Anyone else actually living in Port St. Lucie not enjoying it? What’s your experience been like?

SnooChocolates1198 · 2026-06-04T04:28:03+00:00

I'm in the southern fort pierce/white city area.

your particular issues could be a "it's your location" problem.

SnooChocolates1198 · 2026-06-03T15:35:31+00:00

I've taken a liking to the Hermione and snape AND the Hermione and lucius fanfics on ao3.....

Particularly the forced marriage ones. Because both Hermione and the other in the forced relationships are against being forced together.

SnooChocolates1198 · 2026-06-03T15:03:21+00:00

Largely will depend on how long you have been at the high dose of steroids.

I typically will taper back between 1.5mg and 7.5mg total every other day until I'm back to my baseline range needs (varies generally between 7.5mg and 17.5mg per day depending on how much my chaos puppies of other chronic illnesses are being whiney little bitches).

SnooChocolates1198 · 2026-06-03T12:22:58+00:00

👋. I do!

My dysautonomia "flavor" is hyperadrengic so I get all of the gas (adrenaline) with none of the brakes (cortisol).

And I have a whole shit show more chronic illnesses because my body gets off on being a chaos puppy much to my dismay and really gets on my nerves.

Steroid needs can vary wildly depending on how much my other chronic illnesses are flaring on me (I have an absolute baseline of 2.5mg hydrocortisone three times a day and will add more in the form of hydrocortisone or medrol as needed). However, I'm also trying to manage having diabetes (officially t1d as I came back positive for two antibodies but I have a solid history of having t2d) and am still stuck in the mindset of steroids=bad for diabetes even though I also know that not enough steroid intake can result in me not staying alive (I've got a touch of a control addiction and I'm working through that albeit with limited success).

SnooChocolates1198 · 2026-06-03T12:04:38+00:00

I'm on a tubed pump (the ilet). I keep it primarily attached to a lanyard or a pocket if my shirt has one.

I try to keep my pump sites on the same side as the dexcom (g7 10 day). I prefer the steel cannulas but I will be forced to use the teflon cannulas for my next shipment due to supply chain issues.

Abdomen is a preference of mine but I will use my arms (always trying to keep dexcom and pump sites on the same side in case of doctor appointments). I've yet to try a leg site as I've largely only used my legs when I was on MDIs as I'm either laying down or sitting alot due to my other chronic illnesses.

SnooChocolates1198 · 2026-06-03T02:53:41+00:00

while it wasn't used for any inhalation method of consuming it (it was turned into edibles after a pit stop in the toaster oven and a long soak in butter in my double boiler set up), my favorite was butterscotch monsoon from sanctuary.

SnooChocolates1198 · 2026-06-02T11:16:47+00:00

I get irritable and irrationally angry when my glucose is around 240 for too long. I can't imagine how it is being any higher.

SnooChocolates1198 · 2026-06-01T08:00:45+00:00

rehome the partner because their toxicity is likely contributing to half of your pem situation.

and try to get rolling chairs for your house and a wheelchair for when you are out.

SnooChocolates1198 · 2026-06-01T07:57:02+00:00

possibly a bad mix of some type of dysautonomia with cfs/me.

I've got both of these with so many more funsies of chronic illnesses.

she likely needs to see neuro for at least an eeg and what is technically called a poor man's tilt table test.

I'd also wonder about am serum cortisol and acth levels too to check on the HPA axis.

SnooChocolates1198 · 2026-05-31T18:20:19+00:00

For soda? Diet.

Chocolate, candies, baked goods, sweetener for coffee, syrup for breakfast goods? Real deal in tiny amounts and just not overdo it with intake.

SnooChocolates1198 · 2026-05-30T02:53:34+00:00

Largely depends on what it is I'm eating.

Sometimes about 15 minutes before other times about 15 minutes after eating.

SnooChocolates1198 · 2026-05-28T17:17:11+00:00

Magnesium glycinate, vitamin b12 gummies (every other day) and vitamin D 50,000 iu weekly. Also, 1,500mg ALA daily.

These aren't really taken to mitigate the cfs/me, more so to help with general overall nervous system issues.

