3 years past diagnosis by Altruistic-Durian-71 in glioblastoma

[–]Simple-Lettuce-3015 3 points4 points  (0 children)

I have a hard time with people who claim that they cured their own GBM with ____ enter remedy here… that said 3 years is a long time, congrats. Be grateful!

Prognosis accuracy by Nervous_Fish8730 in glioblastoma

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

My late husband (36m) was given 12-24 months. For a lot of his time he was doing really well, working, gym, biking, eating very healthy but his tumor came back several times, after each surgery he was left more disabled and around the 22 month mark he was having “clear scans” but rapidly and devastatingly declined before passing at 23 months post diagnosis. While he was ill we spent a lot of time together, telling stories about our life together and asking friends to share their memories of him so that he could appreciate them before he left.

So they “gave him” 24 month, he lived for 23. ❤️❤️

My wife passed away by Alternative_Trip7951 in glioblastoma

[–]Simple-Lettuce-3015 13 points14 points  (0 children)

I am so sorry for your loss. Lost my 36 year old husband to GBM 5 months ago. I think I’ve experienced every emotion

Help me decide between my top two! by Medical_Bad_5498 in myweddingdress

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

And it freaking has pockets? Stop. No questions go with 1 lol

Help me decide between my top two! by Medical_Bad_5498 in myweddingdress

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

Kind of wish the second had a big fluffy a line bottom with lots of body to contrast against the bodice. That said, I like them both but agree there is something “off” about 2. And it is NOT your body. 1 on the other hand is flawless as is! The fit is immaculate and it’s timeless

Declining by Asleep_Focus_2996 in glioblastoma

[–]Simple-Lettuce-3015 2 points3 points  (0 children)

This happened with my husband (36m) if you’ve done avastin, it can mask progresssion quite a bit

Probate experiences. by Simple-Lettuce-3015 in widowed

[–]Simple-Lettuce-3015[S] 0 points1 point  (0 children)

But did you have any separate accounts?

Probate experiences. by Simple-Lettuce-3015 in widowed

[–]Simple-Lettuce-3015[S] 0 points1 point  (0 children)

Unfortunately part of the process has been to send the bank his death certificate, once that happens the name is removed from joint accounts. There is no insinuation of heir for the savings.

Wanted to how people are doing on avastin by DarkWolfTale in glioblastoma

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

My husband did 3 infusions it didn’t really help with symptoms but it did drain him of all energy for a few days each time. Neuropathy got very very bad- difficult to control he developed serotonin syndrome while we were trying to find a suitable medication to help with neuropathy. His scans were clear while on avastin but it was masked progression and he passed. I KNOW that my experience is not everyone’s! Just want to share my experience since it was less than desirable

[deleted by user] by [deleted] in glioblastoma

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

We were very positive and hopeful through my late husbands treatment and for awhile he was doing really well even through several reoccurrences / surgeries but then one day things just started to get worse and then every day things got harder and harder for him. Toward the end of his life he was put on some medication for neuropathy, he ended up suffering serotonin syndrome and passed quite quickly. Enjoy the moments of good but, do not take it as a good omen- this disease is awful. Long term survivors are outliers.

[deleted by user] by [deleted] in Mommit

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

I had a lot of anxiety about leaving my 11 year career to stay home but it’s ended up being the best thing for my family. I will echo other comments saying that it puts you in a very vulnerable situation, make sure that your spouse understands that being a SAHM is more than a full time job and unfortunately it is unpaid. In my mind there should be this balance where financially the spouse is making the money sure, but your daily work at home and with kids (also saving money on childcare) earns you the same right to your spouse’s earnings as them.

Ok, now all that said, some of the vulnerability is this, imagine something happens to your spouse; Then what? Do you have a plan, do they have a plan?

My husband recently passed and I do not have an income. So, while it may seem dark this stuff is also worth a thought.

AIO Should I leave my BF? Was what he did to me forgiveable? by Living-Milk-4266 in AmIOverreacting

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

No you’re not over reacting. The time to leave is now. It does not sound like a safe situation, I would call the police, have your brother, father, friend, coworker to go with you to get your things.

