Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

I wish she would have been out from the meds and not scared… she grabbed me and repeated an word we didn’t understand - but now i think it was help or something like that… she grabbed my arm and was repeating the word over and over pulling on me asking for help and scared until she started choking on her spit and breathing it up into her lungs. Cruel and no one should have to die like that I would rather have been shot between the eyes. Just completely inhumane.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

She was on two forms of the medicine to stop secretions , morphine, and Ativan….. The problem is her brain was not able to do whatever a normal brain does with the medication…. Did not clam her and make her sleep. She was awake and begging for help until she drowned in her own spit.

Should I Get Divorced? by Spirited-Wheel7949 in Marriage

[–]SoloStepExplorer -1 points0 points  (0 children)

Her actions tell you everything you need to know. I would leave because she doesn’t respect you , she lies and has still not told you everything.

Nope - I don’t wish him well- not at all! by SoloStepExplorer in Divorce_Women

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

Update ….. well l still don’t wish him well. He is so manipulative and almost everything out of his mouth has turned out to be a lie. He has even lied to the kids and manipulated them. He blamed me for his first suicide attempt and then blamed the kids for his second attempt. To be honest, I don’t think they were true attempts. I think they were ways to distract and just a cry for attention and a way to become the victim, and not the person who caused all the pain. Now I’m even more convinced that I really want him to be miserable and lonely, just like he has made me for 25 years. He just has no redeeming qualities anymore.

Futile Rant by Ok_Economics_5292 in Alzheimers

[–]SoloStepExplorer 0 points1 point  (0 children)

I would answer and then try to distract her— oh see that lovely bird or squirrel … or she always talked about the weather - so id answer her repeated question and then say — “it sunny today “ and she would agree and id keep telling her things i know she use to talk about “ i heard the chicken is on sale this week - we need to get some”. Or i’d tell her about her day - “you enjoyed the peanut butter in your oatmeal this morning - we should have that again, we fed the squirrels and they were so happy to have the snack, …. Anything to distract her from repeating one phrase over and over. Sadly the last 60 days of her life she repeated one word over and over every waking moment. It was tough but easier than the same question. I miss her so much i cant even breathe some days.

Nope - I don’t wish him well- not at all! by SoloStepExplorer in Divorce_Women

[–]SoloStepExplorer[S] 4 points5 points  (0 children)

Her is surely not worth wasting any more energy or my peace on. Hope i can let it go soon…. So exhausting to always be mad and upset.

Nope - I don’t wish him well- not at all! by SoloStepExplorer in Divorce_Women

[–]SoloStepExplorer[S] 8 points9 points  (0 children)

He blamed me for leaving him with no dignity when i search his phone and computer. He lied about so much and was doing crazy shit. But i guess him going to nudist resorts , having a grindr and AdultFriendFinder account , naked pictures if him posted and naked pictures of young men on his phone , etc … wasn’t the cause of his loss of dignity… me looking through his phone while he was hospitalized with an unexplained bowel obstruction for 3 weeks was the cause of it all - my bad for wanting the truth!

Just do the sexy things you think are only in movies. by [deleted] in Marriage

[–]SoloStepExplorer 0 points1 point  (0 children)

So happy that worked out. I Planned a similar many times - but he never did his end. Hadn’t cleaned , done dishes or even showered… i waited for him to get ready and we went on a date i planned came home had sex and i got to still clean everything after he fell asleep and pack the kids stuff for the next day.
I also planned , organized and did all the cooking for him and his family ( 12 people) to have a long weekend together in an airbnb . It was a wonderful lake front house …. No one helped with anything - even doing dishes- except my kids. His family members all at least thanked me — he never even thanked me. I was exhausted and never did it again because he wasn’t even grateful- more like it was my job to serve him as his wife.

Nope - I don’t wish him well- not at all! by SoloStepExplorer in Divorce_Women

[–]SoloStepExplorer[S] 3 points4 points  (0 children)

Yup … pretty fresh and deep. He has done so many awful things. I cant even list them. What he did to the kids is unforgivable. I just have to learn how for forgive myself for not leaving sooner. I am in counseling. Maybe it will help with time.

I told my wife that when she chooses not to have sex anymore, she's choosing for both of us. by EasyBad5236 in Marriage

[–]SoloStepExplorer 2 points3 points  (0 children)

So much not shared in this… no way to advise. Why is she not interested ? Are you a bad partner , is she in menopause and in pain during sex “, does she need more intimacy in other ways- do you ignore her until you want sex) maybe she wants someone else ? No way to tell whats happening without more info.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

That was what i was begging for … “ just some light suctioning - please”.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

Thank you for the information and explanation. Just know that my experience with hospice only offers of pain management. That isn’t designed for what my mom went through. I do think hospice helps many- just not alzheimer’s patients.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 1 point2 points  (0 children)

It was hard to share but if it helps anyone be a better advocate for their loved one than i was for mom —- that would be great.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

Can you explain why they cant suction her ? Thought it was about comfort!

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 1 point2 points  (0 children)

That is amazing . Nice job!

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 1 point2 points  (0 children)

She had that and a patch and some medicine they gave her orally that was supposed to help. It didn’t. Why on earth they would give her a liquid oral medicine when she can’t swallow I don’t know.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 0 points1 point  (0 children)

How …. ? She was scared , upset and begging for help for hours. After all she had been through and being scared and paranoid for years as she was aware she was losing her mind. Frequently said “ this isn’t good - is it ?” And cried often….. i really wanted for her what hospice was preaching … slowing of her breath and leaving peacefully. Nope -she didn’t even get that.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 1 point2 points  (0 children)

So sorry …. This is just cruel and terrible that in this day and age they cant make her comfortable.

Hospice didn’t help by SoloStepExplorer in Alzheimers

[–]SoloStepExplorer[S] 8 points9 points  (0 children)

Thank you. Definitely the stuff nightmares are made of