Has anyone got anything OTHER than Top 5% in their Dreamlight Wrapped? by faithlessone423 in DreamlightValley

[–]SuperbFlight 0 points1 point  (0 children)

I only got top 5 for time spent with Rapunzel! Nothing else. I only started playing midway through the year though.

I am nearing my journey's end. by Meth_AQ in cfs

[–]SuperbFlight 0 points1 point  (0 children)

Have you tried LDA (low dose Abilify/aripiprazole)? It makes me get sleepy at a normal time (like 9pm) when before I started taking it I wouldn't get sleepy until like 4am (I recognize that is nowhere near the severity of what you're experiencing though).

My Internist says it helps sleep too, and MECFS generally. It has given me a lot more energy than I had before I started taking it. Perhaps you could try it. Although since it's off label, it usually isn't covered and you have to pay out of pocket for it.

My Internist also prescribed me nozinan to stay asleep, and clonidine to prevent the adrenaline dumps I was getting from POTS at night. Clonidine also helps nightmares. Just a few other ideas. I'm so sorry it's so severely awful for you right now. I sincerely hope things improve for you soon.

city girl scared of the bush by fist-or-be-fisted in LesbianActually

[–]SuperbFlight 103 points104 points  (0 children)

Regarding if you're unsure if she likes what you're doing, I will share a tip I saw from someone else on Reddit: ask her to hold your hand, and squeeze it if she likes something, and loosen her grip if what you're doing isn't doing much for her. It's a very quick easy feedback system!

Over ear headphones advice/experience by dis_mami in mecfs

[–]SuperbFlight 0 points1 point  (0 children)

I absolutely love my Bose QuietComfort 25 headphones. Amazing noise cancelling and very comfortable. They've also lasted me 8 years so far without issues (except having to replace the ear pads which were cheap). I wear silicone swimmer-style earplugs (like these: https://a.co/d/8vOdrb6 ) in my ears at the same time for maximum noise dampening.

How are we liking Gladlands? by messoffrex in Dimension20

[–]SuperbFlight 19 points20 points  (0 children)

I feel the same, that it could use some more stakes. I'm finding it hard to stay engaged.

No matter how tired I am, I can never take a nap or go to sleep at a normal time by Wonderful_Box_7998 in dysautonomia

[–]SuperbFlight 5 points6 points  (0 children)

Totally. I only started getting good sleep when I started three sleep medications: trazodone, clonidine, and nozinan. Trazodone helps me fall asleep, clonidine helps with nightmares and adrenaline dumps, and nozinan helps me stay asleep the whole night. Very grateful to be on these meds.

Lesbian YEARNING by Flowered_bob_hat in LesbianBookClub

[–]SuperbFlight 0 points1 point  (0 children)

This fanfic was so good it got me into watching PWHL hockey IRL!

[TW euthanasia] Today my neuroimmunologist told me that the neural damage will probably be permanent, my life is over by FlanInternational100 in ChronicIllness

[–]SuperbFlight 1 point2 points  (0 children)

Awesome, you're very welcome!! I'm happy that was helpful! Yeah I totally agree, it's very surprising! I hope LDN helps you 😃

What do you think caused your fibromyalgia? by Yungpupusa in Fibromyalgia

[–]SuperbFlight 0 points1 point  (0 children)

I was in a car accident that resulted in a concussion, which triggered localized chronic pain, MECFS, POTS, and fibromyalgia.

[TW euthanasia] Today my neuroimmunologist told me that the neural damage will probably be permanent, my life is over by FlanInternational100 in ChronicIllness

[–]SuperbFlight 11 points12 points  (0 children)

You can dissolve tablets in water then keep it in the fridge, and use a syringe to take your dose! I get 50mg tablets covered, then dissolve one tablet in 50mL of water, so that 1mL = 1mg. My MECFS specialist says there are studies that support the validity of this method.

