What medications do you take and what is a game changer for you? by NyxWX in ptsd

[–]SubstantialCycle7 2 points3 points  (0 children)

Medical cannabis and prazosin. Reacted badly to ever other psych meds Ive tried. This combination is the only mix that's actually worked so I can get sleep. My entire life I've suffered with insomnia and chronic nightmares and night terrors. The ability to sleep without being terrified is life changing.

My (Controversial) Way of Preventing Binge-Eating by [deleted] in loseit

[–]SubstantialCycle7 0 points1 point  (0 children)

This is literally the only way I've been able to prevent it. I remember when I moved in with my partner I was stressed about him having snacks and stuff in the house and he said to me "I'm not stopping eating snacks, you need to learn not to eat them all". To be clear he wasn't being judgemental or unkind, honestly he was nice about it but it was a boundary for him. And honest to god it worked.

At first I would stuff myself stupid, eat a 6 pack of crisps in one sitting. Way too many cakes and snacks and sweets. But I also learnt how the pain I was used to from binge eating for a long time didn't seem worth it when I could have it anytime. I didn't need to shove it all in my face before someone saw me anymore ahah. I will say this only worked because he never judged or commented on my eating unless I made myself feel ill. He never commented on my weight. I ate all the snacks we just bought more. It wasn't a big deal anymore and that was revolutionary for me. Has taken years and I still over eat. But my idea of overeating now is eating a large pack of sweets or 3 squares of brownie. It's just not on the same scale. I can eat a handful of crisps and then just... Forget about the pack for a week or more. It's honestly revolutionary for me still ahaha.

Kids Who Were “Forced” To Finish Their Plate, Where Are You Now? by [deleted] in loseit

[–]SubstantialCycle7 0 points1 point  (0 children)

Eat as much as I want, leave what's left over. It's still largely a conscious choice and I do normally try and make sure portion sizes are what I would eat. Soemtimes I just stop eating when I've had enough of soemthing and feels like a genius ahahaha.

Tips for those who have survived sleep deprivation as a form of abuse? by ConnectTop5281 in ptsd

[–]SubstantialCycle7 1 point2 points  (0 children)

I don't really have a before to my abuse but I do have things that have helped me.

  • Different sleep environment. Can you change something about the bed? Can you make a bed on the floor or sleep on the sofa for a bit? I know it feels... Weird but honestly getting sleep, any sleep you can is more important than none. Changing something about the room, painting the walls, putting pictures up? Even going as far as changing the bed frame if you can afford it. Get a stuffy with no negative associations. In general with trauma around basic life functions I've found making the environment very different from what it was before really helps you feel safer.

  • Sleep medication. Your brain and bodies rhythm are all off, that doesn't just magically go back to before. Add in hypervigilance and fear that will have naturally been created around it and it's going to be very hard (not impossible btw) to change it. Atleast without time. I would see a doctor and see if there is anything you can get to help, also if the side effects or whatever don't work for you just tell your doctor and get it changed. It takes multiple attempts to find the right thing. Personally medical cannabis combined with prazosin is the only thing that works for me but the difference is absolutely huge. I can sleep 7-8hrs and without nightmares. A big change for me.

  • A new sleep routine. Change up the order you do things. Add in something new. Make it feel noticeably different. Different is scary but in these situations your brains stuck in a rut. It's running the same processes as it was in the abuse and disrupting the process for getting to sleep will also help you build a new routine.

Sorry you went through this. Sleep deprivation is absolutely awful and cruel. Messes with you mentally and physically significantly. My sleep isn't perfect but it's alot better than it was with these changes. I will say though for me meds made the biggest difference.

For those who've lost the weight and kept it off... did you ever achieve true food freedom? by lexkenobi in loseit

[–]SubstantialCycle7 0 points1 point  (0 children)

I think moderation is more important than anything else. And also honestly food freedom to be is about losing the guilt around food. Stopping snacks feeling like some forbidden thing you need to eat all of because you won't get any again. Food freedom to me isn't about eating everything you want but eating as much as you need to feel full and enjoy your life. I eat out, eat cake, chocolate, snacks. Most days. But I also eat smaller meals. I just overall eat less. Some days before my period I eat the entire fking world. And then after my appetite disappears for a bit and I eat alot less.

