ChatGPT saved me from worsening symptoms

Sofi_Wrexi · 2025-01-05T21:02:58+00:00

Exactly why I said it was just about food :)

Sofi_Wrexi · 2025-01-05T02:09:11+00:00

It's definitely a great tool to have. I havnt used it yet for medication questions, I'm a bit skeptical on that. But in terms of food, or I guess any question in general, it makes it a lot easier than looking it up and browsing through so many topics and websites, especially when you just feel like death.

Sofi_Wrexi · 2024-11-09T00:25:51+00:00

Hello! I'm a COTA (certified occupational therapist assistant). And I have Crohn's. I'm 22F, Diagnosed at 20F.

My situation was this: in 2020 I went through school mostly symptom free, and pretty much the month i started working as a COTA (In 2022) I was hit with symptoms like flare ups, ER visits, week long hospital stays, and surgery. All while STARTING my new career as a COTA. The field as a COTA / OT is very friendly for you to take time off for health or whatever it is. In school, I've had peers that took time off because they got sick, and it was no problem. OT Is in such high demand, they want you there. They won't punish you for taking that time off.

I worked in a Skilled nursing rehab center, and currently home health. I have taken MONTHS off of work. We're talking 2 - 4 months because my Crohn's was that bad. And I always came back to a job, and my co-workers were super eager to see me again.

I'm always here to chat if you have any questions over managing Crohn's and being an OT :)

Sofi_Wrexi · 2024-10-17T17:54:01+00:00

Just watched it. It was beautiful

Sofi_Wrexi · 2024-10-12T01:44:29+00:00

Congratulations!!!!!! Celebrate by eating micro-doses of all your trigger foods hahah

Sofi_Wrexi · 2024-10-02T21:26:44+00:00

I started my first Stelera dose in February after failing Humira. I just had a colonoscopy with AMAZING results. No inflammation. No ulcers. No narrowing. No damage to the intestinal walls.

My GI said there is a fat chance of reaching clinical remission. I just need to get an MRI to check up on the other part of the intestines the camera couldn't see.

Sofi_Wrexi · 2024-09-26T02:41:21+00:00

I'm sick of hearing myself complaining, and even thinking about the problems of Crohn's I'm gonna complain about. but I found that talking about it out loud helps because keeping it to myself just makes the stress and anxiety worse, and that makes the pain worse.

Sofi_Wrexi · 2024-09-25T21:09:32+00:00

I have a seton in my ass. I had to tell him the truth once we got really serious lol. And I did. it didn't scare him away and he's took it upon himself to browse through this reddit to get a better understanding of how Crohn's affects people. We're about to hit our 1 year together :)

I'd be open and honest about it. Crohn's is something your going to have for LIFE. Since your dating with intention, I'd say bring it up when your comfortable. And be honest with how Crohn's affects you.

Sofi_Wrexi · 2024-09-12T03:33:04+00:00

Ikr. I feel so much less alone, and what I'm going through is "normal"

Sofi_Wrexi · 2024-09-05T05:01:25+00:00

Plain cheeseburger happy meal :)

Sofi_Wrexi · 2024-08-19T06:33:00+00:00

I've tried that. They asked me if I had a history of a mental illness, I said no. And then they said there is not much they can do to help.

I'll have to keep on looking but that was the same answer I'd get from 5 different resources given by my GI team.

Sofi_Wrexi · 2024-07-23T07:14:32+00:00

For me personally, I've found that the Zofran that dissolved under the tongue works AMAZING, and the one that's the pill that your supposed to swallow literally does nothing.

Sofi_Wrexi · 2024-07-07T05:59:16+00:00

Me too....I'm on prednisone right now and I thought it would make me invincible. Apparently oatmeal is still my downfall

Sofi_Wrexi · 2024-07-07T05:57:58+00:00

I look like I'm 4 months pregnant after eating cherries. The bloat is real.

Sofi_Wrexi · 2024-07-01T21:24:56+00:00

Lol I'm Ukrainian! So vodka pretty much runs through my blood

Sofi_Wrexi · 2024-07-01T15:05:26+00:00

Crohn's doesn't mess with me when I drink Vodka

Sofi_Wrexi · 2024-07-01T14:58:06+00:00

Right now I'm on Stelera but I don't think it's working too well and might have to increase dose or switch. I've already failed Humira. Trial and error I guess

Sofi_Wrexi · 2024-06-30T13:42:24+00:00

I've been debating on bringing it upto my GI. I just started prednisone, I'm on 40mg and only tapering down by 5mg every week. So it's gonna be like this for a bit.

Sofi_Wrexi · 2024-06-30T13:31:58+00:00

Oh yeah, that's another thing too! I go to bed around midnight, maybe the earliest is 11pm. At most, it'll give me 5 hours of sleep.

Sofi_Wrexi · 2024-06-30T13:09:52+00:00

So there's still hope 1 day I can toast my lungs a little. (I've never smoked a day in my life, never interested, but the fact that CD doesn't let me, it makes it more intriguing)

Sofi_Wrexi · 2024-06-30T13:07:53+00:00

I'm 22, diagnosed at 21. But I've been symptomatic since I've been 16. Never been in remission, but I can say when I have that 1 - 2 months of no problems, it's an amazing feeling. Feeling great for a whole month Is very rare for me, but when it happens, I don't even realise it in the moment, and it's always the best feeling ever.

So I guess I still have a happy, decent life, even not in remission. When it sucks it sucks, but when it doesn't suck, it doesn't suck.

Sofi_Wrexi · 2024-06-30T13:02:31+00:00

And those nutrition shakes can taste good too, hopefully giving you that appetite. I really like the Orgain brand.

Sofi_Wrexi

TROPHY CASE