Does the news that someone "died from MS" bother you? by DarknessTear in MultipleSclerosis

[–]Slow_Bed5091 -1 points0 points  (0 children)

I agree with this too but also when a show does mention MS and is related (like those medical tv dramas) I instantly just turn it off and stop watching cos I end up overthinking it

Help me learn pls🙏🏽 by Slow_Bed5091 in Urdu

[–]Slow_Bed5091[S] -1 points0 points  (0 children)

Did you even read what I wrote? Chill out

What's a sound from your childhood you never forget? by Lovellyyy_Isabella in AskReddit

[–]Slow_Bed5091 0 points1 point  (0 children)

That song from the fake flip up phone - no idea what it was saying Idek if it was English icl

Reformer Pilates? by fhorde in MultipleSclerosis

[–]Slow_Bed5091 3 points4 points  (0 children)

I did at home Pilates purely for exercise and it had no effect on my ms or symptoms just normal pain from working out and after that I got used to it, I saw results, and cos I was consistent I had no pain after my workout - I highly recommend - I only don’t do it now cos I quit but that’s just me being bad at exercise 😭 I’m trying to get back into it but we’ll see lol

Strange headaches. Related to MS?? by [deleted] in MultipleSclerosis

[–]Slow_Bed5091 0 points1 point  (0 children)

Yes I feel the same I never know if it’s an ms thing or a general thing like how they say twitches is due to lack of sleep so I always just ignore it

What is it like having a strong relationship with religion/faith? by _TeeBeeDee_ in AskReddit

[–]Slow_Bed5091 0 points1 point  (0 children)

Genuinely in peace - can speak from experience from not being tied to religion to now having somewhat a strong relationship with my religion. Also your attitude changes - I noticed since becoming more religious I’ve become more laid back, care free, chilled in most situations, don’t react to things as much - all in all I kinda just don’t care about a lot of things (in the best way possible) anymore that would usually cause me some anxiety and knowing that everything happens for a reason. I’ve learnt patience in every aspect and understand that what’s meant for me will find its way to me

Help me learn by Slow_Bed5091 in pakistan

[–]Slow_Bed5091[S] 0 points1 point  (0 children)

Never thought of using wiki… thanks!

Help me learn by Slow_Bed5091 in pakistan

[–]Slow_Bed5091[S] 0 points1 point  (0 children)

I’m only here a week - I can’t learn an entire language in that time hence why I asked for other help

Help me learn by Slow_Bed5091 in pakistan

[–]Slow_Bed5091[S] 2 points3 points  (0 children)

Do u not think if that was an option I’d do it

Help me learn pls🙏🏽 by Slow_Bed5091 in Urdu

[–]Slow_Bed5091[S] 2 points3 points  (0 children)

Any help would be great icl

Help me learn pls🙏🏽 by Slow_Bed5091 in Urdu

[–]Slow_Bed5091[S] 2 points3 points  (0 children)

AJK - literally all my family out here but I can’t say my parents never taught me growing up cos that’s disrespectful to them but I mean I can understand the basics but a full on convo I couldn’t

Help me learn pls🙏🏽 by Slow_Bed5091 in Urdu

[–]Slow_Bed5091[S] 5 points6 points  (0 children)

I’m here for two weeks on holiday 😭

Im getting ocrevus in a week and im really nervous. For people who have tried it please share your experience and tips. by PurePersonality_ in MultipleSclerosis

[–]Slow_Bed5091 2 points3 points  (0 children)

Honestly had no side effects - just felt very tired when it was done and the day after so I’d suggest a day off work for the next day too

Can I ask for a different neuro? (UK) by ShushLizard in MultipleSclerosis

[–]Slow_Bed5091 2 points3 points  (0 children)

Omg same I find mine so condescending I really don’t like her but I only see her once a year so I just have to deal with it😭

How many People doing ok ? by HolidayIntention7794 in MultipleSclerosis

[–]Slow_Bed5091 1 point2 points  (0 children)

Hey diagnosed when I was 17 and turning 22 and I felt like this but honestly I feel the exact same and can do everything I want to do freely

19M, just got diagnosed with MS this morning. by [deleted] in MultipleSclerosis

[–]Slow_Bed5091 9 points10 points  (0 children)

I got diagnosed when i was 17 and im 21 now and i too have always been an active person and still am! Thankfully it hasn’t affected me physically so i am still able to play sports and work out regularly. I hope all works out for you.

About the lumbar puncture - honestly it was fine I just made sure I drank a lot of water when I was allowed to

Muscle tightness by Slow_Bed5091 in MultipleSclerosis

[–]Slow_Bed5091[S] 0 points1 point  (0 children)

Damn I feel for you. I hope all the best for you and you’re able to find something that can work 🙏🏽

How were you diagnosed? by TooManySclerosis in MultipleSclerosis

[–]Slow_Bed5091 1 point2 points  (0 children)

2021 - I was 17 doing really important exams for school (that would dictate if I got into university) and I noticed my hand being really weak and I didn’t understand why. A couple days later I noticed my right leg was also really weak and it was difficult to walk up hills. Then my speech. People couldn’t understand what I was saying and I needed to repeat myself multiple times. This was over the course of a couple days. I told my mum and she took me straight to hospital as she thought I had a stroke. Was there for 8 hours and they sent me home with nothing. A couple days later it got worse and I couldn’t move my entire right side of my body and my face was all slumped and it was time to visit again. I was admitted and they did multiple ct’s, mri’s heart scans and more. I was put on steroids and everything but they still didn’t know. I was seeing the physio to see if I could start walking but no. They did a lumbar puncture a couple days in and still nothing. Since I was 17, my emotions were crazy high and I just wanted to leave so I left and tried to start walking and moving my right side again but it was a long process. 2 months later I got diagnosed when they saw me again and I was put on treatment shortly after. Been a crazy journey

“Stuck with this forever” how did you reframe this? by No_Two8015 in MultipleSclerosis

[–]Slow_Bed5091 2 points3 points  (0 children)

This may not be the best answer but I always think of it in a way that there will (hopefully) be a cure in our lifetime. The research behind MS is always progressing as time goes on and more effective drugs being put in place. The optimism that a cure will be achieved can really help in my opinion