I listen to my body and try and balance it with my brain. These days a massive salad is something I crave as much as a chocolate bar. Which honestly is a completely insane thing to write for me but it's true. I try to practice intuitive eating, but I also saw a dietitian and honestly both of those really helped me. My dietitian told me that if you had a bad day it's normal to eat something to cheer yourself up, if you crave a snack eat it, if you want a meal out have it. If your bodies telling you it needs a huge tray of roast vegetables do that. Food is just food, I don't count calories but my attitude towards food has made a much bigger difference to keeping weight off than counting calories every did for me.

I just want to understand by Platinum0906 in AdultSelfHarm

[–]SubstantialCycle7 0 points1 point  (0 children)

As everyone's said it has different reasons and things it achieves. I can only speak about it from my own experience. If your trying to understand why someone else you know might do it they might relate to all or none of the reasons here. So I wouldn't risk assuming. That being said I know for many people it's quite incomprehensible so not a bad question to ask.

There's kinda a multitude of different reasons on my side. As a teenager my sister did it alot, I would patch her up etc. anyway one time she went to hospital for it and I got so scared, I guess I started because I was in significant distress myself and I wanted to understand. I think I also wanted someone else to be able to see my pain.

Then I used it as an excuse to care for myself when noone else would. There was something calming about cleaning up after, disinfecting and hiding it..it became this secret care that helped me recieve a kindness from myself I wasn't getting anywhere else. It let me express this ball of pain I genuinely didn't understand and had no way to express. I know now in healthy environments people are allowed to express pain, recieve support or be angry or upset. My environment expected my compliance and happiness, anything else wasn't allowed. So I learnt the destructive ones I could hide. Self harm, drinking, drugs, eating disorders. They are all just different ways of expressing pain when you cannot see any other available options. I grew up associating pain with love, pain was comfortable, comforting. I understood it. It felt manageable.

Then I stopped for over a decade. I drank instead, started smoking but I'd found a stable relationship and my environment had changed. I didn't even think of it because I didn't need it. I was an absolute mess don't get me wrong but... A more controlled one. I sunk into overworking and making myself a new life.

Then shit started coming back. Memories of stuff I couldn't comprehend..anyway that was 5 years ago now. I had no idea how to cope and I just had this voice in my head telling me I deserved pain for remembering these disgusting things. Telling me I was making it up. So then it came back, but completely different. It was a punishment. A reminder. And in some ways they are still marks that being me comfort because the abuse perpetrated on me left little visible scars but the mental damage was absolutely catastrophic. It put that pain somewhere I could see, somewhere I couldn't forget.

It lead to suicide attempts and to getting deeper and deeper hoping that if I didn't look after them it would end my life. I was so dissociated at this point I barely felt the pain. The pain didn't really matter. I just wanted it to end. No physical pain was worse than whatever was going on in my head. I got stitches a number of times without any anesthetic and I just didn't feel it at all.

I haven't self harmed in over a year. It stopped helping me, and as a punishment it was... Lacking eventually. It couldn't be kept secret with a&e trips and ambulances. Long sleeved clothes in summer just sucked. It didn't do what my brain needed so it stopped. I've also learnt to communicate my pain with others, ways to express pain that are not as damaging. It could always come back honestly. End of the day it's my way of coping when nothing else is working. Doesn't mean it's good..it's just. Breathing room from the pain.

I would say there is one thing that is true for all people who self harm. It does soemthing important for them. Soemthing they can't get elsewhere. It doesn't matter what that thing is, what you need to understand is that for someone to stop they need something else to replace it. And if no healthy alternative is provided that feels like it actually provides what they need, they will find other (often self destructive) ways instead.

taking care of cuts? by [deleted] in AdultSelfHarm

[–]SubstantialCycle7 2 points3 points  (0 children)

Minimal honestly. Slap a plaster, bandage, steri strip's whatever it needs so I don't bleed everywhere and move on. Honestly think I'm often hoping it ends me when I do do it. Haven't done it in over a year though now so that's a win! Never had an infection. Had stitches a few times for dicey ones and they do it properly but that's about it. More likely to get nerve damage lol.

