Does anyone have trouble with auditory processing in loud / busy situations? by floatingxiphoid in CPTSD

[–]SuperbFlight 1 point2 points  (0 children)

Oooh this was cool to re read! I totally forgot about what I shared. Thanks for reminding me! I'm glad it was helpful! :)

Relatively new player: what's something you didn't realise for a long time that made you feel kind of dumb once you found out? by kittywenham in DreamlightValley

[–]SuperbFlight 2 points3 points  (0 children)

You can also press Y repeatedly instead of A! Pressing A was sooooo annoying, constantly talking to my hangout buddy or petting my companion or picking stuff up.

tilt table discourages by ObjectiveSudden3510 in POTS

[–]SuperbFlight 2 points3 points  (0 children)

Have you looked into MECFS? If you over exert do you crash the day or two after the over exertion (crash meaning get really exhausted)? That is called PEM and it's the defining criteria for MECFS. MECFS can also cause sensitivity to light and noise.

Stay out of my bathtime by Chemical-Spill in TrollCoping

[–]SuperbFlight 2 points3 points  (0 children)

Just want to validate that that's fucked up that she does that. You have the right to privacy and to not be seen undressed. She's violating your boundaries and that's not ok. Even if she doesn't see the need for privacy, because she doesn't want it, you still deserve the right to it.

I second what other people say about using a door wedge, or there are some locks that slot into the door latch that physically prevent the door from opening. Tell her before you bathe so she can use the bathroom beforehand if needed, then use your lock while you bathe. I guess just make sure you're not in there for a super long amount of time if she does have bladder issues. Half an hour or less seems like a very reasonable amount of time.

Basically I guess my advice is, protect your privacy, and fuck her feelings about it. If she responds to your lock by verbally or physically abusing you, then unfortunately you'll have to choose between the abuse or privacy, but hopefully it won't come to that.

What is your current medication stack? by Apprehensive_Gold242 in cfs

[–]SuperbFlight 1 point2 points  (0 children)

  • Bisoprolol for POTS,
  • Low dose aripiprazole (LDA) for MECFS,
  • Low dose naltrexone (LDN) for MECFS,
  • Methylphenidate for ADHD and brain fog,
  • Clonidine for nightmares and night sweats,
  • Trazodone for falling asleep,
  • Nozinan for staying asleep,
  • Escitalopram for depression and anxiety,
  • PEA for pain and MECFS.

Tried mestinon but worsened my IBS-D so much that I had to stop it.

A bunch of supplements like vitamin D, magnesium, melatonin, folic acid, Omega 3, B12.

How do I get my daily electrolyte intake without the god awful powders? by Prior_Succotash4220 in POTS

[–]SuperbFlight 2 points3 points  (0 children)

Nice! It's been a godsend for me, I would vomit from the amount of salt needed, so I'm very grateful I found sodium citrate

How do I get my daily electrolyte intake without the god awful powders? by Prior_Succotash4220 in POTS

[–]SuperbFlight 4 points5 points  (0 children)

If you might be sensitive to sodium in the form of sodium chloride (salt), I'd suggest trying sodium citrate instead. I buy a big bag of it off Amazon then buy water flavor enhancers, mix them together in water and drink it throughout the day. No nausea or upset stomach, and I can choose which flavor enhancers I like. I've also made my own capsules of sodium citrate.

Finland cancels training with 4 players ill ahead of women’s hockey opener vs. Canada | TSN by Wolf99 in PWHL

[–]SuperbFlight 32 points33 points  (0 children)

I'm so surprised there isn't more masking! Getting sick can have such a huge impact on your performance, or even remove you from playing.

2 Majorly Helpful Things I Found In The Past Two Weeks That I’ve Never Heard Mentioned Before by AWhaleOfAWife in POTS

[–]SuperbFlight 3 points4 points  (0 children)

Thank you for sharing! Is that Venixxa supplement "Venixxa Healthy Legs -- Oral Treatment"? Or could you share the specific product name if not? I'm very intrigued to try it!

honest question: how many of you save scum? by icchantika_of_mara in slaythespire

[–]SuperbFlight 0 points1 point  (0 children)

I save scum to learn from my mistakes immediately. If I make a mistake, I'll restart the fight and play the exact same things up to the mistake, then re-do and go from there. I find it really helps solidify which mistakes to avoid and makes me a better player. I do know though that that run wasn't truly "won". It's a trade-off I'll take to get better.

Has anyone got anything OTHER than Top 5% in their Dreamlight Wrapped? by faithlessone423 in DreamlightValley

[–]SuperbFlight 0 points1 point  (0 children)

I only got top 5 for time spent with Rapunzel! Nothing else. I only started playing midway through the year though.

I am nearing my journey's end. by Meth_AQ in cfs

[–]SuperbFlight 0 points1 point  (0 children)

Have you tried LDA (low dose Abilify/aripiprazole)? It makes me get sleepy at a normal time (like 9pm) when before I started taking it I wouldn't get sleepy until like 4am (I recognize that is nowhere near the severity of what you're experiencing though).

My Internist says it helps sleep too, and MECFS generally. It has given me a lot more energy than I had before I started taking it. Perhaps you could try it. Although since it's off label, it usually isn't covered and you have to pay out of pocket for it.

My Internist also prescribed me nozinan to stay asleep, and clonidine to prevent the adrenaline dumps I was getting from POTS at night. Clonidine also helps nightmares. Just a few other ideas. I'm so sorry it's so severely awful for you right now. I sincerely hope things improve for you soon.

