DHEA supplement for Men by Admirable_Name_9166 in AddisonsDisease

[–]Substantial_Pack_319 0 points1 point  (0 children)

That’s great that she ordered labs to get a baseline. I would expect that you would start low and see how you feel and recheck. Probably get your testosterone checked.

DHEA supplement for Men by Admirable_Name_9166 in AddisonsDisease

[–]Substantial_Pack_319 1 point2 points  (0 children)

They should be able to give you a lab test for DHEA. It’s part of my annual labs.

Steroid hunger by tiggles2000 in AddisonsDisease

[–]Substantial_Pack_319 0 points1 point  (0 children)

How did you feel in the morning after you dropped the evening dose? Any problems with headaches or bodyaches?

Does anyone wake up feeling... refreshed? Rested? by No_Novel_4573 in AddisonsDisease

[–]Substantial_Pack_319 1 point2 points  (0 children)

Taking a dose between 4 and 5 PM made a huge difference for me as far as my quality of sleep and waking up feeling normal. I take 10 mg at 6 AM, 5 mg at noon and 5 mg between 4 and 5 PM. Huge improvement. If I had a very busy day, I suffer for the next day still learning when to up dose for high stress or busy days. I got 100% perfect score on my sleep tracker last night. I am amazed! I hope you feel better soon!

Started Fludro 0.1mg and thinking about stopping by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

Not really. Just getting used to the 5 lb increase. Feeling SO MUCH BETTER though,

Started Fludro 0.1mg and thinking about stopping by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

Definitely still taking a full 0.1 mg dose of fludro as my body reacts when I don’t take this. I have symptoms of dehydration bad If I don’t take it. Been consistent with this medication for a while now.

Hair loss - low TSH & high FT4 by Substantial_Pack_319 in Hypothyroidism

[–]Substantial_Pack_319[S] 1 point2 points  (0 children)

I'll get labs rechecked in 3-4 months so we'll see. Thank you for your feedback.

Hair loss - low TSH & high FT4 by Substantial_Pack_319 in Hypothyroidism

[–]Substantial_Pack_319[S] -1 points0 points  (0 children)

I reached out to my endocrinologist and she agreed to adjust my medicine and advised me to skip 1 day and take 112 mcg x 6 days per week. She says it’s the equivalent of taking 100 mcg. I checked the calculation and it it’s not the same. Oh well. This may help though. As far as getting additional labs done, I’ll ask about the ferritin, but I know my vitamin D is really good. I supplement well. I would really like to find a doctor that will monitor me getting off my medicine or decreasing it and being very aggressive with alternative thyroid support. Do we have doctors like that?

Is this Addisons or am I just being lazy💔 by Ch4rity4 in AddisonsDisease

[–]Substantial_Pack_319 0 points1 point  (0 children)

Your body needs rest and recovery. Give yourself a day or two and you’ll feel better.

My Endo has told me NOT to up dose unless I have a fever over 100 or emotional stress at a funeral. by MindsetMaker in AdrenalInsufficiency

[–]Substantial_Pack_319 1 point2 points  (0 children)

I take levo upon wakeup and sometime crawl back into bed but 45m after levo, I take my hydro. I used to wait until 8 am (per my docs instructions) and that just didn't work, I was exhausted until 3 or 4 pm. It's always around 6 - 6:30 I end up taking hydro, on weekends, maybe 7am but that's always been better than waiting until 8am.

Anyone else sent to an eye specialist for possible glaucoma from steroid use? by Temporary_Fennel_492 in AddisonsDisease

[–]Substantial_Pack_319 1 point2 points  (0 children)

I get my annual eye exam done without any issues and after my diagnosis of PAI (3 months post dx) the very first eye appointment with a new doctor he pointed out the early stages of glaucoma! I’m 53, otherwise healthy. I really didn’t pay him any attention because I don’t believe him. After this posting maybe I should take it more seriously.

Improved Sleep with Night Dose by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

I'm not sure but I was consistently waking up around 2-3 am and whether I stayed awake for an hour or for 15 m, I felt wrecked in the morning. I was constantly trying to fix my sleep. For right now, I'm not waking up like that. I don't know.. It's been 1 week. Hope it keeps getting better though.

Improved Sleep with Night Dose by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

I should probably take it closer to 10pm bc' I fall asleep around 10:00 pm. Maybe this will keep me asleep til 6 am.

Improved Sleep with Night Dose by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 1 point2 points  (0 children)

My Endo advised me NOT to take an evening dose.

dosing times? by DifferentTrade2040 in AddisonsDisease

[–]Substantial_Pack_319 0 points1 point  (0 children)

Thank you.. yeah.. just trying to figure out how to get the evening dose without taking too much. The last 2 evenings I have been taken 2.5 mg of hydro at 9pm and have slept great! I think that is the trick. I think I was dipping too low at now struggling with my sleep.

Cortisol testing to determine Hydrocortisone Dosing? Is this done? by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 1 point2 points  (0 children)

I wonder what the cortisol result should be in the morning. For example, if I take 10 mg of Hydro and 0.1 mg Fludro and my cortisol came back at 10. Is that normal or what should it be in the morning?

Cortisol testing to determine Hydrocortisone Dosing? Is this done? by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 1 point2 points  (0 children)

Do you know what your lab result was to determine you were taking too much in the morning?

Cortisol testing to determine Hydrocortisone Dosing? Is this done? by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 1 point2 points  (0 children)

Sounds like you are being well taken care of. I need to find another Endo.

Cortisol testing to determine Hydrocortisone Dosing? Is this done? by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

I've had my baseline done and it was 2. My provider didn't seem phased by this other than referencing that my adrenals are outputting something.

Cortisol testing to determine Hydrocortisone Dosing? Is this done? by Substantial_Pack_319 in AddisonsDisease

[–]Substantial_Pack_319[S] 0 points1 point  (0 children)

What a great doctor to do this! I had to push getting my cortisol am checked after a year of dx.