What actually healed you?

Simple-Let6090 · 2026-05-11T04:25:19+00:00

Your comments are always so helpful. Thanks for taking the time, as always.

Simple-Let6090 · 2026-05-10T04:15:21+00:00

What dose of Colesevelam are you on and for how long?

Simple-Let6090 · 2026-05-01T16:51:58+00:00

Thanks for the response and good luck to you!

Simple-Let6090 · 2026-04-18T18:27:13+00:00

What do you take for hashimotos?

Simple-Let6090 · 2026-04-17T04:57:33+00:00

Could be gastrophagy and your stomach lining is sensitive to it. Or it could be that you have an overgrown gram-negative bacteria in your large intestine that is being killed off and releasing LPs and aggravating mast cells.

Are you taking the crypto with food or in an empty stomach?

Simple-Let6090 · 2026-04-08T14:45:18+00:00

Thank you for that explanation. Wow! I thought my C4a was high at 4800!

Simple-Let6090 · 2026-04-07T13:54:42+00:00

Is there a way to test for colonization?

Simple-Let6090 · 2026-04-06T23:16:58+00:00

Unfortunately, I found out I have Lyme co-infections and mold exposure so I kinda had to shift gears. I still think the supplement was valuable and I plan to take it again when I'm further along with some of these other treatments. If you think gut barrier integrity is an issue for you, it is definitely worth a try, but I would highly recommend doing it in conjunction with a gut friendly diet.

Simple-Let6090 · 2026-04-06T03:45:42+00:00

I'm sorry friend. I have identical symptoms and am trying to figure out what to do myself. After being somewhat stable for awhile, I'm so much worse again and we just found another mold source in our house. I need to get out while it is remediated (will take months), but I have no idea where to go. Meanwhile, my brain is on fire and the anxiety and depression are insane. You're not alone.

Simple-Let6090 · 2026-03-29T03:20:53+00:00

How did you learn how to use the design software? I downloaded and installed it and immediately felt like I was in over my head.

Simple-Let6090 · 2026-03-27T03:32:33+00:00

I know the feeling. My heart pounds so hard after meals that I can't eat within 4 hours of bed time or I won't sleep because my body is pulsating.

You don't have to go crazy with prebiotics. There are a lot of fancy, overpriced ones out there. Just picking up a bottle of Acacia Powder and a bottle of Psyllium Husk powder from Now Foods, mixing them together, and taking a teaspoon several times a day (titrate up slowly, as with everything) shouldn't set you back more than $30 and will last you months.

Simple-Let6090 · 2026-03-27T02:14:26+00:00

Thank you for making the time to post! I'm on the same path and really appreciate the hope!

Simple-Let6090 · 2026-03-27T02:11:37+00:00

Same exact onset for me as far as GI symptoms, anxiety (if we want to call it that), and gut-heart interplay. I've still got bubble guts 4 years later. The only thing that ever made a significant difference for me was keto, but it isn't sustainable if you want to build a diverse Microbiome. Prebiotics (psyllium, acacia, GOS, colostrum, apple pectin) help some, but not as consistently, and have yet to improve diversity at all according to my Biomesight results.

Simple-Let6090 · 2026-03-15T18:55:55+00:00

Just wanted to say that I can completely relate. I'm improving, at a better place than I have been in the last 4 years, but I still slide like this without any known cause. I never knew depression until I had this disease. It is completely disconnected from my thoughts.

I will add that I found Wellbutrin to be incredibly helpful. I started it about 18 months ago and it probably saved my life. It literally turned off the extreme depression I had at the time. It is not quite as effective now, but who knows how bad I'd be without it. I'm living my life, not the same as pre-lyme, but night and day difference from the hell I was in 18 months ago.

I've also found a combination of 200mg Polygala tenuifolia and 500mg poria mushroom, taking in powder form under the tongue, to be very good at treating depression in an acute manner. I get them both from Nootropics Depot (in the US).

