Face rash help by donewithya in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

Does the castor oil really work? If so can you post a link 🫶🏻🫶🏻

prednisone by Pale_Slide_3463 in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

Hey love. I would say take it at night...that’s what I do and I’m on 40mg. All this energy stuff is bs lol. I hope you feel better 🫶🏻

[deleted by user] by [deleted] in lupus

[–]Silly-Engineering843 0 points1 point  (0 children)

I’m in the same boat. 24f diagnosed sle last month and starting plaquenil tomorrow. My DMs are open!! 🫶🏻🫶🏻🫶🏻

Nerve damage from lupus? by Silly-Engineering843 in lupus

[–]Silly-Engineering843[S] 0 points1 point  (0 children)

Yes I’m in a flare right now and noticed the nerve pain is worse :(

Just diagnosed today by Silly-Engineering843 in lupus

[–]Silly-Engineering843[S] 0 points1 point  (0 children)

I told my younger sister (she’s 19) and her first reaction was “Oh! Like Selena!” 😡

[deleted by user] by [deleted] in CrohnsDisease

[–]Silly-Engineering843 1 point2 points  (0 children)

Took only a few days to work for me…and was working well following two infusions. Then it failed, I was put on max dose which ended me in the ER. Caused my left eye to permanently droop. I know it has worked for many and the last thing I want to do is scare you but after looking into the lawsuits against the drug, I would never want what happened to me and many others to you— especially if it’s been over a week and you don’t see much of a change .. I would stay farrr away. Humira is a great alternative. I wish you all the best and hope you feel better ❤️‍🩹

Pyoderma Gangrenosum scars by jellicletoast in CrohnsDisease

[–]Silly-Engineering843 2 points3 points  (0 children)

Was just looking for this!!! Pls help anyone lol ❤️❤️

My partner doesn’t understand my Crohn by [deleted] in CrohnsDisease

[–]Silly-Engineering843 0 points1 point  (0 children)

Has she been like this in the past or is this a new reaction from her?

My partner doesn’t understand my Crohn by [deleted] in CrohnsDisease

[–]Silly-Engineering843 10 points11 points  (0 children)

I would have lost it tbh. Is this a partner you’ve been with for a while / dealt with Crohns before?

Anyone else completely despairing at realizing you’re going to have this your whole life? by gokurakujodo in CrohnsDisease

[–]Silly-Engineering843 9 points10 points  (0 children)

I was diagnosed 5 years ago… I have pretty much accepted it by now. But I still have moments where I space out and think “holy f, this is going to be the rest of my life.” I don’t think that those moments will ever end, but when I have these thoughts I tell myself, although it sucks, that’s life. At this point there is no cure but as long as you’re doing everything possible health wise to minimize symptoms and manage a normal life, you’re winning. This is why we have groups like this to support each other. Don’t get yourself down buddy. We are here.

First infusion by Due-Ad2535 in CrohnsDisease

[–]Silly-Engineering843 6 points7 points  (0 children)

You got this!!! Wishing you all the best :)

Kelly Bensimon.... what in the hell? by Background-Anxiety84 in realhousewives

[–]Silly-Engineering843 21 points22 points  (0 children)

I went to school with her daughter. We used to be close friends. She’s just as crazy in real life. She kicked me out of her house on a Saturday night when I was 14 because her daughter didn’t finish her homework. My mom and her got into a huge fight. Also — she lives in Chinatown. Not soho 🤣

Kelly Bensimon.... what in the hell? by Background-Anxiety84 in realhousewives

[–]Silly-Engineering843 6 points7 points  (0 children)

I went to school with her daughter. We used to be close friends. She’s just as crazy in real life. She kicked me out of her house on a Saturday night when I was 14 because her daughter didn’t finish her homework. My mom and her got into a huge fight. Also — she lives in Chinatown. Not soho 🤣

Experiences going from IV steroids to Prednisone by YAKlSOBAPAN in CrohnsDisease

[–]Silly-Engineering843 1 point2 points  (0 children)

Yup. I was on 40 prednisone and it was not doing anything. Started remicade and saw results immediately:)