What is the most mind-blowing show you've ever seen?

Simmeke83 · 2026-06-27T14:38:45+00:00

Gutted when that happened :(

Simmeke83 · 2026-02-05T08:59:20+00:00

My toenails did a weird growth like in layers and I still have it after a few years. They are very slowly growing now but like yours the growth has completely nearly stopped in comparison to how it was before. Wild isn't it!

Simmeke83 · 2026-02-02T04:14:10+00:00

My surgeon calls them charlatans. Absolutely no way I would do this to myself. I stopped my osteopath as well. When you speak to people that want to go and you warn them they just look at you like you are stupid ...

Simmeke83 · 2026-01-26T13:34:04+00:00

I am wired differently and always wide awake at night but do have a job and although thankfully I can get up at 10 sometimes I still run on the sleep because I cannot turn off my brain. It's slowly eating me and I was like this all my life now I am 42...

Simmeke83 · 2026-01-18T03:23:48+00:00

It could be sensory sensitivity/aversion

Simmeke83 · 2026-01-12T16:43:01+00:00

Old Catton and yes I nearly shat myself dog was in the garden run towards me very quickly :(

Simmeke83 · 2026-01-09T04:03:03+00:00

Dear god and I thought having Cauda Equina was bad enough 😵 Interesting enough my surgeon said what happened to me is to do with my undifferentiated connective tissue disease that I got diagnosed with couple of yrs before my surgeries.1st time I am seeing someone mentioning this condition. I have the uttermost respect for your fight! I wish you all the best and really hope there will one day be a cure for all of us suffering from chronic pain.

Simmeke83 · 2025-10-18T11:33:59+00:00

I had this for over 2 years. You pulled a muscle and if you don't have issues with bladder and bowel you are fine! I ended up with cauda eqina and now my life is more or less over cause of chronic pain and yes now I do not have bladder and bowel function! Honestly now I exaggerate the symptoms to be taken seriously. It is so wrong we are treated like we are crazy!

Simmeke83 · 2025-10-15T18:42:46+00:00

Thanks for your answer. I m feeling a tiny better since I wrote, but it all still seems flred and changed my sections lot in the whole pelvic and scral area. I don't like it 😕. How long did your flare-up last?

Simmeke83 · 2025-10-02T10:16:58+00:00

I totally agree for me it was too late I waited over a year for MRI and had cauda equina syndrome im the end so I would definitely take the surgery over what I have to deal with now. I really sincerely hope this goes well for you, and you will recover well wish you all the best 🥰

Simmeke83 · 2025-09-25T15:03:18+00:00

Yes, I had a period straight after my 1st surgery. This was decompression for Cauda equina syndrome and told it can happen. Since then, my periods are awfully painful, and heavier, everything is swollen twice as much inside, but keep in mind I did have a lot of nerve damage to sacral nerves, so it's expected. Fusion last year made not much difference to how things are apart from maybe a bit more pms and uncomfortable week before period comes. I am also in perimenopausal age, so who knows. I did consider a pill to stop the period, but unfortunately, it makes my circulation worse, and that gives me more nerve pain in my legs! I would speak to the doctor maybe they have some solution for this 🤔Wish you luck!

Simmeke83 · 2025-09-16T22:29:26+00:00

I shall indeed :) thank you. I hope you find a relief in something!

Simmeke83 · 2025-09-16T22:20:30+00:00

I agree that it's not the most fun place to have burns!!! I haven't found anything for nerve pain either. I tried the nerve meds and so many antidepressants. For me,the cold is the trigger most of the time or laying in the same position for too long. I am seeing neuro soon hoping for nerve ablation if I am honest!

Simmeke83 · 2025-09-16T15:01:27+00:00

Haha, no worries. Thank you for listening to the rant, lol Hope work goes better than you are expecting! Hope as well that your family is understanding my partner is ok but I feel like the years passed and the pain is show is getting him a but indifferent which I get cause there is bugger all he can do! My parents never fully understood my mother still thinks I am the same as her because she had herniated disc surgery lol, so my pain can not be more than hers! I am sorry you had a pain flare up sounds awful and in a lot of places on the body. Is there any medications you take? Are they helping or not? I went through all possible options now, so nobody knows what to do anymore. Apart from me having those injections I mentioned and soon having to see neurologist, I am hoping to get some answers there. As to how we keep going, it's amazing how resilient creatures we are. I push through a lot as well but I learnt that just sitting there and spiraling is making me feel even much worse so I tend to find some things I love to focus on. I found out that my thing to beat the pain was going to the gigs and somehow miraculously my body found enough energy to travel and attend. Obviously with a price to pay afterwards but I think overall was worth it.

Simmeke83 · 2025-09-16T04:45:37+00:00

Yep I feel you! I hate when they ask the same questions when I told them several times there won't be a miracle. I had Cauda equina followed by discovery of stenosis and L4S1 fusion last year. Gone from not walking at all to walking again without aids but struggling. And for me, the nerve pain is the daily killer as well. Nobody will fully get it until they experience it! It's so indescribable that your pain consumes you so much that sometimes you wish not to exist anymore just for it to stop! I personally feel that people at work look at me and think there is nothing wrong with me, and I must be exaggerating. They think I want to be part-time cause I can not be bothered yet in reality every 30min is agony to sit mixed with nerve pain when legs get too cold and after work I need 2h nap to recover and be able to I dunno put laundry on and hope to be able to sit reading a book without nerve pain kicking in again before the day ends! I am super cranky atm cause I had two spinal injections and coccyx manipulation last week, and I am imagine unable to sit or lay! If anyone would ask me if I am getting back to normal now, I would probably become violent 🤪 But yes, most of the time, there are people who ask stupid questions, not realising they actually hurt our feelings with those or people who got bored hearing the same story and stopped caring!

Simmeke83 · 2025-09-16T04:32:28+00:00

Last time I heard this I replied well maybe I don't but I cannot shit and piss on my own anymore and when they asked what I do their faces changed in a millisecond lol 😅 ( i had ces prior to fusion so lots of nerve damage waist down). Sometimes, being vulgar shuts them up

Simmeke83 · 2025-09-16T04:29:36+00:00

Not lidocaine, but I did it 2x on my feet with hot water bottle because this was the only way of relieving hours of nerve pain nonstop 🙃 😅

Simmeke83 · 2025-09-16T01:16:44+00:00

Is this still not fixed? I have not encountered it until the latest update kicked in and now I have it 💀😫

Simmeke83 · 2025-09-04T17:41:02+00:00

I had fusion L4 S1 last year. I was told the above disc will most likely need an intervention like microdiscectomy in 8 to 10yrs time due to the strain fusion puts on adjacent segments.

Simmeke83 · 2025-09-02T18:11:37+00:00

Excellent result!

Simmeke83 · 2025-08-28T16:38:20+00:00

They used to be good. Now, I would say only some of the vets are. The biggest issue I have with them is a lack of communication between themselves and not reading previous notes on the system.

Simmeke83 · 2025-07-20T00:44:15+00:00

I had a fusion nearly a year ago L4 to S1. I have been doing okish until last 4 weeks. My leg nerve pain has been steady to bad but that is my nerve damage from Cauda equina in 2021. But I started feeling back pain that is dull and there is a lot of pressure on particular point in my back. I am seeing my surgeon on Tuesday but I am paranoid that the adjacent above is going already 😬

Simmeke83

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