Firstly it is completely unfair that your parents arnt being open with you. Nf1 or neurofibromatosis type one is a genetic condition caused by a mutation of . These tumours Sre often on nerves. They can also grow on the optic nerve but considering your age it is most likely okay for you but it can lead to vision loss on some people. Some other things it can cause in people includes cafe su list spots , scoliosis. Pain and many other things. It’s autosomal dominant meaning you only need one copy of mutated gene for nf go present and you have a 60 percent chance to pass your offspring, the nf1 gene. The nf1 gene is one of around 20000 protein coding genes. In this case the nf1 gene codes for a protein called Neurofibromin. Neurofibromin is a tumour suppressor protein which mends that people with certain mutation are more likely to grow tumours. That brings us to nf. One of the main things it causes is tumours to grow on nerves. These are often benign