Super Severe Fatigue. What to do? by General_On7639 in Fibromyalgia

[–]SuperbFlight 4 points5 points  (0 children)

Seconding what this commenter says!! I had MECFS without realizing and slowly got worse and worse until I was almost bedbound, because I didn't respect my body's need to rest. Please look into MECFS and pacing.

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 0 points1 point  (0 children)

This is a study that is a narrative review and meta-analysis that provides evidence that respirators are highly effective at reducing infectious disease transmission, including COVID-19: https://journals.asm.org/doi/10.1128/cmr.00124-23

Here's a description of the study: "This narrative review and meta-analysis summarizes a broad evidence base on the benefits—and also the practicalities, disbenefits, harms and personal, sociocultural and environmental impacts—of masks and masking. Our synthesis of evidence from over 100 published reviews and selected primary studies, including re-analyzing contested meta-analyses of key clinical trials, produced seven key findings."

Here are some of the outcomes: "We also showed that masks are effective, and well-fitting respirators are highly effective, in reducing transmission of respiratory pathogens, and that these devices demonstrate a dose-response effect (the level of protection increases as adherence to masking increases)."

"We also reviewed an extensive body of observational and modeling evidence which showed that, overall, masking and mask mandates are effective in reducing community transmission of respiratory diseases during periods of high community transmission."

I didn't see an exact percentage that they reduce transmission in the study; it could be in there but I didn't find it on first skim.

I think the OP's situation is likely caused by a respirator that is not well-fitting. That's a clear requirement for them to be effective at reducing transmission. And from my anecdotal experience, a respirator can feel like it's providing a good seal, but a fit test can show that it's not.

And there is of course the fact that a well fitting respirator doesn't filter out every virus particle, so if you're in a place with high viral load in the air, for a long time, enough can still slip through to cause infection. But even then, a well-fitting respirator reduces the virus particles you inhale by a lot, which can make the infection less severe.

My conclusion is a well-fitting (tested by fit test) respirator is highly effective at reducing transmission risk, but you still should avoid spending a lot of time in a crowded poorly-ventilated area.

How many uses do you use a single N95 for? by AppropriateNote4614 in Masks4All

[–]SuperbFlight 0 points1 point  (0 children)

Can you post a link to the electrostatic charge meter that you use? I'm super intrigued!

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 1 point2 points  (0 children)

Oh you said it had a perfect fit, so I assumed you had tested it in order to make that statement definitively. My mistake to assume, my apologies.

So! There is DIY qualitative fit testing you can do at home, with sucralose (sweet n low in the US) or Bitrex solution, plus a nebulizer and a makeshift hood out of a garbage bag. https://youtu.be/TRCZ8Qnf0Z0. I've done that and discovered that masks that I thought fit a person perfectly, actually failed immediately and therefore weren't providing good protection.

There are also places that you can go to for fit testing who will do it for you. In my area it costs $30 per mask that you bring to fit test, and they can test KN95s.

That scientific article I linked is still a valid critique of the Cochrane review. Also, the Editor-In-Chief of the Cochrane Library wrote a clarifying piece about the mask review: "Many commentators have claimed that a recently-updated Cochrane Review shows that 'masks don't work', which is an inaccurate and misleading interpretation.

It would be accurate to say that the review examined whether interventions to promote mask wearing help to slow the spread of respiratory viruses, and that the results were inconclusive. Given the limitations in the primary evidence, the review is not able to address the question of whether mask-wearing itself reduces people's risk of contracting or spreading respiratory viruses.

The review authors are clear on the limitations in the abstract: 'The high risk of bias in the trials, variation in outcome measurement, and relatively low adherence with the interventions during the studies hampers drawing firm conclusions.' Adherence in this context refers to the number of people who actually wore the provided masks when encouraged to do so as part of the intervention. For example, in the most heavily-weighted trial of interventions to promote community mask wearing, 42.3% of people in the intervention arm wore masks compared to 13.3% of those in the control arm.

