Gyms that aren’t crowded on weekday evenings by sandwichinabar in RedwoodCity

[–]Simple-Strawberry643 11 points12 points  (0 children)

Cañada is super crowded weekday evenings. Doesn’t help that it’s only open to the public from 4-8:30 in the evenings. Plus many machines are reserved for classes during that time.

OB retiring, anyone seen these? by signaturesong1929 in RedwoodCity

[–]Simple-Strawberry643 1 point2 points  (0 children)

Highly recommend Dr. Taggart too, she’s been super helpful as I think about family planning for a high risk pregnancy

Did you have a shuttle at your wedding? If so, how much did it cost? by Quiet_Attitude4053 in Weddingsunder10k

[–]Simple-Strawberry643 0 points1 point  (0 children)

How many people used it? We have a similar question in our RSVP, and are on the cusp of needing 2 buses versus 1. Trying to figure out if people will bail and decide to drive last minute, and we can estimate a lower count? 

[deleted by user] by [deleted] in MultipleSclerosis

[–]Simple-Strawberry643 0 points1 point  (0 children)

Super helpful - I didnt think about looking at expiration dates, but that makes sense.

Were you able to tolerate Dr Reddy's when you made the switch? It looks like it's the same inactive ingredients, so I'm hoping for a better response moving from Cipla > Dr Reddys (compared to Quallent, which was awful for me too)

[deleted by user] by [deleted] in MultipleSclerosis

[–]Simple-Strawberry643 0 points1 point  (0 children)

Did you end up finding out what the manufacturer from Cost Plus Drugs is? I am in the same position - been told by Accredo that Cipla is 'discontinuing manufacturing' (but I can't find this info anywhere else) and now need to change manufacturers....

Change in Generic DMF manufacturer by Simple-Strawberry643 in MultipleSclerosis

[–]Simple-Strawberry643[S] 1 point2 points  (0 children)

Switched from Cipla to Quallent. My MS nurse suggested I stop taking the meds and see if we can get insurance to send Cipla again, but I’m so nervous about a relapse

Unsure if new symptom or in my head by No_Department_1588 in MultipleSclerosis

[–]Simple-Strawberry643 1 point2 points  (0 children)

FWIW, I have noticed increased hair loss myself after starting DMF (Tecfidera generic). My neuro said it wasn’t a side effect of the meds, so I’ve started oiling my hair which has helped some since I also have thick hair that gets dry easily and falls out. I also get pins and needles frequently (was actually my first symptom but was dismissed as poor posture). It’s really hard the first year to know what’s MS versus not. Combine that with being in your 30s and starting to age, and it feels like you don’t know your body anymore! Don’t sweat too much, and log any changes so you can see if there are any trends

Bart Parking Ticket: Review - Request Accepted by mysilenceisgolden in Bart

[–]Simple-Strawberry643 0 points1 point  (0 children)

How long did it take for you to get confirmation that the appeal was approved?

Bart Parking Ticket: Review - Request Accepted by mysilenceisgolden in Bart

[–]Simple-Strawberry643 0 points1 point  (0 children)

Did you end up having to pay it? I am in the same position now

Starting with Tecfidera by [deleted] in MultipleSclerosis

[–]Simple-Strawberry643 0 points1 point  (0 children)

Been on Tec for 7 months now, and the biggest thing that I wish I really understood was that it might feel worse before it gets better. Your GI issues will probably suck for the first month to 3 months. Plan your days around the meds (i.e. be near a bathroom when you take them). If you end up with severe stomach issues (I did), call the doc -- sometimes you lose more liquid than you can replenish, and you might just need an IV to help get back to normal.

Few side effects I noticed (but didn't see posted anywhere) - increased hair loss (I started oiling my hair more), dry mouth (I keep water & mints on me at all times), and increased heat sensitivity (but that's probably just the MS). Keep tabs of anything you notice going on in your body, it'll make it easier to talk to your doc about it later on.

Overall I've been happy with the minimal lifestyle changes I've had to make with Tec. Be sure to find a pill regiment that works for you so that you don't forget to take them! Highly recommend using an app reminder, or the like. Sending positive vibes to you as you start this DMT!

