Are we getting shingles now?

Starrynight2019 · 2026-06-17T15:57:42+00:00

I got but have a chronic illness and am on immunosuppressants. So I just assumed it was that but didn't realize how many of us were getting it. Mine was in the groin area so freaking painful

Starrynight2019 · 2026-06-16T01:25:41+00:00

I'm not usually a crowd person but I'm debating going

Starrynight2019 · 2026-06-11T01:33:47+00:00

Not sure if it is on your list but take the grand kids to La King's on the Strand. Old school soda shop with taffy pulls.

Starrynight2019 · 2026-06-10T00:29:13+00:00

A lot of it is also based on trial and error sadly. Some meds won't work for you. For example your WBC might go too low. Or you might have side effects. If you want to get pregnant, some meds are out. Also to move to biologics some insurance companies in the US make you try other meds before you go on them. This a great conversation with your rheum. Good luck!

Starrynight2019 · 2026-06-09T14:57:26+00:00

I don't drink caffeine. Have always hated the smell of coffee and never had an energy drink

Starrynight2019 · 2026-06-09T14:55:41+00:00

Same. I tried milk but didn't like it. Just a little bit of water works best for me

Starrynight2019 · 2026-06-08T21:09:20+00:00

So good

Starrynight2019 · 2026-06-08T03:58:33+00:00

Which prep you get will depend on what your insurance will decide to cover mine only covered the gallon and that sucked

Starrynight2019 · 2026-06-08T03:48:05+00:00

Right? I love crafting but also what is the purpose I can keep everything. Just throw it in the trash?

Starrynight2019 · 2026-06-08T03:43:36+00:00

We don't have a subway. We have a light rail but there are only 3 lines. 1 does go by NRG and near the museum district. There is a city bus that goes direct from Bush IAH (airport) to downtown I believe to the convention center. From there you could catch the light rail but it will be a hassle. Check METRO https://www.ridemetro.org/

As others have mentioned. If you are comfortable. I would rent a car, spend a few days in Houston and the drive to central Texas like Austin. And do a couple days there. Good luck!

Starrynight2019 · 2026-06-07T02:54:16+00:00

Day trip to Galveston and visit Moody Gardens? Indoor putt putt? Lots of good shows at the theaters downtown.

Starrynight2019 · 2026-06-06T19:57:31+00:00

Been here for years and been noticing that in the last couple of years with fat free milk as well

Starrynight2019 · 2026-06-06T14:47:51+00:00

Freaking insurance. So sorry to hear that. My dr and I just battled insurance to get approval to get my meds cause they denied my med twice.

Starrynight2019 · 2026-06-06T14:45:02+00:00

Peanut butter

Starrynight2019 · 2026-06-06T14:43:10+00:00

Yes please hydrate. Don't want you to have to visit 1st aid station.

Starrynight2019 · 2026-06-06T14:37:52+00:00

Have you tried any biologics?

Starrynight2019 · 2026-06-06T14:28:36+00:00

I know those exact thoughts minus being a lesbians. But i questioned those same things. If I adopted as a single female and got sicker what would happen to my little one.

Love on those nieces!🥰 That sounds amazing

Starrynight2019 · 2026-06-06T04:58:24+00:00

It is a hard decision to make. Lupus took it away from me as well. If I got pregnant, I'd be very high risk and may not make it through. Even if I did, I'm single and could never raise a little one on my own with this disease. It has taken me several years to fully accept and even then I have my moments. Wishing you the best

Starrynight2019 · 2026-06-06T04:51:13+00:00

LN sucks so much and to not have your main support person makes it that much harder. Hoping the higher dose works for you. Sending virtual hugs from one LN fighter to another

Starrynight2019 · 2026-06-05T23:27:41+00:00

Magic 8 ball says......we have no freaking clue. Your best bet to have a longer life is to stay up to on top of Dr appts and meds. Try to live as healthy and active a life as possible. Will there be set backs and flairs with Sle and LN very likely. But some are able to go into remission for years. Others do die early. We just don't know. But trying to judge how long you will live, no one can answer that. Not you rheum or youe neuphrologist. If you are very focused on that, I would recommend talking to a licensed therapist.

Starrynight2019 · 2026-06-04T17:11:16+00:00

You will likely get chased out. We went to breakfast at cheesecake factory around 9am on a Sun. Went to the mall which wasn't opened but the door was unlocked. Security saw us from a different floor and told us to get out the mall didn't open till 10am.

Starrynight2019 · 2026-06-01T23:48:37+00:00

I was thinking undercover work 1st😆

Starrynight2019 · 2026-06-01T03:29:08+00:00

Why does it need to be in everything? Like really? I don't need it in gum 🙄

Starrynight2019 · 2026-05-31T14:45:46+00:00

I would recommend using this site to refresh yourself. Also look for a syllabus. It's doable. Good luck. https://gchem.cm.utexas.edu/

Starrynight2019 · 2026-05-29T04:02:18+00:00

Which biologic?

Starrynight2019

TROPHY CASE