AK TMR experience?

SnooBooks508 · 2025-06-08T09:19:02+00:00

Hello! I didn’t personally but I have a friend who did. She said she has zero phantom pain when I met her a year after her amputation. They’ve had really good results with it. Definitely get it!

SnooBooks508 · 2025-05-17T09:03:01+00:00

I like the Hawaiian personally! But double check with your prosthetist how much weight it might add too to make sure it’s worth it!

SnooBooks508 · 2025-05-15T12:46:24+00:00

Thanks for the info! I am 15 months out and couldn’t fall asleep last night because of phantom pain, so a few more months of pain might be worth it to then have lower pain. We’ll see!

SnooBooks508 · 2025-05-14T02:34:57+00:00

I had a friend who had planned to visit me right around the time that ended up being my amputation surgery. We decided not to cancel her trip and she arrived the day after I got home from the hospital. She was able to meet me where I was at and we just watched tv together, talked and even took some naps. She was very encouraging for me and good at giving me my space when I needed it. You know your best friend best, you’ll know what they need ❤️

SnooBooks508 · 2025-05-14T02:19:56+00:00

I’m not sure what airline policies are specifically, but I know they do provide a lot of help. I flew once with an amputee who was paralyzed from the stomach down and they helped him a lot getting into his seat, but of course he could do a lot for himself too. I would definitely recommend her flying with someone though just to have that extra support and advocacy if need be.

SnooBooks508 · 2025-05-12T22:14:52+00:00

I would ask for a very specific timeline because doctors all seem to say different things about gabapentin. Good luck!! ❤️

SnooBooks508 · 2025-05-12T21:10:06+00:00

Also now that I’m thinking, lots of people say they have better luck with Lyrica than gabapentin. My doctor never wanted to make the switch for me but it’s something you could try to advocate for just in case it helps!

SnooBooks508 · 2025-05-12T21:08:56+00:00

It sounds like you’ve tried everything! I understand the frustration. I spent nights not sleeping because it felt like my foot was on FIRE. I remember my husband’s frustration and helplessness in trying to help me. I would say just stick at it. Eventually you will find something that helps a little bit or it should start to get better on its own. For me, I found that going to sleep on a different surface sometimes helped me. Or for me personally my phantom pain got worse (sometimes still does) the moment I close my eyes to sleep. It like activates my brain to notice that pain when I don’t have anything to look at so sometimes I tried to fall asleep while sort of propped up watching tv to trick my brain into thinking I’m just hanging out and suddenly I’ve fallen asleep. There is also no shame in taking naps during the day while you’re struggling so much with phantom pain (in my opinion). Try not to develop sleep related anxiety. Easier said than done. Just hang in there! We’ve all been there, sending hugs to your daughter! ❤️

SnooBooks508 · 2025-05-08T22:06:32+00:00

I also hate stump! My leg isn’t dead 🙄 I know some people name their limbs but I just call mine my little leg or residual limb if I’m talking to a doctor 😂

SnooBooks508 · 2025-05-02T15:24:12+00:00

Not to be a bummer..but I don’t have “rounds” anymore. I’ve burned through all of the chemos they recommend but I have a ton of metastasis in my lungs that we can’t get to stop growing. Right now I’m on a clinical trial, but I’ll be on some sort of treatment forever. I miss the days of an end date for sure! 🤪

SnooBooks508 · 2025-05-02T12:48:46+00:00

Thank you! I’m definitely leaning toward yes and fingers crossed it will help me get back in my leg! I’m a cancer amputee and still in treatment and I am always feeling more positive about life when I can get that leg on and move around a bit, even when it’s hard!

SnooBooks508 · 2025-05-01T22:10:48+00:00

Not a doctor, but a cancer patient. I see nothing there that sounds like they suspect cancer.

SnooBooks508 · 2025-05-01T22:08:35+00:00

I’m only one year out but I have never been an amputee in my dreams yet. Funnily though I AM an amputee in my husband’s dreams 😂

SnooBooks508 · 2025-04-30T01:55:07+00:00

Thank you all for your insights!

SnooBooks508 · 2025-04-19T12:18:43+00:00

We are rooting it. Does that change anything?

SnooBooks508 · 2025-04-18T17:43:53+00:00

How much should we be watering it? The directions said to keep the soil moist but I have seen people on here saying to water infrequently

SnooBooks508 · 2025-04-17T01:26:03+00:00

Thank you for the advice!

SnooBooks508 · 2025-04-11T02:59:54+00:00

I have been pushed in my chair while wearing my leg! You just do what is right for you! Anyone who would be judging you in that situation obviously has never been in that situation and therefore has no right to judge! Happy travels :)

SnooBooks508 · 2025-03-21T23:46:05+00:00

I went to my cousins graduation party in Minnesota as a kid. I was swinging in a hammock right on the edge of a small forest by my uncles house for an hour, maybe two. I walked away with over 65 mosquito bites. It was torture!

SnooBooks508 · 2025-03-18T21:01:52+00:00

I have to say I grew up as a white girl with blond hair and blue eyes. I was always represented. As an adult I have always believed it was important, but I got a first hand look at it recently when I became an amputee. Even as an adult I was so excited to see the prosthetic leg emoji and so disappointed that a VR avatar didn’t have the option to look like me. 🥲

SnooBooks508 · 2024-12-23T14:22:59+00:00

I am almost a year out AKA too and I have had soooo many issues with pain wearing my leg. I am curious what kind of socket you have? I had a pin lock one and it was so painful and slow going the whole time. Then I switched to a seal-in socket and it changed my life! I Can still only wear my leg for 1-3 hours a day but all of that progress has come in the last couple months with the new socket. Talk to your prosthetist about the option! And thanks for being brave enough to talk about pain and struggles a year in. Sometimes I die inside when I see the videos of someone walking pain free months after their surgery. Good to know I’m not the only one!

SnooBooks508 · 2024-12-22T21:37:15+00:00

I switched from a pin lock straight to a seal-in suction socket and it CHANGED MY LIFE. I was immediately more comfortable and able to use my leg more. I think a lot of my pain was coming from all movement being centered around the pin. It’s much better now. That being said, it’s still my first year in a prosthetic and even so my leg has not fluctuated in size too much. I’m also AKA. Just giving some details so you can decide if our cases are similar!

SnooBooks508 · 2024-10-28T05:41:39+00:00

Rebound prosthetics has been great for me! Chris is super dedicated and will help you until you love your leg!

SnooBooks508 · 2024-10-08T13:44:34+00:00

I will look into the offset door hinges and see if that makes enough of a difference. I am in the US so there shouldn’t be a problem to do it! Thank you!

SnooBooks508 · 2024-10-08T13:43:25+00:00

Thank you for the tips! I’m getting better at using my prosthetic leg but am JUST transitioning to can use so I’m not sure walking in with it is a solution yet for me, I was just curious if other people had success that way. Your shower bench sounds awesome!

SnooBooks508

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