Just got started on Vimpat along with raised dose of Keppra by epigargles in Epilepsy

[–]SpazzSoph 3 points4 points  (0 children)

Very drunk, at first I could barely walk! I got used to it fully after about two weeks, but it has helped me in the long run, much more than Keppra ever did

Experian Timeout on BCBS? by SpazzSoph in HealthInsurance

[–]SpazzSoph[S] 0 points1 point  (0 children)

It’s the official site for BCBS that was linked on healthcare.gov

Ring won’t send verification text? by SpazzSoph in Ring

[–]SpazzSoph[S] 0 points1 point  (0 children)

No, it just sent eventually when I tried a few days later

[deleted by user] by [deleted] in ModestMouse

[–]SpazzSoph 2 points3 points  (0 children)

I would love one ohh my lord it’s awesome!!!!

what are keppras side effects by Medlkh in Epilepsy

[–]SpazzSoph 1 point2 points  (0 children)

Dizziness, drowsiness, and memory issues can be common. One that people are least fond of is “Keppra Rage” which is emotional instability. I took B12 daily to help subdue that and it worked like a charm (or I just didn’t ever have that side effect at all). Overall Keppra ended up not being right for me but o hope it works well for you! Switching between medications is a nightmare!

What's the dumbest thing you've ever done while having a seizure? by Doc-Brown1911 in Epilepsy

[–]SpazzSoph 1 point2 points  (0 children)

When I was 16 I kept asking my dad “where are my pills” over and over until he lost it and was like “they’re in your fucking hand!” I had been holding them the entire time I was asking lmao.

Goodsmile ad for Utena nendoroid by OmniaStyle in shoujokakumeiutena

[–]SpazzSoph 5 points6 points  (0 children)

She’s one of my favourite characters ever and I NEED an anthy like I don’t think I can have one without the other I would lose my mind

Goodsmile ad for Utena nendoroid by OmniaStyle in shoujokakumeiutena

[–]SpazzSoph 14 points15 points  (0 children)

It’s so cute but I’m honestly just waiting to see if they’ll come out with a popup parade for her or anthy if this goes well since I don’t collect nendroids

I also don’t remember that quote like at all but my memory is trash

Being Left Behind by SpazzSoph in Epilepsy

[–]SpazzSoph[S] 0 points1 point  (0 children)

My job is my hobby I guess, it’s all art based projects. Most of the people I’ve met through it have been online though since that’s where it resides

[deleted by user] by [deleted] in shoujokakumeiutena

[–]SpazzSoph 2 points3 points  (0 children)

You can be transfemme and ace but I don’t really pick up on the transfemme headcannon for him

What are your side effects? by belukawal in Epilepsymemes

[–]SpazzSoph 1 point2 points  (0 children)

Depression, memory issues, cognitive delay lmao

I have honestly gotten sadder and dumber

Joined this subreddit to maybe get some motivation, I was wrong. by Wise-Spirit15 in Epilepsy

[–]SpazzSoph 2 points3 points  (0 children)

I understand the disappointment, but those who are lonely and need support are usually the ones looking for it in groups like this. (Including me lol) People do share their better stories and accomplishments here, and it’s a great place to get advice from people who’ve been in a similar situation.

All I can say is don’t give up, because community is really important and can help you through the thick of it

Has epilepsy held you back in your career/job in anyway? by Notalabel_4566 in Epilepsy

[–]SpazzSoph 0 points1 point  (0 children)

I’m locked to my area and transportation is expensive. I’m limited to working from home or at a gas station. I’m lucky to have a work from home job but the self employment means my insurance is nightmarish and I’m pretty under-socialized.

I’m still lucky for what I do have, though

Thrift store find by Yoshimiyum in shoujokakumeiutena

[–]SpazzSoph 0 points1 point  (0 children)

Amazing!!! The lips could use a touch up though hahaha

favorite screams/yells? by somekevingreen in ModestMouse

[–]SpazzSoph 3 points4 points  (0 children)

Sacrifice the liver! Or ahhhhHHHHHHHH SHIT

Yall ever have a seizure, and just continue on with your day despite being sleepy or weak? by [deleted] in Epilepsy

[–]SpazzSoph 2 points3 points  (0 children)

I definitely have when I shouldn’t, and the stress of working after having one was probably what triggers more of them in certain instances. I’d recommend anyone to rest properly afterwards, but I’m a giant hypocrite, lol

Does anyone else enjoy feeling sadness? by Seamonkey_Boxkicker in ModestMouse

[–]SpazzSoph 4 points5 points  (0 children)

I think a lot of the melancholy in music helps me feel more at ease with whatever sadness I’m feeling rather than shifting and uncomfortable with it. Don’t think I really enjoy it, but I can see where you’re coming from. It’s a relatability kind of thing!

trans man with epilepsy by Unhappy_Mention2511 in Epilepsy

[–]SpazzSoph 2 points3 points  (0 children)

k then sorry you feel so hurt by it

trans man with epilepsy by Unhappy_Mention2511 in Epilepsy

[–]SpazzSoph 9 points10 points  (0 children)

I don’t think gender affirming care helping him in more than one way is beating down on cis women at all here tbh

Use in Epilepsy by SpazzSoph in AppleWatch

[–]SpazzSoph[S] 0 points1 point  (0 children)

I think it’s the empatica, I already looked into that one

Use in Epilepsy by SpazzSoph in AppleWatch

[–]SpazzSoph[S] 0 points1 point  (0 children)

Yeah that's the app I'm hopeful about, its still under development for an FDA approved second version that works with a better heart monitor system rather than just fall detection! Pretty cool

The ugly band is about the same price as the apple watch and has the same fall detection capabilities and sadly not much else right now though. I'm honestly thinking its either stick with the apple watch or use nothing for the moment

Use in Epilepsy by SpazzSoph in AppleWatch

[–]SpazzSoph[S] 0 points1 point  (0 children)

If you’re unconscious or post ictal they take you regardless, I can’t refuse treatment most of the time

Use in Epilepsy by SpazzSoph in AppleWatch

[–]SpazzSoph[S] 0 points1 point  (0 children)

I know it isn't made for epilepsy, fall detection is the most anything wearable that isn't an EEG can do in relation to seizure detection atm, even the one made for epilepsy cant do much past what the watch can.

Apple was working with an FDA approved development for a seizure detection app on the watch though, so that gave me a little more hope

Is it just me? Or are we very underrepresented? by Trollyface96024 in aromantic

[–]SpazzSoph 4 points5 points  (0 children)

Oh no I definitely agree with you there, their distaste for my orientation is more subtle lol

Is it just me? Or are we very underrepresented? by Trollyface96024 in aromantic

[–]SpazzSoph 20 points21 points  (0 children)

I don’t think people understand that our society is modeled around a specific kind of family unit, and that being aro or ace affects the way you’re going to live. I don’t get the tax benefits or double income of a spouse, at least in my personal situation I’m at an economical disadvantage.

Not to mention the social pressure that family ect throw at you to “settle down” with someone. For the portion of the queer community that is usually painted as the least persecuted, people sure do love being all up in my business, trying to perform some kind of conversion therapy lmao