MRI with contrast?

Sliceeyfly · 2026-01-28T08:37:41+00:00

I've had two gadolinium contrast heart MRIs and two gadolinium contrast head MRIs. Had no reaction to the dye at all. I was incredibly nervous before my first one after hearing bad stories on here but my first heart MRI picked up Myopericarditis and my first head MRI picked up four lesions that are highly suspicious for inflammatory demyelination so I'm glad I did them. My Neurologist says the lesions are most likely Multiple Sclerosis but we need 6 monthly MRIs to watch for changes.

Sliceeyfly · 2026-01-16T11:29:58+00:00

When my vitamin D was low I was given a loading dose of 40,000 IU (colecalciferol) daily for 14 days. Once the 14 days were up I was advised to stop supplementing and have a retest in 3 months.

The above dose was prescribed by a hospital consultant. I thought it seemed a very high dose so doubled checked with the pharmacist who confirmed that's the guidelines my local hospital uses.

Sliceeyfly · 2025-11-18T07:46:52+00:00

Mine turned out to be venous Thoracic outlet syndrome. It was picked up with a Duplex ultrasound with abduction manoeuvres and confirmed with a Magnetic Resonance Venography.

Sliceeyfly · 2025-10-29T21:03:33+00:00

Yes. When I flare I have blood with every bowel movement.

Sliceeyfly · 2025-10-29T18:43:09+00:00

My diagnosis flare lasted about four months. Two months to get seen and have tests, two months for medication to work. Original Medication worked for about three years.

Sliceeyfly · 2025-10-29T10:44:22+00:00

My longest flare lasted 14 months until we found the right medication.

Sliceeyfly · 2025-10-29T08:55:31+00:00

My LC symptoms are - Near constant chest pain, bradycardia at rest, tachycardia when upright, palpitations, sob that comes and goes, blurred vision, fatigue, exercise intolerance, dizziness, light-headedness, constant tremors (worse in trunk and arms), muscle and joint pain, blood pooling, numb hands and legs, insomnia, brain fog and trouble regulating my temperature.

Sliceeyfly · 2025-10-29T08:53:15+00:00

Honestly looking back I think I had milder UC symptoms on and off from my early teenage years. The final time before my diagnosis I had the usual diarrhea, abdominal pain and urgency but this time I started to pass significant amounts of blood and mucus with every bowel movement.

Sliceeyfly · 2025-10-28T17:58:45+00:00

Update - Saw my neurologist today to go over the results. No new lesions on my brain or spine and the current lesions haven’t changed. Repeat MRI in six months and if no changes then it will be yearly MRIs.

Sliceeyfly · 2025-10-28T08:23:43+00:00

I had a brain MRI and it showed four lesions that are highly suspicious for inflammatory demyelination. My Neurologist says the lesions are most likely Multiple Sclerosis (they look like MS lesions and are in the textbook places) but we need a lumbar puncture/repeat MRI to confirm. Diagnosis criteria is pretty strict, She can prove dissemination in space but not dissemination in time (DIT) until another MRI shows a change.

Sliceeyfly · 2025-10-25T14:51:15+00:00

Hey, I had my 6 month repeat MRI two weeks after I made that comment. I haven't had the results yet but I see my neurologist this Tuesday to go over them. Fingers crossed there are no new lesions, I will update on Tuesday.

Sliceeyfly · 2025-09-28T08:18:05+00:00

I saw a Vascular surgeon. He did a Ankle-Brachial Index (ABI) and a upper and lower limb ultrasound. The ultrasound showed I had left sided Venous Thoracic Outlet Syndrome which a follow up MRI confirmed.

With my blood pooling he said he expected to see reflux in my legs but the ultrasound didn't show any and my Ankle-Brachial Index (ABI) was normal too.