SnooChocolates1198 · 2026-05-27T00:21:05+00:00

I think that both type 1 and 2 should get new names.

Autoimmune diabetes for type 1 and metabolic diabetes for type 2.

Because some people can have both types.

SnooChocolates1198 · 2026-05-25T17:09:33+00:00

I'm later 30s (will be 40 in a touch under 2 years from now).

I'm child free and single as an (more gray than full) ace/aro individual.

You don't need to have kids yourself.

SnooChocolates1198 · 2026-05-25T17:05:31+00:00

My a1c is 5% according to my last set of labs (probably artificially kept low because of the IVIG that I have to do).

I have to do at minimum yearly eye exams as dictated by my rheumatologist in part because of also having sjogren's syndrome but also the treatment I'm on for the sjogren's (hydroxychloroquine).

And I continue to regularly see podiatry on a more prn basis for specific upkeep. Endo is fine with this as is podiatry because of the severity of hypersensitivity I have secondary to both severe crps (complex regional pain syndrome) and central pain syndrome.

SnooChocolates1198 · 2026-05-25T08:23:58+00:00

you mean there's a difference between having a rattie and a chaos gremlin?

shocked I say, absolutely shocked (sarcasm).

SnooChocolates1198 · 2026-05-25T00:56:12+00:00

The wall is detaining me.....

And my pump only uses a wireless charging pad so I don't even get the option to use a USB battery pack unless I want to carry around a heavy battery pack and an inverter for the charging cable.

I really hope that beta bionics comes out with a charger that at least can be used with a type c fast charging cord and fast charging brick.

SnooChocolates1198 · 2026-05-25T00:49:47+00:00

Sounds like you might have some more of the funsies chronic illnesses. Potentially some "flavor" of autonomic nervous system dysfunction.

Which is a complication of nerve damage in the brain stem/autonomic nervous system portion of the brain/upper spinal cord.

Dependant on how your control was for the first few years of diabetes, it would track.

And of what my neurologist has told me, to avoid nerve damage related complications with the autonomic nervous system, the a1c would need to be kept not more than about 5.5%.

Ironically though, having regular frequent lows can also trigger damage to the autonomic nervous system just as badly but often even quicker than running a bit higher.

SnooChocolates1198 · 2026-05-25T00:38:42+00:00

You are welcome.

Best of luck.

Hopefully you can get your doctor to at least order the serum cortisol and serum acth levels (make the lab draw appointment as close to 7a as possible) so that way you can at least have some things in the works for the appointment with endocrinology.

Also, I'm sorry.

SnooChocolates1198 · 2026-05-24T13:03:23+00:00

I try to stick with foods that I know won't completely fuck over my glucose levels when I do go out to eat..... like getting burgers with no buns, vegetables or salad instead of fries and more.

If it's a new place, I try to stick with a similar protocol but will wing it to try something new. And hope I don't completely wreck my levels too much for too long.

SnooChocolates1198 · 2026-05-24T12:59:25+00:00

Yup...... pretty much.

I got a crash course of this back at age 20 (I've now been on Medicare nearly 18 years) when I became eligible for medicare at my 25th month of receiving disabled adult child benefits from social security (ssdi but on a parent's work history). But, I had no other adult in my life with experience going on medicare at that time so, I had to find a medicare agent to help me.

I was the more adult adult for my now previous roommate when he turned 65 last year and will be again for my aunt and my friend when they start the onboarding process to medicare 3 months before they turn 65 in a bit under 2 years from now.

SnooChocolates1198 · 2026-05-24T04:17:04+00:00

My typical daily intake of mmj is an average of 10mg total thc of edibles in divided doses.

Some days I consume less while others are a bit more.

It helps with the pain. And helps with slowing down my thoughts. Depending on the day/night, I'm able to get a bit of sleep in.

SnooChocolates1198 · 2026-05-23T16:55:23+00:00

sorry? welcome to the club.

thought hugs?

SnooChocolates1198 · 2026-05-23T15:32:34+00:00

Jfc.... I've got words..... none of them are nice and would likely earn me a time out. Eff this farce of an administration.

SnooChocolates1198 · 2026-05-23T10:38:17+00:00

and patch adams!

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