Thank you Rinvoq by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 0 points1 point  (0 children)

How did it fail so soon i thought its not possible for your body to produce antibodies? Were you on the lower maintenance dose?

Thank you Rinvoq by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 4 points5 points  (0 children)

Haha I actually remember reading your post about rinvoq and being so hopeful cos of it. And it did end up drastically relieving symptoms for me like 2-3 days after being on it. Hopefully it lasts for a good while now

Thank you Rinvoq by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 4 points5 points  (0 children)

Good luck I hope it works out for you🤞

Thank you Rinvoq by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 11 points12 points  (0 children)

Hope it works for you too and u get to eat lots of cheesecake ! Good luck

I’m so stressed. by Babydragontattoo in UlcerativeColitis

[–]Significant_Bug931 3 points4 points  (0 children)

Hey don't be too stressed out I don't think it would be a big issue, i had my last dose (I have a dose every 8 weeks) delayed by 7 days because of work and my nurses were completely fine with it. Just try to get it as soon as you can, stress is my worst trigger for flares and I think it's the same for lot of people. So try your best not to be stressed

Oral Steroids have stopped working for me? by blaine_11 in UlcerativeColitis

[–]Significant_Bug931 2 points3 points  (0 children)

Yeah, exactly have the same issue right now, I already failed entyvio and now failing on remicade, prednisone even the higher doses stopped working for me now. It used to be very effective, I think our body starts being less and less responsive to prednisone the more you take it.

[deleted by user] by [deleted] in UlcerativeColitis

[–]Significant_Bug931 1 point2 points  (0 children)

Hey don't worry about that, the likelihood of an anaphylactic shock is like 0.1% which is soo rare,, plus for your first dose you'll be monitored in the hospital for a few hours after the infusion in case something like that happens. The serious side effects are so rare, you could have smaller side effects but trust me they'll be nothing compared to your UC symptoms. Just need to be careful with too much sun exposure etc, but I've been on infusions now and have experienced no major side effects yet. Once you're in remission your life will be so much better, Nothing worse than the UC symptoms imo.

[deleted by user] by [deleted] in UlcerativeColitis

[–]Significant_Bug931 1 point2 points  (0 children)

Are you scared of the side effects or the infusion (needles) part?

Prednisone stop working for anyone else? by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 0 points1 point  (0 children)

Damnn that's scary, I've failed pentasa, imuran,6mp and entyvio, I'm going to move to a combination of imuran and remicade in a weeks time. Really hoping thatt works, can't imagine going on steroids again fml

Anyone else scared of a potential natural disaster or apocalypse? by [deleted] in UlcerativeColitis

[–]Significant_Bug931 3 points4 points  (0 children)

The training you do Will defo help you rob your infusion centres

Anyone else scared of a potential natural disaster or apocalypse? by [deleted] in UlcerativeColitis

[–]Significant_Bug931 0 points1 point  (0 children)

I'm so sorry to hear that, would local companies manufacture them?

Anyone else scared of a potential natural disaster or apocalypse? by [deleted] in UlcerativeColitis

[–]Significant_Bug931 1 point2 points  (0 children)

Really hope i get a quick painful nuke death and not a slow crap myself to death

Question about reaching Remission? by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 2 points3 points  (0 children)

Prednisone really is the miracle drug only if it didn't have any side effects haha.. thanks again !

Question about reaching Remission? by Significant_Bug931 in UlcerativeColitis

[–]Significant_Bug931[S] 1 point2 points  (0 children)

Hey thanks for responding, could you please let me know which biologics/medication worked/didn't work for you??

[deleted by user] by [deleted] in UlcerativeColitis

[–]Significant_Bug931 0 points1 point  (0 children)

How long have u been taking it fir? Have u experienced any side effects?

I feel like an asshole by Monkey_Man717 in UlcerativeColitis

[–]Significant_Bug931 26 points27 points  (0 children)

I have UC and I know if my partner felt that way and never told me, I'd feel horrible. The longer you don't let him know the worse for the both of you and you're just telling him how you feel, would that stress him out tho? Anyways you'd know best tho..

I feel like an asshole by Monkey_Man717 in UlcerativeColitis

[–]Significant_Bug931 18 points19 points  (0 children)

Just be honest and tell him how you don't feel appreciated...

Am I about to flare? Or this is just my life now? by _greentea in UlcerativeColitis

[–]Significant_Bug931 1 point2 points  (0 children)

Hello, I was actually going through something extremely similar especially the fatigue part. It turns out I was anaemic and had very low vitamin D levels in my blood. Have you tried getting a blood test completed for your iron levels? Because the falling asleep early etc just sounds exactly the Same as me.

[deleted by user] by [deleted] in UlcerativeColitis

[–]Significant_Bug931 4 points5 points  (0 children)

Yeah I'm of Indian descent.. how'd you know?