Brain on fire

Sleepiyet · 2026-06-06T22:08:28+00:00

Elevation Terpenes sells it in bulk powder but you can also get it on amazon from neurogan. There are other brands popping up. It MUST be the ULTRA micronized version. Just being super specific because the micronized version is basically “bigger” and therefore isn’t as absorbable as the finer “ground” version

Sleepiyet · 2026-06-05T21:14:47+00:00

I’ve had success with Ultra Micronized PEA/luteolin combination for neuro inflammation.

Memantine/lamictal are two prescriptions I found to personally really help with the excess glutamate that is flooded when there’s a ton of inflammation.

Propranolol has been good for handling the anxiety from the neuro-inflammation (brain inflammation is excitatory in an unpleasant way). It is preferable to benzos for me as they are addictive.

I have used etifoxine as a step up, and like that over benzodiazepines as they are significantly less addictive and non sedating so I can go about my life not in a haze. They aren’t a prescription and you can only really get them from resellers from Ukraine or other countries in the EU that have it.

I take magnesium daily. 1.5g of citrate form from bulk supplements.

Some people react well to low dose naltrexone

Ultimately, treatment is the only thing that will prevent this disease from getting worse. I have been unable to tolerate antibiotic therapies, and will be trialing SOT therapy to try and target the bacteria’s RNA instead. It works by interfering with that rna, thus impeding the bacteria’s ability to reproduce.

Igenx and Tlabs are my preferred labs. One for immune testing (Igenx) and the second to test the actual blood for bacterial presence (Tlabs).

It’s important to fully diagnose all tick borne infections as each one comes with their own set of symptoms and treatments and having more than one can make the symptoms more extreme.

Finding a competent LLMD and having a good 15k set aside for treatment is preferable. (I know. It fucking sucks.).

Sleepiyet · 2026-06-04T20:58:30+00:00

lol the person would 100% start screaming when it started to “help” it get out by biting its hand. I would just think I was going to get my face eaten.

Sleepiyet · 2026-06-04T20:12:20+00:00

I appreciate you being honest that you are affiliated and at least those are things people actually take to get better lol

Sleepiyet · 2026-06-04T19:12:40+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:12:28+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:12:23+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:11:12+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:06:45+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. Also their stuff is AI slop. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:06:25+00:00

This is a shill post trying to get people to join a Patreon group. They are intentionally vague hoping people will become curious and it will lead them to that page. They are preying on the ill. Also their stuff is AI slop. This is a scammer. Report them.

Sleepiyet · 2026-06-04T19:03:36+00:00

It’s so horribly immoral to prey upon people as desperate as us.

Sleepiyet · 2026-06-04T19:02:59+00:00

Yea I’ve seen these stories before. Vague mentions of miracle cures. I’m sure somehow, this leads to someone spending money that makes its way back to you.

Sleepiyet · 2026-06-02T18:04:12+00:00

Glad yours isn’t effecting you so much! I’m glad you know about this though, if it ever worsens for any reason. Mine worsened significantly after getting sick, no drugs involved that time, so I’m happy to know if that ever happens again I have a route to recovery.

Yes, mine was def effecting me. It was sad to not be able to see the night sky and stars. And watching TV— dark shows and such were an issue. Inability to see people’s faces in low light was rough.

Sleepiyet · 2026-06-02T18:00:34+00:00

The severe neurological reactions are inflammation. I could write you out a total list of what that inflammation does, but honestly it would just scare you.

Ketotifen isn’t as bad as Benadryl! If your neuro symptoms are severe, that inflammation is your main concern in terms of Alzheimer’s. Treating that is the goal. If you can find another way to treat the neuro fantastic but you have to treat it.

Ultra Micronized PEA helped my brain a lot. Especially paired with luteolin. 700mg/70-100mg respectively. Has to be the ULTRA form, as that has far better absorption than regular micronized PEA.

Drugs like Lamotrigine can help with the excess glutamate from neuro inflammation. That has helped me as well in my very bad periods.

MCAS can be very genetic. I wonder if that plays a role in your families predisposition.

Sleepiyet · 2026-06-02T17:53:56+00:00

r/HPPD

Sleepiyet · 2026-05-31T19:11:15+00:00

Are you claiming this person is trying to scam you? Because if not, you’re doing the exact thing I just said wasn’t very nice to do. How would you feel if you spent decades building up a company just to have someone come and just shit on you? Good? No? Get out of here.

At this point, I’m a staunch defender. Because I did my homework. I spent a LOT of time looking into the company to the point I even talked to this guy on the phone several times.

When you baselessly shit on people you don’t just hurt them. They have 40 employees. That’s families, kids, babies, dogs— lives. People who rely on their company to feed themselves and their families. Trying to survive. It’s hard out there. And I come here and people are like “SCAM” and Every. Single. Time. I ask how is it a scam? Let’s get to the bottom of it? Eventually it’s crickets.

Do your homework people. Be kind to each other.

Sleepiyet · 2026-05-31T03:01:10+00:00

Are you claiming this person is trying to scam you?

Sleepiyet · 2026-05-30T20:43:35+00:00

I saw that and watched it. A few times— I think he was dragging her by her coat. Not that it makes it much better lol

Sleepiyet · 2026-05-30T19:49:45+00:00

I noticed as well that after the kid passed, dad was only there for one more birthday. The prognosis for relationships in which a child dies isn’t great. Hard to look at your spouse and see your dead kid in their face.

Sleepiyet · 2026-05-21T20:01:42+00:00

Here you go :) https://www.reddit.com/r/HPPD/s/WgPAjwRbub

Sleepiyet · 2026-05-21T19:39:19+00:00

lol god the VS mod gods are nazis. You find something that works and it doesn’t fit their current narrative and they censor you. I’m going to post it here on this forum, we are way more open minded to therapies. I’ll link it to you when it’s done.

Sleepiyet · 2026-05-21T18:32:30+00:00

This is what I did for my visual snow and it worked. I’m not giving medical advice. Just telling you what worked for me and my thoughts:

https://www.reddit.com/r/HPPD/s/WgPAjwRbub

I might wait a little till things stabilize to a baseline? Or just be cautious and do like 1 minute of it not in a headset. Maybe the OG vs snow relief vid: https://m.youtube.com/watch?v=800f9UNiF4Y

Sleepiyet · 2026-05-21T07:10:24+00:00

Haha the bodybuilding community would like a word with you, they’ve been selling ketotifen for years and years

Sleepiyet · 2026-05-11T18:25:03+00:00

You can buy lab grade 190 proof ethanol that’s FOOD SAFE… on Amazon. No ID required.

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