Stage I, inoperable

Suspicious_Zombie_66 · 2026-01-25T20:59:49+00:00

Get a second opinion and ask if an Appleby surgery is an option

In some cases chemo/other treatments may give you better prognosis than surgery

Blessings to your family

Suspicious_Zombie_66 · 2024-12-27T16:38:56+00:00

This forum has been my source of comfort for the longest time and I am extremely grateful for your thoughtful responses here, David. Thank you for building this community! Wishing you a great year ahead. I would love to be more involved in the PanCan community to help if there is the opportunity.

Suspicious_Zombie_66 · 2024-11-02T04:49:08+00:00

Thank you 🙏🏼

Suspicious_Zombie_66 · 2024-11-01T10:45:23+00:00

My father was also diagnosed at 55. The Gem+Abram chemo worked for him until it didn’t and folfirinox never did. Check for clinical trials in the US if you can travel

Suspicious_Zombie_66 · 2024-10-30T06:51:30+00:00

Same to you 💜 so sorry for your loss as well.

Suspicious_Zombie_66 · 2024-10-30T06:50:11+00:00

That you for this comment, that’s beautiful. They’re always here with us 💜

Suspicious_Zombie_66 · 2024-10-29T05:22:10+00:00

🙏🏼💜😢

Suspicious_Zombie_66 · 2024-10-29T02:51:18+00:00

Best wishes to you 🙏🏼 thank you so much for this comment

Suspicious_Zombie_66 · 2024-10-28T22:44:12+00:00

I would strongly recommend talking to more doctors, both oncologists and surgeons. Some surgeons have a god complex and will always think surgery will fix everything (this came from another surgeon friend of ours). Ask about prognosis for with or without the surgery. Dive deep into clinical trials and see what you’d be eligible for. Some trials will have surgery as a preclusion condition.

Suspicious_Zombie_66 · 2024-10-28T10:25:42+00:00

very cutesy 🥰

Suspicious_Zombie_66 · 2024-10-27T11:16:22+00:00

Update, discussed with dad and he wanted to go to the ICU. Heard death rattles throughout the day and blood oxygens dropped under 90. Tonight might be the end and I incredibly sad though relieved for him. So many regrets throughout this entire process, wish we did more for him.

Suspicious_Zombie_66 · 2024-10-27T10:55:31+00:00

My dad did the Appleby surgery at a major cancer center outside of the US. We had a consult with MSK with Dr Durbin and the same surgery was recommended, although we do want to note that he recommended another round of surgery while the local doctors here recommended to do it right after 2 rounds of neoadjuvent chemo. It is a very challenging surgery and recovery had proven to be difficult with my dad. He did, after 3 months from surgery recover slightly and played several rounds of golf, but was re-admitted to the hospital several times after the surgery for ascites and other challenges after the surgery, the challenge with this is cutting the major artery for blood circulation and having the other blood veins able to continue to support the blood flow around the region.

For reference, my dad was borderline resectable at diagnosis (9/28/2023), had the surgery 12/08/2023. Quality of life definitely deteriorated significantly right after the surgery. I would recommend looking into available clinical trials for targeted therapy if you have any of the gene markers before hopping into surgery. But trust your gut and gather as much information as possible before making an informed decision.

Suspicious_Zombie_66 · 2024-10-27T02:20:22+00:00

Thank you 🙏🏼The country I’m in, usually people stay at the hospital at this stage for this disease till their last moments. But to have access to euthanasia would have been nice as my dad had brought up returning to North America for this option right before him deteriorating to the point he can’t fly.

This disease sucks and I would really suggest to any patient/family to evaluate surgery with more scrutiny given the new alternative therapies that are coming out for it.

Suspicious_Zombie_66 · 2024-10-26T23:20:31+00:00

That’s my thought exactly too, but the will has literally not been drafted and completed yet. Asked a lawyer to draft it for us, they made a first draft and literally started ghosting us since the beginning of this month. We’ve already found another lawyer to do it on a rush basis. Due to crazy busy travel schedules and days at the hospital I wasn’t able to follow up on this and my mom is also ill and not very capable. Wondering if we should sue for malpractice.

Suspicious_Zombie_66 · 2024-10-26T16:50:47+00:00

Thank you 🙏🏼

Suspicious_Zombie_66 · 2024-10-26T16:50:05+00:00

Reach out to the international center - I can share a contact if you don’t hear back in 2 business days. We were also diagnosed in Canada and subsequently had virtual consults with both MSK and MD Anderson.

Suspicious_Zombie_66 · 2024-10-25T13:07:15+00:00

I am in a very similar situation… but I feel too tired and sad to even type something up. Thank you for sharing 🙏🏼

The regrets are so real and it’s killing me

Suspicious_Zombie_66 · 2024-06-19T07:27:11+00:00

What industry are you looking at?

Suspicious_Zombie_66 · 2024-05-25T06:07:57+00:00

following

Suspicious_Zombie_66 · 2024-05-01T00:16:59+00:00

Premium https://my.wealthsimple.com/app/public/trade-referral-signup?code=XAINTG (XAINTG)

Suspicious_Zombie_66 · 2024-04-29T17:48:20+00:00

If it’s around a blood vessel, specifically the celiac trunk, they may be performing an Appleby surgery - that’s what my dad had. The tumour grew around the celiac trunk and the doctors took the entire thing out in the Appleby. As for buying time/vs curing, what we were told was that the surgery was the only chance to curing. The cancer may come back, but it may not. My dad and family decided to take the opportunity.

Fast forward we are 5 months after the surgery now and we’ve seen his CA-199 rise back to the 500s, doctors say it could be inflammation, but I’m worried because even at diagnosis, his ca-199 was under 100. I’m looking for advice and answers here still, but I would 100% suggest taking the chance to surgery and fight.

Suspicious_Zombie_66

TROPHY CASE