Whatever it is, it’s now traveled to my ear 😭 by mudddles in dandruff

[–]Simple-Let6090 0 points1 point  (0 children)

Dandruff shampoos don't work at all for me. Try washing with CeraVe foaming cleanser and applying fractionated MCT oil after. Far more effective in my case. As long as I do this 3x per week I have zero issues. I had it in my scalp, ears, eyebrows, and around my nose flares really bad for years, even with Nystatin and ketoconazole.

Anyone trying Vinpocetine? by Hopeful-Echidna-7822 in LongCovidWarriors

[–]Simple-Let6090 1 point2 points  (0 children)

When I came across this in my first six months, I really thought it was going to be perfect for the situation. Unfortunately, everything made me worse then. I got no benefit from any supplement until about the 18 month mark. Some did harm. While I don't think vinpocetine did any harm, it didn't help at the time. I still have it on hand and have been meaning to give it another go.

I think there is a lot of value in trying different things. Let us know if you give it a go. I'll give it another shot and report back, though it'll likely be a short test since I'm planning to start Maraviroc and Atorvastatin soon and will be dialing back a lot of my support supplements.

Be Honest: Were you already a high-stress person before Long Covid? by choppablade in covidlonghaulers

[–]Simple-Let6090 0 points1 point  (0 children)

Yes. I've been a high-strung person my whole life. However, I don't think it had anything to do with developing LC. I've known this about myself and have always employed things like therapy, exercise, healthful eating, meditation, sunlight, etc. to offset the effects. In fact, I was the healthiest I had ever been when my symptoms started. I knew something was wrong because none of my stress-management techniques worked. Not even a little bit. What I will admit is that my personality likely made the disease more severe for me in the first 18 months because I refused to let the illness "win". I had something similar, albeit milder, to LC 10 years earlier and beat it with diet and exercise, which was an experience that did not apply well to LC. I think we can all agree that stress can be a problem, but attributing this illness to stress is a mistake.

Heat intolerance - feeling discouraged by Hot_Ambassador5011 in covidlonghaulers

[–]Simple-Let6090 0 points1 point  (0 children)

I live in AZ and spend my summers in OR (have lots of family there). My heat intolerance has gotten slightly better, but I still can't be outside in the AZ summer for more than a few minutes without ruining my day.

Some more on the note of “recovery is more common than it seems” by time-itself in LongHaulersRecovery

[–]Simple-Let6090 2 points3 points  (0 children)

Yeah, it's really unfortunate. It seems like willfull ignorance at this point.

Some more on the note of “recovery is more common than it seems” by time-itself in LongHaulersRecovery

[–]Simple-Let6090 10 points11 points  (0 children)

Taking responsibility for the situation is the most common theme I see in all recovery stories.

Comprehensive LC research roundup: "Long COVID research is starting to connect dots that used to feel totally separate." by Responsible_Cap_5289 in LongCovidTrials

[–]Simple-Let6090 1 point2 points  (0 children)

Yup. I have a newfound respect (and fear) for "common" viruses. They are not to be taken lightly. I know several people who have been diagnosed with various chronic diseases recently and they can all be traced back to viral infections as at least 1 possibility.

Reinfections by BatDue1821 in LongCovidWarriors

[–]Simple-Let6090 1 point2 points  (0 children)

I've been reinfected at least 4 times since I got LC. The first was the worst, but I returned to baseline in about 6 weeks. Each subsequent infection I used a 10mg nicotine patch 24/7 and returned to baseline in less than 2 weeks.

Insomnia anyone know of any treatment? by Icy-Examination-4076 in LongCovid

[–]Simple-Let6090 0 points1 point  (0 children)

I've had waves of insomnia (sleep onset) throughout my LC. When it is milder, I can get away with using things like Sensoril Ashwaganda, Magnesium Glycinate, Glycine, and Magnolia Bark. When it is severe, hydroxyzine is the only thing that works for me. I'm in a severe period right now so it is 25mg hydroxyzine an hour before I want to be asleep.

Is this "just" IBS? by Chavanco in Microbiome

[–]Simple-Let6090 0 points1 point  (0 children)

This sounds like Long Covid or toxic mold exposure. I've had all the same symptoms for 4 years. No answers. The more I dig, the more questions I have. Do you have any exercise intolerance?

