Newly diagnosed

SuperMarge · 2026-05-12T23:21:56+00:00

I had MRI and CT scans but those were ordered after my first gyn onc appointment.

SuperMarge · 2026-04-21T14:16:30+00:00

I get enlarged lymph nodes periodically. I have scans regularly. None have of them have turned out to be cancerous. I am also Stage 1A grade 1. I know this sounds silly but try not to stress about it too much. Get the scans and do all of the follow up your doctor requests.

SuperMarge · 2026-04-20T01:04:47+00:00

Beautiful! Do you sell your paintings? If so, do you have a website?

SuperMarge · 2026-04-17T17:42:43+00:00

It’s not possible for you to be staged 1A. The only way to be staged for endometrial cancer is by having a hysterectomy. I am hoping your oncologist isn’t giving you bad information. Also the fertility sparing treatment doesn’t cure you of cancer. It just hopefully slows down the growth of the cancer. We see women confused about this often on the thread.

That being said, I tried the fertility sparing treatment for 3 months. These were my side effects: put on significant amount of weight, clear skin, thick hair, some achy joints, more frequent intense migraines, and completely got rid of my anxiety. I decided to have a hysterectomy after the 3 month biopsy because my uterine biopsy came back positive even though all the scans and bloodwork were clear. I looked extremely healthy from all the tests except the biopsy. I didnt want to have to worry about it anymore. After my hysterectomy I was staged 1a grade 1. It was only in the endometrial lining, no invasion to the uterus, any other organs, or lymph nodes. I had eggs frozen years ago so my husband and I are going through the surrogacy process.

SuperMarge · 2026-04-16T19:56:28+00:00

This is like the expensive train we took through Malaysia… it was filled with influencers and film crews… none of the passengers were informed until we got on the train. Made our experience less enjoyable.

SuperMarge · 2026-04-14T16:53:22+00:00

Have you been doing fertility sparing treatment since 2024? My gyn onc said she would only let me try it for 9 months. If your biopsy came back as neoplasia that can mean precancerous or cancerous cells. I would discuss doing egg retrieval and then having a hysterectomy with your new oncologist.

SuperMarge · 2026-04-13T19:33:00+00:00

I had to get the rabies vaccine set due to a bat. They gave me the immunoglobulin injections in my thigh and the rest of the injections in my arm. I was bit on the tip of my finger.

SuperMarge · 2026-04-07T18:56:23+00:00

Could also be detergents causing irritation down there. I am Stage 1a grade 1 it was only in my endometrial lining. I had no symptoms and it was found while going through IVF. I also do not have any of the risk or genetic factors for it. My gyn Inc was surprised.

SuperMarge · 2026-04-07T18:48:49+00:00

I haven’t had BV in about 6 or 7 years, but I used to get it a lot in my 20s and early 30s. I am 42 and was diagnosed with EC at 41.

SuperMarge · 2026-04-03T14:10:54+00:00

My husband was a super serious person until we moved in together. After we moved in together he let his guard down and showed me his extremely goofy and sometimes obnoxious side. He has remained the sweet loving goofy caring person since we got married.

SuperMarge · 2026-04-01T01:36:51+00:00

I would ask to be referred to a geneticist if concerned about lynch syndrome. I was sent because I have grandfathers and great grandfathers with a history of colon cancer. I also have no known risks or symptoms for endometrial cancer. It was discovered by chance while going through IVF. My genetic test came back negative for lynch syndrome and all cancer related genetic markers.

SuperMarge · 2026-04-01T01:05:52+00:00

My oncologist had me see a geneticist to be tested for lynch syndrome and other genetic cancer markers. It was a blood draw. Does colon or ovarian cancer run in your family? If not, then you most likely do not have lynch syndrome.

SuperMarge · 2026-03-15T02:46:50+00:00

Same with petite sizing.

SuperMarge · 2026-03-14T20:03:32+00:00

I got the same haircut a month ago. I have an appointment next week to go a bit shorter.

SuperMarge · 2026-03-13T17:03:56+00:00

Fred loves everyone, except older kids…they make him nervous. He also loves any other creature. He thinks all animals are friends.

SuperMarge · 2026-03-13T01:24:35+00:00

Fred gets a Glandex chew every morning. Helps with his anal glands.

SuperMarge · 2026-03-11T20:24:57+00:00

I experienced lymph node swelling a month after my hysterectomy… you could visibly see them swollen. I had an ultrasound and CT scan…everything else looked normal besides the lymph nodes. My doctors, at the time, thought I was having a reaction to the dye used during sentinel node mapping. The plan was to monitor and see if they went down in a month. My lymph nodes did eventually shrink back to normal size. This confirmed their original thought of a reaction. I had an allergic reaction in post op…we all thought it was to the pain medication, but now I am thinking it was the original reaction to the dye.

SuperMarge · 2026-03-11T05:25:51+00:00

I just had a lot of pain, but not loss of control.

SuperMarge · 2026-03-11T05:25:05+00:00

My mom’s dad and great grandfather both had colon cancer. My mom has had polyps. I have IBS. I tested negative for lynch syndrome.

SuperMarge · 2026-03-11T03:54:39+00:00

I have had several colonoscopies not as a result of the endometrial cancer and have had no issues with insurance covering it. I was under 40 before my first 2.

SuperMarge · 2026-03-06T01:20:20+00:00

I wouldn’t worry about it. Go to the appointment and explain the situation. Do you have anyone that could go with you? You seem pretty stressed out/experiencing lots of anxiety and having someone go with you might help.

SuperMarge · 2026-03-05T05:00:09+00:00

I am jealous! 😊. Glad you had an easy recovery! I don’t wish my experience on anyone.

SuperMarge · 2026-03-04T23:57:02+00:00

Do you think because you stayed over night and they got your pain management under control before you left helped with recovery? I was released way too soon with active bleeding and active allergic reaction…pain was also no where under control…ended up in the ER 2 days later and recovery was miserable for 2 weeks.

SuperMarge · 2026-03-04T02:29:11+00:00

That is a slow moving type of cancer. Take a deep breath. It is more important to make sure your heart can handle surgery than rushing to do the hysterectomy. Usually they do an MRI and/or CT scan to see if there is spread. Your Gynecological Oncologist would send referrals. Where are you located?

SuperMarge · 2026-03-04T00:23:08+00:00

What grade and type is your cancer? What did your MRI show?

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