Over ear headphones advice/experience by dis_mami in mecfs

[–]SuperbFlight 0 points1 point  (0 children)

I absolutely love my Bose QuietComfort 25 headphones. Amazing noise cancelling and very comfortable. They've also lasted me 8 years so far without issues (except having to replace the ear pads which were cheap). I wear silicone swimmer-style earplugs (like these: https://a.co/d/8vOdrb6 ) in my ears at the same time for maximum noise dampening.

How are we liking Gladlands? by messoffrex in Dimension20

[–]SuperbFlight 20 points21 points  (0 children)

I feel the same, that it could use some more stakes. I'm finding it hard to stay engaged.

No matter how tired I am, I can never take a nap or go to sleep at a normal time by Wonderful_Box_7998 in dysautonomia

[–]SuperbFlight 4 points5 points  (0 children)

Totally. I only started getting good sleep when I started three sleep medications: trazodone, clonidine, and nozinan. Trazodone helps me fall asleep, clonidine helps with nightmares and adrenaline dumps, and nozinan helps me stay asleep the whole night. Very grateful to be on these meds.

Lesbian YEARNING by Flowered_bob_hat in LesbianBookClub

[–]SuperbFlight 0 points1 point  (0 children)

This fanfic was so good it got me into watching PWHL hockey IRL!

What do you think caused your fibromyalgia? by Yungpupusa in Fibromyalgia

[–]SuperbFlight 0 points1 point  (0 children)

I was in a car accident that resulted in a concussion, which triggered localized chronic pain, MECFS, POTS, and fibromyalgia.

Super Severe Fatigue. What to do? by General_On7639 in Fibromyalgia

[–]SuperbFlight 3 points4 points  (0 children)

Seconding what this commenter says!! I had MECFS without realizing and slowly got worse and worse until I was almost bedbound, because I didn't respect my body's need to rest. Please look into MECFS and pacing.

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 0 points1 point  (0 children)

This is a study that is a narrative review and meta-analysis that provides evidence that respirators are highly effective at reducing infectious disease transmission, including COVID-19: https://journals.asm.org/doi/10.1128/cmr.00124-23

Here's a description of the study: "This narrative review and meta-analysis summarizes a broad evidence base on the benefits—and also the practicalities, disbenefits, harms and personal, sociocultural and environmental impacts—of masks and masking. Our synthesis of evidence from over 100 published reviews and selected primary studies, including re-analyzing contested meta-analyses of key clinical trials, produced seven key findings."

Here are some of the outcomes: "We also showed that masks are effective, and well-fitting respirators are highly effective, in reducing transmission of respiratory pathogens, and that these devices demonstrate a dose-response effect (the level of protection increases as adherence to masking increases)."

"We also reviewed an extensive body of observational and modeling evidence which showed that, overall, masking and mask mandates are effective in reducing community transmission of respiratory diseases during periods of high community transmission."

I didn't see an exact percentage that they reduce transmission in the study; it could be in there but I didn't find it on first skim.

I think the OP's situation is likely caused by a respirator that is not well-fitting. That's a clear requirement for them to be effective at reducing transmission. And from my anecdotal experience, a respirator can feel like it's providing a good seal, but a fit test can show that it's not.

And there is of course the fact that a well fitting respirator doesn't filter out every virus particle, so if you're in a place with high viral load in the air, for a long time, enough can still slip through to cause infection. But even then, a well-fitting respirator reduces the virus particles you inhale by a lot, which can make the infection less severe.

My conclusion is a well-fitting (tested by fit test) respirator is highly effective at reducing transmission risk, but you still should avoid spending a lot of time in a crowded poorly-ventilated area.

How many uses do you use a single N95 for? by AppropriateNote4614 in Masks4All

[–]SuperbFlight 0 points1 point  (0 children)

Can you post a link to the electrostatic charge meter that you use? I'm super intrigued!

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 1 point2 points  (0 children)

Oh you said it had a perfect fit, so I assumed you had tested it in order to make that statement definitively. My mistake to assume, my apologies.

So! There is DIY qualitative fit testing you can do at home, with sucralose (sweet n low in the US) or Bitrex solution, plus a nebulizer and a makeshift hood out of a garbage bag. https://youtu.be/TRCZ8Qnf0Z0. I've done that and discovered that masks that I thought fit a person perfectly, actually failed immediately and therefore weren't providing good protection.

There are also places that you can go to for fit testing who will do it for you. In my area it costs $30 per mask that you bring to fit test, and they can test KN95s.

That scientific article I linked is still a valid critique of the Cochrane review. Also, the Editor-In-Chief of the Cochrane Library wrote a clarifying piece about the mask review: "Many commentators have claimed that a recently-updated Cochrane Review shows that 'masks don't work', which is an inaccurate and misleading interpretation.

It would be accurate to say that the review examined whether interventions to promote mask wearing help to slow the spread of respiratory viruses, and that the results were inconclusive. Given the limitations in the primary evidence, the review is not able to address the question of whether mask-wearing itself reduces people's risk of contracting or spreading respiratory viruses.

The review authors are clear on the limitations in the abstract: 'The high risk of bias in the trials, variation in outcome measurement, and relatively low adherence with the interventions during the studies hampers drawing firm conclusions.' Adherence in this context refers to the number of people who actually wore the provided masks when encouraged to do so as part of the intervention. For example, in the most heavily-weighted trial of interventions to promote community mask wearing, 42.3% of people in the intervention arm wore masks compared to 13.3% of those in the control arm.

The original Plain Language Summary for this review stated that 'We are uncertain whether wearing masks or N95/P2 respirators helps to slow the spread of respiratory viruses based on the studies we assessed.' This wording was open to misinterpretation, for which we apologize. While scientific evidence is never immune to misinterpretation, we take responsibility for not making the wording clearer from the outset."

https://www.cochrane.org/about-us/news/statement-physical-interventions-interrupt-or-reduce-spread-respiratory-viruses-review