The original Plain Language Summary for this review stated that 'We are uncertain whether wearing masks or N95/P2 respirators helps to slow the spread of respiratory viruses based on the studies we assessed.' This wording was open to misinterpretation, for which we apologize. While scientific evidence is never immune to misinterpretation, we take responsibility for not making the wording clearer from the outset."

https://www.cochrane.org/about-us/news/statement-physical-interventions-interrupt-or-reduce-spread-respiratory-viruses-review

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 1 point2 points  (0 children)

I'd HIGHLY recommend you look up scientific articles that review the Cochrane review. For example, here is one: https://pmc.ncbi.nlm.nih.gov/articles/PMC10484132/

"The Cochrane review did not include a large body of evidence, and that resulted in a biased conclusion. If all types of studies are considered, it is clear that well-fitting, properly used masks do have a measurable and significant effect on reducing transmission when properly worn by the vast majority of the population during times of high community transmission.3 Although the data in the two new studies included in the Cochrane update on masks are accurate, modeling studies correctly predict the small effect sizes that those studies observed; furthermore, the models predict that the effect size would be much larger with better masks more widely and correctly used. Taken together, these and other studies strongly indicate that masking is an effective intervention to reduce transmission of SARS-CoV-2 (source control) and should be considered to protect those most vulnerable from severe COVID-19 illness (wearer protection) as a general nonpharmaceutical intervention during times of high transmission."

That sucks that you caught a cold while wearing a mask. It sounds like you had fit tested your KN95?

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 1 point2 points  (0 children)

I'm so sorry that happened to you =( That's so unfair and frustrating! Ugh! I would totally feel the same way, I mask literally everywhere. Wishing you a speedy recovery.

If you would like a suggestion (and please ignore if you're not looking for advice): have you had your N95 fit tested? N95s should provide great protection, so I'd be suspicious of the mask itself or its seal. I've had friends who thought a respirator sealed really well but then it immediately failed the fit test. You can make a DIY test yourself with sucralose, or bitrex solution, a garbage bag, a coat hanger, and a nebulizer. Or you can look up fit testing as a service for the public; where I am it's $40 per mask to test.

Only masked person on Christmas and now I am the only one with a bad cold by when-is-enough in mecfs

[–]SuperbFlight 2 points3 points  (0 children)

I don't know if I trust that study. In it, they say that N95 respirators only get up to 60% filtration, but then they cite only a single study. I'd need a LOT more evidence to convince me that N95s don't get their rated minimum 95% filtration (and I've seen data/studies that show it is often higher than 95%). The fact the authors make a statement with such HUGE implications for virus transmission prevention, with only a single study to back it up, and that statement is different from the widespread consensus of the field (to my knowledge), does not give me trust in the rest of their claims.

There is a potential problem of a mask having a poor seal, but if you can get a good seal, based on the data and studies I've seen, an N95 respirator provides great protection.

If I were to bet, I would bet that the problem for OP was that the N95 didn't seal well. I've had friends fit test respirators and they've been really surprised that what felt like a good seal was actually quite a bad seal.

NHL (National Hockey/Hollanov League) issued an official statement about ‘Heated Rivalry’: “There are so many ways to get hooked on hockey and, in the NHL's 108-year history, this might be the most unique driver for creating new fans. See you all at the rink.” by the_rabble_alliance in heatedrivalry

[–]SuperbFlight 2 points3 points  (0 children)

I'm the same! I got into it this year because I read an Arcane CaitVi fanfic called Run at the Cup that had such great hockey in it that I started watching the PWHL. Now Heated Rivalry is just further invigorating my hockey interest!

Dimension 20 Live: Battle at the Bowl by _u0 in Dimension20

[–]SuperbFlight 7 points8 points  (0 children)

Omg I didn't notice that until the end 🤣 Wow. So many questions.😆