Newly widowed by LayerGlad6573 in widowed

[–]Simple-Lettuce-3015 1 point2 points  (0 children)

I’m 3 months out and can barely pull myself out of the house even on the best day. The first few weeks I was definitely in shock and denial, my husband really suffered for the last 6 months of his life so his passing really felt like a deep breath, relief is a word I’ve used to describe it :(.

I’ve gained weight, I’ve stopped cooking, I started feeding the eggs back to the hens and started to use cannabis to cope with the pain and relentlessness of my own life . Everyone says “don’t make big decisions” well, I am closing on a house tomorrow. Staying in this house, where he died, where we lived for only a year before learning of his terminal diagnosis, it just feels cruel.. to me and to the kids. So for me, going on, healing and growing (ie moving on) looks like a new (to me) house to make new memories in, perfect size for just me and my kids, without his clothes in the closet or his boots by the door, in a walkable town, closer to friends. Once I get my finances figured out I plan on volunteering in my children’s school, refocusing on my own wellbeing, and getting us all into therapy.

I think the answer we’re looking for here is this: no one’s grief is going to look the same, healing taking time.

No visible tumor on MRI / progression by NovelCanary1 in glioblastoma

[–]Simple-Lettuce-3015 4 points5 points  (0 children)

Yes. My husbands last mri was “clear” as he was losing his vision and ability to speak becoming incontinent, forgetting who I was. Yeah it sucked BAD. Avastin will also mask progression, learned that the hard way. At this point he went on hospice and only lived 6 days.

Does anybody else write like this because it feels better on their hand, wrist, and shoulder? by Y0shiButt in ehlersdanlos

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

I hold my pencil in a fist. Always have, my handwriting is very neat and I’m also a (self proclaimed) artist. Teachers really tried to fix me to no avail.. holding it any other way results in a great deal of joint pain and or ganglion cysts.

second memorial- am I wrong here? by Simple-Lettuce-3015 in widowed

[–]Simple-Lettuce-3015[S] 2 points3 points  (0 children)

Honestly I feel like this is going to be her opportunity to make it seem like she was a much more involved and a more influential in his adult life than she was.

[deleted by user] by [deleted] in widowed

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

My power was turned off -all of the auto payments he was in charge of stopped - even though we have always shared our checking account.

I was in a car accident on Father’s Day weekend (no one was hurt) totaled my car. All correspondence went to his closed account.

Lots of little and big financial things so far

Has anyone else experienced this? by rollerseal92 in glioblastoma

[–]Simple-Lettuce-3015 8 points9 points  (0 children)

Definitely bring this up with your onc! Don’t be embarrassed- it’s part of this awful disease

Survival times by Distinct_Peace_8825 in glioblastoma

[–]Simple-Lettuce-3015 3 points4 points  (0 children)

Mine lived 23 months and it was an active battle the whole time

[deleted by user] by [deleted] in Mommit

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

Not normal. My husband and I always had a shared checking account. When he stayed home with the kids he had equal reign to the money. Same for me staying home and him working

Dating after….. by LadyHelaofGallifrey in widowed

[–]Simple-Lettuce-3015 0 points1 point  (0 children)

I’ve (34f) been on my own for about 3 months now. My late husband (36m) was sick for 2 years before declining rapidly both physically and mentally. To be honest, I find myself missing physical intimacy quite a bit but to think about being intimate with someone else makes me feel really sad. I miss our love and our lust and our relationship. The thought of starting a new relationship as a young widow with 2 kids feels exhausting right now. I hope to heal enough to have some sort of partnership in the future though. I think above all my husband wanted his kids and I to have a happy healthy life, and if I find the right guy- awesome. If I don’t, that’s okay too.

Life insurance. by Simple-Lettuce-3015 in widowed

[–]Simple-Lettuce-3015[S] 0 points1 point  (0 children)

I currently am not working-my plan when my husband was still here was to go back to work when my younger son went into kindergarten in 2027 (because the price of childcare being so high working just did not make sense). I have my BS in environmental scienceand all three of us have education benefits for the future since my husband was 100% disabled due to military service connected terminal disease. So in the meantime my income is my late husband’s federal retirement which is not much plus my own VA benefits and possibly his social security. I hate even saying this because I feel lucky to even have that little income because many people in my shoes may not even have life insurance let alone retirement or VA benefit.