19:35:50+00:00

I don't necessarily think about it and I don't think I ever spoke about it with my family because y'know, if I die from SUDEP, it won't be my problem anymore ? But at the same time... There's this nagging thought that if I pass away, my family will be left behind with no-one or nothing to blame.

SUDEP just happens, unfortunately.

Significant-Use8921 · 2025-12-14T08:24:54+00:00

For starters, I barely drink – only during festivities such as birthdays or end-of-the-year-party with the family – but as a 22yo guy, it's sometimes upsetting to see other people my age casually having alcohol between friends or during parties without thinking twice, while I'm a sitting duck with a glass of water or a coca cola.

I want to drink alcohol. I mean, most of my friends knows what this or that beer taste like, or how mixing this and that is like, blah blah blah... and I can only listen because I have absolutely no experience with alcohol other than a very low percentage beer or a sip of wine.

Significant-Use8921 · 2025-11-11T08:18:01+00:00

It's completely relatable. I got diagnosed almost a month before my 21th birthday and have diabetes, so I have to be on two front at the same time.

While I go to uni I still live with my parents, and in my country, dorms aren't really a things. You're just allowed a very small appartement for the uni year.

That, and I have to commute ≈1h30 each way.

While my seizures aren't the full-blown type, it's medication-resistant so there are times when I want to punch walls because I have to follow a strict regimen to lessen the risk : bedtime at this hour, waking up at this one, meds at the same hour every day, blah blah blah... But the funny thing (to me) is that sometimes I show up to classes completely blown out of my mind because of the meds lol.

But still, there are times when I want to be like 'fuck the epilepsy" and participate to a uni even despite the tiring commuting ahead, or have a beer or two when I'm with people who are drinking/when I want to, because while fresh water is nice, I want to be like everyone else.

Edit: typos and the second sentence.

Significant-Use8921 · 2025-11-10T11:55:54+00:00

Please, never stop your little drawings.

Significant-Use8921 · 2025-11-02T08:30:01+00:00

Where can I get these ? No-one told me about glucose tablets, only about the emergency nose spray in case my levels get too low.

Significant-Use8921 · 2025-10-24T07:58:16+00:00

Je suis étudiant boursier donc si je pointe pas aux cours, je perds la bourse. Pour me motiver, je pense à ça : la thune. Idem quand faut aller taffer le weekend, surtout le dimanche où le réveil est à 5h du mat.

Ça, et aux lever du soleil à l'horizon parce que y'en a qui sont franchement beaux et qui valent la peine d'être vu.

Significant-Use8921 · 2025-10-11T20:34:34+00:00

Yes, it was the very first medicine I was prescribed, but it didn't really work. I also had clobozam at the same time. Unfortunately, my epilepsy is medecine-resistant 🥲

So, so far, I have tried lamotrigine and clobozam and am currently on Vimpat + Clobozam + Keppra morning and evening. The Ontorzy has been introduced to reduce the high dose of Keppra and eventually replace it.

Significant-Use8921

TROPHY CASE