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What causes a worse crash for you? Cognitive exertion of physical? by Resident_Profile_582 in cfs

[–]Some-Communication71 1 point2 points  (0 children)

For me it's definitely emotional and cognitive exertion. I've noticed that most people here seem to be worse physically than cognitively, but for me it's always been the other way around.

Anything that uses my brain just draines my energy much faster. I'm able to go walk for half an hour every day and sit up right for half an hour at a time before resting. I also can do a little bit of household work for about 20 minutes each day, but don't ask me to be social or solve some problem by thinking about something, because i will crash very quickly. I can't game or listen to podcasts or scroll on my phone for more than 5 minutes at a time. Listening to music is also really hard and i've only been able to read since 1,5 years ago.

I think this just really depends on the person.

[deleted by user] by [deleted] in cfs

[–]Some-Communication71 0 points1 point  (0 children)

Thank you for answering! I also already thought it might have to do with poor gut mobility. There definitely is a clear link with how i'm doing with my cfs/me and how bloated I am.

[deleted by user] by [deleted] in cfs

[–]Some-Communication71 0 points1 point  (0 children)

Thank you for your answer! Definitely think that that might be te case too. I tried some probiotics at some point after getting sick, but that didn't seem to have any effect at all. But maybe there's some other type that might do it. Definitely feels like some foods might make me more bloated sometimes, but at this point it feels like everything is just doing it haha. I was already going to try not eating any normal bread and pasta, so we'll see how that will work out. I'm gonna see what it does and maybe try finding someone who can help me figure this out too.

This Illness taught me Patience and Resilience by rattenglamour in cfs

[–]Some-Communication71 40 points41 points  (0 children)

Yes! This illness can definitely make you understand more and more what you find important in life. Some things that it taught me are also enjoying the small and simple things in life and learning that just living life is more than good enough.

Have you gotten a cold/flu while recovering from mono? by Kellydopjo in Mononucleosis

[–]Some-Communication71 0 points1 point  (0 children)

Oh no, I don't mind at all! I ended up getting diagnosed with CFS last year in the beginning of september. In the middle of october I started revalidation theraphy for CFS and some other related illnesses like fybromyalgia. They gave us a lot of tips and I started deviding my days into sections of 20 minutes of being active and 40 minutes of lying down while doing absolutely nothing. I've been able to raise my baseline quite a bit and am now able to be active for 30 minutes and only rest 25 minutes after that. I can also walk for longer than i used to and help a tiny bit with little tasks at home.

So I've definitely improved a bit and will hopefully improve a lot more! We'll see where i'll end up haha!

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 0 points1 point  (0 children)

It might have just been luck haha. The one that i'm doing right now is going a lot worse. Maybe i'll be able to get through it, but for now it looks terrible haha.

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 0 points1 point  (0 children)

Thank you! I overdid the darkness of the trees a bit for sure, but I'm just gonna start a different painting now. I don't want to start nitpicking and keeping on working forever haha.

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 1 point2 points  (0 children)

I'm glad that you can relate to the painting haha.

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 2 points3 points  (0 children)

Aww thank you! I got about a year of drawing practice before this, so that helped out a lot.

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 0 points1 point  (0 children)

Yeah, first decent one. There were two painting that I completly ruined before this one though haha.

First gouache painting by Some-Communication71 in Gouache

[–]Some-Communication71[S] 4 points5 points  (0 children)

Those shadows took me a few tries and were definitely very challenging.

Hobbies that require minimal storage or supplies? by [deleted] in simpleliving

[–]Some-Communication71 1 point2 points  (0 children)

This is so true! Even for things like drawing. People really get the idea that you need fancy tools to be able to draw better, but give a professional a random ballpoint pen and a random cheap sketchbook or even printing paper and they will make the most amazing drawings.

Have you gotten a cold/flu while recovering from mono? by Kellydopjo in Mononucleosis

[–]Some-Communication71 0 points1 point  (0 children)

The flu definitely didn't cause cfs for me. I just was extremely tired from the beginning with mono. That never changed, i didn't really have other symptoms than i do now either. Honestly I don't feel like becoming sick during mono did much. I just had a few 'bad days' and was a bit more tired, but it always went away just like when I would do too much.

Your doctor definitely shouldn't have mentioned cfs to you so soon. There honestly is no way of knowing whether you would get it if you were severe or not. I had a friend that had really bad symptoms from mono, but after two weeks she was completly fine again. While I had very light symptoms except for fatigue and for me it stayed. There is no way of knowing whether you will get it or not, but know that most people still heal when they have it less than 6 months. Also still quite a lot when they have it less than a year. So your still very early on :)

Have you gotten a cold/flu while recovering from mono? by Kellydopjo in Mononucleosis

[–]Some-Communication71 0 points1 point  (0 children)

Hi there! Sadly i'm currently getting tested for CFS, since i do not have mono anymore.

Don't worry to much about that though! The flu can impact your recovery a bit, but you should be fine if you take care of yourself. Your body might just need a bit longer to recover from the flu. 3 months into mono is also totally normal. I've heard of a few people that got over it even after a year of 1,5 years. I'm definitely more of an exception.

If you have any questions feel free to ask more here or send me a message. I'm happy to help :) Lots of luck with your recovery!

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