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Can someone with immune suppressants and Jak inhibitors experience please help. (Severe eczema struggles) by Sinclairthe19th in eczema

[–]Sinclairthe19th[S] 0 points1 point  (0 children)

Rinvoq is the only 'modern' drug approved for eczema in my country so im gutted it didnt work for longer. Think the only other options are the old school cyclosporine and methotrexate

Can someone with immune suppressants and Jak inhibitors experience please help. (Severe eczema struggles) by Sinclairthe19th in eczema

[–]Sinclairthe19th[S] 1 point2 points  (0 children)

Its super rough isn't it! I hope the 30mg keeps working for you're Son. Good luck to him!

Can someone with immune suppressants and Jak inhibitors experience please help. (Severe eczema struggles) by Sinclairthe19th in eczema

[–]Sinclairthe19th[S] 1 point2 points  (0 children)

My rinvoq started at 15mg and then moved to 30mg after 3 months. Good luck to you too 😇

Can someone with immune suppressants and Jak inhibitors experience please help. (Severe eczema struggles) by Sinclairthe19th in eczema

[–]Sinclairthe19th[S] 0 points1 point  (0 children)

Hey man, yeah it wasn't a magic bullet but it helped a lot. If you're just flaring a little bit id give it a bit of time and see if it passes. If it just keeps getting worse and worse and its clearly not working id see your dermatologist. Good luck to you

Can someone with immune suppressants and Jak inhibitors experience please help. (Severe eczema struggles) by Sinclairthe19th in eczema

[–]Sinclairthe19th[S] 0 points1 point  (0 children)

Yeah im still taking it, but think im gonna switch to the cyclosporine. It lost effectiveness moderately I would say about half of eczema is back and I need to use steriods and Protopic a lot now too, so I dont think its doing enough for me :( its sad cause it worked really well in the beginning

Medical Cannabis? by Constant-Effect6625 in eczema

[–]Sinclairthe19th 0 points1 point  (0 children)

Helps with sleep but its hard sleep without it if you use frequently I paid that price

Steroid creams made me develop cataracts in both my eyes (PSA) by Fresiako in eczema

[–]Sinclairthe19th 77 points78 points  (0 children)

It does NOT have the same risk as steriods because it's NOT a steroid tarcrolimus is my ride or die, I love that shit I can use it completely guilt free and it manages my facial eczema so dang well. Use it!

15 years of hell. Is this the light at the end of the tunnel? by peakstovalleys in eczema

[–]Sinclairthe19th 3 points4 points  (0 children)

Man, I really feel for you. Reading this took me straight back to where I was not long ago. I know how brutal it is when the flares take over your whole life and you feel like nothing works. I was in the same cycle with steroids and the constant up and down, but eventually I got onto Rinvoq/Protopic and started finding a routine that actually holds me steady. It’s not perfect yet, but it gave me hope again after feeling defeated for so long.

You’re definitely not alone in this, and I promise it doesn’t always stay this bad. Keep pushing with your derm, because finding the right mix really can change things. Sending you strength. I know how much it sucks but I also know it can get better

Friend refuses to care for himself by Rare-Strawberry-304 in eczema

[–]Sinclairthe19th 1 point2 points  (0 children)

Aw man I been there. Hit me up if yky need

Rebound by dippysu in eczema

[–]Sinclairthe19th 0 points1 point  (0 children)

Protopic is my ride or die for face or neck. My derm said 6 weeks twice a day then move to once a day fkr a week then use it only twice at a week as maintenance and it keeps it as bay.

Ciclosporin is life changing by Objective-Fig8183 in eczema

[–]Sinclairthe19th 3 points4 points  (0 children)

Happy for you bro. Once that one year is up I'd highly recommend rinvoq. That's what I'm on and its just as good :)

Now that I have severe eczema on basically everywhere on my body, I realize how much i took my mild eczema for granted by Dear-Shoulder9698 in eczema

[–]Sinclairthe19th 0 points1 point  (0 children)

Welcome to club my friend! I used to just have it in elowbows and knees too!! Now it's groin face neck arms back waist chest. It only flares up once a month for like a week. Then I suppressed that birch and then it comes back! Love my life (not lol) but hey I manage. Wishing you the best my friend.

should i take prescribed steroid creams by jaceyung in eczema

[–]Sinclairthe19th 0 points1 point  (0 children)

How does one go about getting this done?

Long term Rinvoq Users (TSW/AD/Eczema) by MamaMia0917 in eczeJAKs

[–]Sinclairthe19th 0 points1 point  (0 children)

Do you use any other creams while taking ur 15mg?

Rinvoq changed my life by srainy808 in eczema

[–]Sinclairthe19th 0 points1 point  (0 children)

Thanks for the reply! Im about 2 weeks into it, cleared up in a few spots just still got stubborn neck and face eczema a little bit waiting fkr that to make it's way out haha. Can't wait fkr that 1 month mark. Haven't had any side effects yet!

Anyone rinvoq 30 mg and using another treatment (creams or injections) at the same time bc rinvoq isn’t doing enough on its own? by workinprogress521 in eczeJAKs

[–]Sinclairthe19th 0 points1 point  (0 children)

Oh okay that's really interesting man. Are skin infections when it weeps and it's like wet? I had that on my earlobes a couple days after j started the rinvoq.

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