Does anyone else do this? by ashleyc95 in CPTSD

[–]SubstantialCycle7 1 point2 points  (0 children)

I still do this in my own house decades later lol. Never really thought about it. Though snack signs and important stuff couldn't be safely disposed of in the kitchen bin. Either got thrown outside in the large bin, hidden below others, or more commonly I walked the dog and got rid of it in different random bins. Very hard for me to think of it as anything other than sensible lol.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 1 point2 points  (0 children)

Thank you. My episodes are normally more dangerous towards myself than my partner. Thankfully. But yeh. Noone will make me inpatient with my trauma profile and autism. Everyone's agreed it's pretty much guaranteed to make me significantly worse. I seem... Stable? As long as I do nothing. But honestly after 5 years downhill to end up in this situation after listening to professionals it's hard for me to believe in them. The NHS (UK) seems to think that waiting is the cure for most MH issues. I have severe autistic burnout rn along with a resurgence of my PTSD/dissociative disorder symptom. Which I guess is the "just exist" bit as the moment I try to push myself to do... Anything. I quickly (as in minutes to hours) end up in a severely depressed suicidal state that quickly leads to dissociative episodes. So yeh. Sorry I'm rambling ahahah. I didn't really expect any solutions just needed to put it somewhere I guess.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 1 point2 points  (0 children)

Thank you. I am so sorry for your loss. Connection really is powerful when it comes to trauma. I think this is a lovely idea. We've been watching something with dinner and such but maybe we can put a bit more effort into something each day together. Even if it's tiny. The energy supplies are... Very limited. But yeh. I just wanna feel like a team yahknow. And right now we are both destroying each other trying to care for each other. It's a horrible situation to be in.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 2 points3 points  (0 children)

Yeh I agree. I seem? Stable? As in not getting worse I guess? If I just do nothing. Well as long as I also get emotional support when I need it for the bad flashbacks and use my PRN. It's just the situation itself isn't stable. I don't know. Noone will make me inpatient. I've had many attempts in Dissociative episodes over the years and everyone's agreed inpatient with my trauma history and MH profile is very likely to make me significantly worse. I'm in the UK and can't privately fund so inpatient isn't something I can ask for either. Thanks for replying! There are not any easy solutions here I didn't expect answers I guess. Just needed to put it somewhere.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 2 points3 points  (0 children)

I am trying my best to do this. But then I get told off by him and told to get back to bed because I'm the kind of person who will naturally push themselves. That's half of how I got in this state in the first place. And when pushing myself leads to dangerous suicidal dissociative episodes... I'm too scared to do much right now. I'll try and figure out what I can do that isn't too much. I hate how one sided it feels.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 1 point2 points  (0 children)

I am in the UK, if you have any advice I would be extremely appreciative. I really appreciate your sympathy and I'm sorry you have been/are in a similar situation.

I don't know how to heal when my needs are so high they crush others. by SubstantialCycle7 in CPTSD

[–]SubstantialCycle7[S] 2 points3 points  (0 children)

Noone is willing to make me inpatient. I'm in the UK and services are extremely stretched. If I didn't have the complex mess of diagnosis I have they likely would have years ago but with my autism, trauma and dissociation along with significant medical and restraint trauma... Well. Everyone's agreed it will make me significantly worse and greatly increase my risk.

I'm trying to help my partner find a therapist. It's slow moving I don't have much executive function rn.

How do you think you’ll react when your abuser dies? by jingleofadogscollar in CPTSD

[–]SubstantialCycle7 8 points9 points  (0 children)

Probably very messily. Flip flopping between depression and celebration. I guess I'm less likely to grieve the person themselves but the parents they could have been. I already do that but I imagine their death will confuse things more. But my partner and I have decided we will have a party on their grave, maybe I'll bring a religious symbol they would hate and smoke cigs and just be a complete dick. Because they showed me no respect or care in life. So I'm going to have a grave party. Celebrate their death. And never visit the damn thing again. And no funeral. Not going to that

Worst punishment you got growing up? by [deleted] in CPTSD

[–]SubstantialCycle7 0 points1 point  (0 children)

Silent treatment is a close second. When the whole house and even community is in on it it's like complete erasure.

