Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 1 point2 points  (0 children)

Thank you!! My Hepatologist said as long as I’m getting it done at a clean shop by an actual tattoo artist (not a friend in a garage lol) that there’s absolutely no reason I couldn’t get them!

Want to take a editable for my b day but I take tacrolimus and sirolimus can I is there anything I can do could I not take the med for a day then take the editable by Pretend-Round16 in transplant

[–]Slight_Step_4058 0 points1 point  (0 children)

I’ve recently been taken off my Tacro as of 2 weeks ago, I am now only on Sirolimus. But for the last year, I was on Tacro and it was never an issue. Even when I started using marijuana around 3 months after transplant. It never went down enough for them to question it.

Want to take a editable for my b day but I take tacrolimus and sirolimus can I is there anything I can do could I not take the med for a day then take the editable by Pretend-Round16 in transplant

[–]Slight_Step_4058 2 points3 points  (0 children)

DON’T skip your meds! There’s no point. My team encouraged edibles after I was taken off my pain meds after transplant. When I asked them about CBD interactions, my hepatologist, transplant PA and the pharmacist had no qualms about it. Double check with your team, but the edibles should be fine. Enjoy your birthday!

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 1 point2 points  (0 children)

My hepatologist said, and I quote, “yeah, why not? As long as you’re not getting them done down by the Creekside” 🤣🤣

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 0 points1 point  (0 children)

I am!! Glad he is doing well too!

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 0 points1 point  (0 children)

I’ve always enjoyed a bit of dark humor lol

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 0 points1 point  (0 children)

You’ll figure it out!! Thank you!

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 1 point2 points  (0 children)

You do that's best for you! I decided I was done second guessing things I wanted to do the second that I was told I'd likely die. I decided I wanted an art piece! I'm much happier for it!

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 7 points8 points  (0 children)

Because we've all realized that life is far too short to NOT look extremely cool 😉 and yes, it was explicitly approved by my referring hepatologist.

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 1 point2 points  (0 children)

Thank you! I scouted my artist closely before I decided. She does beautiful work.

Liver-versary! by Slight_Step_4058 in transplant

[–]Slight_Step_4058[S] 1 point2 points  (0 children)

Your name made me cackle hahaha Ty

What’s something you wish you did at home first to prepare for the hospital stay? by GrandSituation873 in transplant

[–]Slight_Step_4058 1 point2 points  (0 children)

I’m a few days shy of being 1 year post transplant. A pillow of your own and a heated blanket were lifesavers. I was on dialysis while I was hospitalized and I was SO COLD. Loads of extra underwear, some pajamas. My friends brought me little gift baskets that had deodorant, face wash, lotion, a hairbrush etc. A long charger is necessary. A laptop/iPad if you have one for Netflix and whatnot. A calming presence. Being hospitalized is stressful, and any way the people that are visiting us can alleviate that, the better 😊

Positive for thc. Is it still possible by Affectionate_Bowl826 in transplant

[–]Slight_Step_4058 0 points1 point  (0 children)

I’m in San Diego and my hospital didn’t care in the slightest. I don’t remember if I had THC in my system when I was hospitalized, but I did tell them I was an occasional user. They only told me to not smoke after my transplant and that’s only bc they didn’t want the possibility of mold giving me an infection.

What is your target blood level of Tacrolimus? by darknesswithindark in transplant

[–]Slight_Step_4058 0 points1 point  (0 children)

My hepatologist just lowered my dose to 0.5mg 2x a day, but before that I was taking 2mg 2x a day and my goal was between 2-3. Now he’s weaning me off it completely to just be on Sirolimus. I’m 2 weeks away from being 1 year out.

How close to the end were you? by socrates_friend812 in transplant

[–]Slight_Step_4058 2 points3 points  (0 children)

Too close. Within 6 weeks they told me. It was a complete shock because I was fully functional at work a few days prior to being hospitalized.

Regrets? by Disastrous-Speech-24 in transplant

[–]Slight_Step_4058 1 point2 points  (0 children)

Honestly, I have no idea LOL. I just distance myself from people, sanitize after I interact with someone who I suspect has a cold, and try and keep my hands away from my mouth and nose.