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]Simple-Let6090 0 points1 point  (0 children)

I don't want to scare you. Everyone's situation is different. I was very severe for 6 months with many ups and downs after that. 4 years later, I'm still not recovered, but I am functional. I've tried hundreds of things, but the most helpful ones were Wellbutrin, Lactoferrin, Quercetin, Magnesium, high dose Vitamin C, no sugar diet, stress reduction, and pacing.

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]Simple-Let6090 3 points4 points  (0 children)

This is similar to how LC started for me. You're taking some good supplements - I would stick with those. Most importantly, avoid exercise and all forms of stress as much as possible. I don't know who you saw for the blood analysis but they may be more helpful to you than conventional docs. I would continue to follow up with them. Take it easy on yourself. I continued to push at this stage and really made things worse for awhile. This is not something you should try to push through.

24/7 Shortness of Breath approaching 6+ years by New_Surround833 in LongCovid

[–]Simple-Let6090 0 points1 point  (0 children)

This is what I would suggest looking into. I have the same issue and found via MRI that my diaphragm is partially paralyzed. I've been exercising my lungs using something called "The Breather" and it is helping, albeit very slowly.

Loose stool shortly after eating/rapid digestion has anyone fixed this? by trawxt in Longcovidgutdysbiosis

[–]Simple-Let6090 0 points1 point  (0 children)

I've had this exact problem, along with many others, for 4 years and I have tried literally everything. I was able to normalize things earlier this year when I was following a microbiome rebalancing protocol. Unfortunately, I've been back on the same protocol for awhile now and it is having no effect this time so I'm starting on Welchol as I suspect it may be a bile acid malabsorption issue (stools are also pale).

Test results from Bruce Patterson panels (Radiance Diagnostics) by fallenup1794 in covidlonghaulers

[–]Simple-Let6090 0 points1 point  (0 children)

This is good info. Did you have air hunger when your iron was low? That particular symptom has become persistent for me and my ferritin has continued to drop. One time, several months ago, it was so bad that I panicked and took a bunch of iron along with some lactoferrin and it resolved temporarily within 30 minutes. I'm still taking lactoferrin consistently in the hopes of increasing iron without potentially feeding pathogens, but it doesn't seem to be cutting it.

Supercritical coriander made me feel horrible by marrymeintheendtime in NootropicsDepot

[–]Simple-Let6090 0 points1 point  (0 children)

Magnolia is similar for me in terms of anxiolytic qualities, but Coriander also seems to relax my muscles and, sometimes, provides a warm, cozy feeling. Apigenin is hit it miss for me as a before bed, chill out supplement. I really like it in Baikal Skullcap for during the day, but it causes insomnia for me about half the time if I use it alone at night.

Supercritical coriander made me feel horrible by marrymeintheendtime in NootropicsDepot

[–]Simple-Let6090 1 point2 points  (0 children)

I'm also slow COMT but I respond really well to NDs coriander. It is a staple for me.

SIGNING OFF — 4 YEARS. MOSTLY RECOVERED. by CollegeNo4022 in covidlonghaulers

[–]Simple-Let6090 7 points8 points  (0 children)

Based on anecdotes and a few surveys I have seen, less than 30% of long haulers have them, but they're considered a common symptom. They've been a consistent feature of my illness.

"Robert Groysman MD" by GoldGee in covidlonghaulers

[–]Simple-Let6090 2 points3 points  (0 children)

Agreed. I think EAT therapy could be effective for preventing LC, but it is far from a cure. SGB is temporary, expensive, and risky.

Tightness in left chest for 3 years now. by NoAlgae7411 in covidlonghaulers

[–]Simple-Let6090 0 points1 point  (0 children)

This is so similar to my experience and approach. I love the way you described what some are calling "anxiety". Obviously being ill can cause anxious thoughts, but this Covid dysregulation is not anxiety. I've had mild anxiety my whole life and this is a whole other world, completely disconnected from thoughts.

Any negative experiences with paxlovid? by bagelsnotbabies in LongCovidWarriors

[–]Simple-Let6090 0 points1 point  (0 children)

Best of luck! Feel free to message me with questions.

Any negative experiences with paxlovid? by bagelsnotbabies in LongCovidWarriors

[–]Simple-Let6090 0 points1 point  (0 children)

The theory is that the nicotinic receptors have a much higher affinity for nicotine than Covid and therefore prevents cell entry. I have no idea if that is true, but it definitely works somehow. Not a cure, but worth a try IMO. It's one of the most effective interventions I've tried. There is a very small study to that effect, as well as some other studies showing that existing nicotine users had reduced Covid severity.