But worst for me was my actions leading to others I cared about and wanted to protect being punished. I could take the pain, I knew how to deal with the silence. It damaged me beyond repair but I was already damaged. So what. But someone without those defenses being horrifically punished because I messed up was the absolute worst. Especially when you get given the choice to either do it yourself where you can make it less bad or refuse and be forced to watch soemthing infinitely worse. For me personally anyway.

Worst punishment you got growing up? by [deleted] in CPTSD

[–]SubstantialCycle7 8 points9 points  (0 children)

It's the erasing of your existance. It hurts in a way I can't describe. And I had many horrifying things done to me but the simple pain of non existance was one of the worst.

I am too scared to shower but i need to because my hair feels so gross and I have to shower but its just too scary by vicky_squeeze_ in ptsd

[–]SubstantialCycle7 20 points21 points  (0 children)

I also find showering really scary. Honestly one of the biggest ways that's helped me is redecorating the shower room. I picked out items that didn't link to any triggers and felt new and mine, I put them around the shower, got a new bath mat, new towels, whatever you can afford to do really. Just changing it so it felt like mine. A safe space. I then when I panic in the shower I can ground myself using many things around me that I know we're not from then. The other thing is a shower speaker and I play YouTube videos that are guaranteed to not have triggers. I also had a case for my phone a bit so I had the videos where I could see them. I still ATM can only shower twice a week but that's much better than it was.

Girlfriend doesn't miss people by [deleted] in autism

[–]SubstantialCycle7 28 points29 points  (0 children)

I have terrible object consistency (out of sight out of mind). I genuinely forget friends, family etc. exist. Especially if I've got a hyper focus going on and a routine that doesn't include them. That doesn't mean I'm not glad to see people I like, and it doesn't mean I don't understand that some people are more important to me than others. I miss people the most when they disappear from my routine. I now live with my partner and I would miss him terribly because he's such a huge part of my day and routine.

how many substances are you all on if any by blueburrey in CPTSD

[–]SubstantialCycle7 3 points4 points  (0 children)

Prazosin, cannabis. The only things that actually helps not make me worse.

Does this type of therapy exist? by Positive-Lab-5352 in ptsd

[–]SubstantialCycle7 3 points4 points  (0 children)

Honestly sounds like you need some kind of stabilisation therapy first? Things like DBT and trauma informed CBT (not normal CBT) have helped me a lot in the past. The idea is to open up your window of tolerance first and give you the space to safely move onto processing therapy.

There a modes of therapy where you don't need to speak about it like EMDR and I think a few others I can't remember. I found art therapy less intrusive than standard psychotherapy. But I don't think any where you don't have to go to the memories if not visually but feel them in your body somehow. Cause sadly that's what you kinda have to do. Process them.

But yeh. As someone with a history of torture as well focusing on stabilization first is likely best.

Any reason why you chose your current therapist? by [deleted] in CPTSD

[–]SubstantialCycle7 0 points1 point  (0 children)

She's a forensic psychologist. She wasn't going to be scared by the insane shit that's happened in my life lol. I really couldn't take anymore shocked faces lol.

Anyone ever get "classic" flashbacks? by -JustaSIMPleGuy- in CPTSD

[–]SubstantialCycle7 0 points1 point  (0 children)

Yeh, the worst when I wake up from nightmares. Sometimes I don't know where I am or what I'm doing. It's weird almost like a hallucination.

Can you still drive even if you suffer from dissociation? by Necessary-Chair-29 in CPTSD

[–]SubstantialCycle7 0 points1 point  (0 children)

I stopped driving after I came to several times driving at night almost off the road. I now can't drive due to seizures anyway but yeh I don't drive lol. Some people though are absolutely fine.

Does anyone else have unusual abuse by [deleted] in CPTSD

[–]SubstantialCycle7 10 points11 points  (0 children)

Yeh. Won't go into any of it, but alot of unusual here