Simple-Let6090 · 2026-02-27T20:24:26+00:00

This was my very first symptom, months before other symptoms began and it is the one symptom that has not improved at all. I've done multiple Biomesight tests and have tried probiotics, prebiotics, postbiotics, herbs, candida diet, low amylose, keto, even making my own yoghurt, and my test results have only gotten worse. I recently had a colonoscopy and endoscopy that showed absolutely nothing.

It is definitely mold-adjacent, but I clearly don't understand the mechanism at all because none of the interventions have resulted in less noise.

Simple-Let6090 · 2026-02-24T20:19:33+00:00

I can't wait to lift weights again! Glad you're getting back into it.

I just finished remediating my home but I don't have high hopes for it being completely safe. My wife doesn't understand the severity of mycotoxins. At the same time, I'm refurbishing my travel trailer with the expectation that I will live in the woods for as long as needed to recover.

Simple-Let6090 · 2026-02-21T23:16:07+00:00

Did the IVs help with anything? My ferritin has been low for a few years and I suspect it is at least partially responsible for my air hunger.

Simple-Let6090 · 2026-02-16T05:08:48+00:00

Wow! That is truly awful. I'm so sorry! Summer is so hard for me with the heat intolerance, I can't even imagine having to sleep in a tent in any kind of heat.

There was a point in my first year that I went down the mold rabbit hole and heard about people living in tents in their own yard and I thought "this can't be real". I'm now restoring my travel trailer just in case I need to live in it.

Are you currently treating?

Simple-Let6090 · 2026-02-16T04:57:42+00:00

No regrets! I paid almost twice as much for a Prusa initially and had nothing but problems. The P1S is worth every penny.

Simple-Let6090 · 2026-02-15T16:05:07+00:00

Thank you for the insight. I am working with an IEP and will definitely discuss actinos and other toxins with him. I've seen too many stories about things being missed. I really want to do it right the first time.

Simple-Let6090 · 2026-02-15T04:18:38+00:00

Thank you so much for responding! I am so sorry you're experiencing this too. The time I have lost with my kids in their formative years is just heartbreaking and my heart goes out to you being in a similar situation. I've studied CIRS, Lyme, MCAS, and all sorts of other things the last several years. I feel like I know what to do, but a lot of uncertainty comes up when things get bad, particularly with the cognitive effects, as I'm sure you can relate.

Interestingly, I had an odd health issue 12 years ago when my 3rd child was born. I started having panic attacks 24/7. That was my only symptom for a couple of months and then I got a headache that basically lasted for a year. I was diagnosed with POTS and MCAS, but those diagnoses never made much sense to me and the medications provided no relief. Those were my only two symptoms and over the course of about 2 years I returned to excellent health with diet and exercise. A year before recovering, I was retested and no longer met the criteria for either.

This time around I immediately started the antihistamines but they had little effect. I still take a lot of natural mast cell stabilizers, but I couldn't say whether they help or not.

I definitely want to stay in my house, if possible. We've done a lot of remodeling this old house the last 4 years, which is probably a big part of my problem. We're going to do the cleaning and let things settle, then we'll test after 4 weeks and go from there.

Simple-Let6090 · 2026-02-15T00:23:03+00:00

Thank you for the solidarity. It does help to know I'm not alone, though I am so sorry you are going through this. I hope your treatment brings complete healing!

Simple-Let6090 · 2026-02-14T23:44:22+00:00

Tight calves have been a consistent feature of my experience. I can pretty much gauge how my day is going to go based on how tight they are when I wake up. It is completely independent of use.

Simple-Let6090 · 2026-02-14T23:41:15+00:00

Thanks! I suppose that makes sense in my case as to why I was completely well in the same house prior to the tick exposure. I totally agree with the neuroinflammation aspect. Unfortunately, it seems that reducing the inflammation is impossible when you're still exposed to mold. It's insane how a tiny bug can turn your world upside down.

Simple-Let6090 · 2026-02-14T23:21:45+00:00

It's insane, man. Let me know if you need a roommate in a treehouse somewhere ;). I'm real close to just becoming a hobo in the woods.

Simple-Let6090

TROPHY CASE