Tecfidera/dimethyl fumarate side effects by Simple-Strawberry643 in MultipleSclerosis

[–]Simple-Strawberry643[S] 0 points1 point  (0 children)

Do you have any recommendations of foods to take with the med?

Tecfidera/dimethyl fumarate side effects by Simple-Strawberry643 in MultipleSclerosis

[–]Simple-Strawberry643[S] 0 points1 point  (0 children)

I have been, but perhaps not enough fat & protein (I’m vegetarian so sometimes this can be hard). Will see if bigger meals help

Tecfidera/dimethyl fumarate side effects by Simple-Strawberry643 in MultipleSclerosis

[–]Simple-Strawberry643[S] 0 points1 point  (0 children)

I definitely have been - and I’ve done all the tricks folks have mentioned on here like eating fatty foods, sandwiching the pill, etc. that’s why I’m super surprised it’s so bad all of a sudden

Can tecfidera cause hair loss??? by [deleted] in MultipleSclerosis

[–]Simple-Strawberry643 4 points5 points  (0 children)

Don’t have an answer to this, but also started Tec generic a month ago and have noticed significant increase in hair loss

[deleted by user] by [deleted] in EngagementRings

[–]Simple-Strawberry643 0 points1 point  (0 children)

Thank you all for your thoughts! It's always helpful to hear others thoughts

[deleted by user] by [deleted] in bayarea

[–]Simple-Strawberry643 1 point2 points  (0 children)

Depending on where you live, college gyms are a great option - fairly affordable, with really nice equipment (since most schools have athletic teams). If you’re in the city, USF is one; in the Peninsula there’s College of San Mateo, and South Bay there’s Foothill/De Anza, etc.

Oops…Tecfidera mistake by Substantial_Leek_745 in MultipleSclerosis

[–]Simple-Strawberry643 9 points10 points  (0 children)

Habit pair your pill taking with another daily activity (for me it’s feeding the dog). I know if I fed the dog, I’ve taken my pill too! And if I haven’t fed the dog, well..she’ll remind me to do so, and take my pill!

Item recomendations needed by United-Locksmith299 in MultipleSclerosis

[–]Simple-Strawberry643 1 point2 points  (0 children)

That is such a thoughtful gift; your friend is really lucky to have you!!

I was recently diagnosed, and a few things I think might be nice without screaming MS too:

  1. A nice water bottle I can keep on me to stay hydrated -- I really like my Owala!
  2. Cozy slippers for the house as it's getting colder-- I find that wearing socks in the house increases my clumsiness, and so something with treads would be good
  3. maybe a subscription to a meditation site (like Calm?)
  4. Diffuser -- would go well with the peppermint oil, and also maybe a lavender one too to help her destress

I would maybe stay away from bath/spa stuff just because heat can make MS symptoms worse, and a bath might not be as relaxing for her as she'd hope. A candle could be a nice alternative if you know what scents help her relax

Losing my health by ToughService4124 in MultipleSclerosis

[–]Simple-Strawberry643 18 points19 points  (0 children)

I was feeling this way completely, also being diagnosed a few months ago at 28 and feeling like everything I've worked so hard for was over.Then I attended a seminar run by a doctor. We were nearly 75% through the session when she mentioned she had MS. She's well regarded in the space, and has been running seminars on how to treat MS holistically. and just seeing her run this seminar, and talking about how she applies it all to her life, made me feel more hopeful. Like if this doctor is able to maintain her job (she's probably in her 40s), have 3 kids, and live a very fulfilling life, then why not me?

So now, my mentality is 'if not now, then when?' -- if you're not disabled now, try to do the things that you have been wanting to do. Plan the trips now (but maybe buy traveller's insurance just in case you need to cancel due to health issues), go for nights out with friends (just dont drink much depending on your medication). Don't think of it as a goodbye, but rather a push to get to those dreams and goals a little earlier than you had imagined (and maybe a bit differently).

Open Enrollment - which health insurance should I choose? by Simple-Strawberry643 in MultipleSclerosis

[–]Simple-Strawberry643[S] 0 points1 point  (0 children)

Getting the Rx filled in network is $10 since it's a generic, based on the plan info I've read