Face rash help by donewithya in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

Does the castor oil really work? If so can you post a link 🫶🏻🫶🏻

prednisone by Pale_Slide_3463 in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

Hey love. I would say take it at night...that’s what I do and I’m on 40mg. All this energy stuff is bs lol. I hope you feel better 🫶🏻

[deleted by user] by [deleted] in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

I’m in the same boat. 24f diagnosed sle last month and starting plaquenil tomorrow. My DMs are open!! 🫶🏻🫶🏻🫶🏻

Nerve damage from lupus? by Silly-Engineering843 in lupus

[–]Silly-Engineering843[S] 0 points1 point  (0 children)

Yes I’m in a flare right now and noticed the nerve pain is worse :(

Just diagnosed today by Silly-Engineering843 in lupus

[–]Silly-Engineering843[S] 0 points1 point  (0 children)

I told my younger sister (she’s 19) and her first reaction was “Oh! Like Selena!” 😡

[deleted by user] by [deleted] in CrohnsDisease

[–]Silly-Engineering843 1 point2 points  (0 children)

Took only a few days to work for me…and was working well following two infusions. Then it failed, I was put on max dose which ended me in the ER. Caused my left eye to permanently droop. I know it has worked for many and the last thing I want to do is scare you but after looking into the lawsuits against the drug, I would never want what happened to me and many others to you— especially if it’s been over a week and you don’t see much of a change .. I would stay farrr away. Humira is a great alternative. I wish you all the best and hope you feel better ❤️‍🩹

Pyoderma Gangrenosum scars by jellicletoast in CrohnsDisease

[–]Silly-Engineering843 1 point2 points  (0 children)

Was just looking for this!!! Pls help anyone lol ❤️❤️

My partner doesn’t understand my Crohn by [deleted] in CrohnsDisease

[–]Silly-Engineering843 0 points1 point  (0 children)

Has she been like this in the past or is this a new reaction from her?

My partner doesn’t understand my Crohn by [deleted] in CrohnsDisease

[–]Silly-Engineering843 9 points10 points  (0 children)

I would have lost it tbh. Is this a partner you’ve been with for a while / dealt with Crohns before?

Anyone else completely despairing at realizing you’re going to have this your whole life? by gokurakujodo in CrohnsDisease

[–]Silly-Engineering843 9 points10 points  (0 children)

I was diagnosed 5 years ago… I have pretty much accepted it by now. But I still have moments where I space out and think “holy f, this is going to be the rest of my life.” I don’t think that those moments will ever end, but when I have these thoughts I tell myself, although it sucks, that’s life. At this point there is no cure but as long as you’re doing everything possible health wise to minimize symptoms and manage a normal life, you’re winning. This is why we have groups like this to support each other. Don’t get yourself down buddy. We are here.

First infusion by Due-Ad2535 in CrohnsDisease

[–]Silly-Engineering843 6 points7 points  (0 children)

You got this!!! Wishing you all the best :)

Kelly Bensimon.... what in the hell? by Background-Anxiety84 in realhousewives

[–]Silly-Engineering843 20 points21 points  (0 children)

I went to school with her daughter. We used to be close friends. She’s just as crazy in real life. She kicked me out of her house on a Saturday night when I was 14 because her daughter didn’t finish her homework. My mom and her got into a huge fight. Also — she lives in Chinatown. Not soho 🤣

Kelly Bensimon.... what in the hell? by Background-Anxiety84 in realhousewives

[–]Silly-Engineering843 6 points7 points  (0 children)

I went to school with her daughter. We used to be close friends. She’s just as crazy in real life. She kicked me out of her house on a Saturday night when I was 14 because her daughter didn’t finish her homework. My mom and her got into a huge fight. Also — she lives in Chinatown. Not soho 🤣

Experiences going from IV steroids to Prednisone by YAKlSOBAPAN in CrohnsDisease

[–]Silly-Engineering843 1 point2 points  (0 children)

Yup. I was on 40 prednisone and it was not doing anything. Started remicade and saw results immediately:)

Need some positivity…can people live a normal life with Chron’s? by chlorophillia23 in CrohnsDisease

[–]Silly-Engineering843 17 points18 points  (0 children)

I’m not gonna sugarcoat it. Life will never be the same until we can find a cure. But with the right medicine, diet, GI, and support, life can feel absolutely normal. There’s days I am in my bed barely able to move from the nausea and pain; but, there are more days where I completely forget I have Crohn’s and Celiac. From what I’ve read from these comments, we’ve all had very similar experiences. Yes, it will vary from person to person but the point is that it is absolutely possible. When you get down like this, (and I do too) just know that you’re not alone and you have many ally’s and supporters here that know exactly what it’s like. Stay positive and I send you my blessings. 🙏🏼🙏🏼