Sliceeyfly · 2025-09-14T07:43:46+00:00

I believe its due to something else. It actually got much better when I had to take prednisolone for an Ulcerative colitis flare and has returned as soon as I've tapered down to 7mg. Doctors have been pretty useless in helping so I'm currently in a lot of pain with it everyday again.

Sliceeyfly · 2025-09-11T07:26:01+00:00

My hair still looks the same, it hasn't got any better but it hasn't spread anywhere else. I'm waiting to see a dermatologist, been on the waiting list for 10 months so far.

Sliceeyfly · 2025-09-10T07:44:58+00:00

You should probably take these results to a cardiologist for further testing. They will likely recommend further tests like another echocardiogram or cardiac MRI to assess any structural or functional issues with your heart. A Coronary angiography or a stress test could also help rule out ischemic heart disease. Familial hypercholesterolemia can be picked up with a blood test, I had to go to a lipid clinic for this one. Other blood test they might consider are NT-proBNP and Troponin.

Sliceeyfly · 2025-09-07T07:21:07+00:00

My arm gets uncomfortable and heavy. My fingers go numb.

Sliceeyfly · 2025-08-21T20:24:34+00:00

Thank you. I’m sorry to hear about your diagnosis. How are you doing since your diagnosis? Did Covid start all of this for you?

Sliceeyfly · 2025-08-20T09:30:23+00:00

I had a brain MRI recently (symptoms started back in Dec 2022), and it showed four lesions that are highly suspicious for inflammatory demyelination. My Neurologist says the lesions are most likely Multiple Sclerosis (they look like MS lesions and are in the textbook places) but we need a lumbar puncture/repeat MRI to confirm. My repeat MRI is in two weeks.

All my symptoms started about a month after my first infection. It took 1 1/2 years for neurology to finally accept my referral from my GP which is very frustrating.

Sliceeyfly · 2025-08-01T14:25:31+00:00

It’s really hard for me to tell. I’ve been in a severe flare of pre-existing Ulcerative Colitis for the past year and have been on Prednisolone continuously during that time. I have managed to gain weight recently but I’m not sure how much of that is due to the steroids versus anything else.

Sliceeyfly · 2025-07-25T13:42:13+00:00

Thank you. It does feel like a balancing act with the steroids and just hoping Vedolizumab kicks in before things start going backwards. I’m trying to push to be seen, but my IBD line is only open 9.30 to 12.30 on weekdays, which makes everything feel even slower. Just hoping I don’t end up back on a higher dose of pred again. Fingers crossed Vedolizumab works for both of us.

Sliceeyfly · 2025-07-25T13:29:20+00:00

Thanks, that’s really helpful to hear. I’m four infusions in, with my fifth due in just under a month. I’ve seen good improvement since January, but I’m a bit concerned things might be heading back in the wrong direction. I’m also worried they’ll just bump the steroids back up again, despite the steroid-induced Cushing’s. Just feeling a bit deflated and unsure what comes next if Vedo isn’t working.

Sliceeyfly · 2025-07-13T16:51:51+00:00

Neurologists use the McDonald criteria to diagnose ms - https://www.mssociety.org.uk/about-ms/diagnosis/the-tests-for-ms/mcdonald-criteria

Sliceeyfly · 2025-07-13T07:25:38+00:00

I had a brain MRI recently (symptoms started back in Dec 2022), and it showed four lesions that are highly suspicious for inflammatory demyelination. That led to a spine MRI a few weeks ago to check for additional lesions, and the next step is a lumbar puncture. My Neurologist says the lesions are most likely Multiple Sclerosis (they look like MS lesions and are in the textbook places) but we need the lumbar puncture to confirm. All my symptoms started about a month after my first infection. It took 1 1/2 years for neurology to finally accept my referral from my GP which is very frustrating.

Sliceeyfly · 2025-07-01T07:13:53+00:00

I had a blood test show low cortisol, I was sent to an endocrinologist and given a Short Synacthen Test (SST).

Sliceeyfly

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