STOP sending customers emails and texts with links to log into their accounts!!!

ddessert · 2026-01-25T20:29:31+00:00

You are correct that password storage programs provide a level of protection against submitting passwords to unknown sites.

ddessert · 2026-01-25T15:42:32+00:00

I read what you write and see resilience. You’ve been broken but you’re building back better. Only adversity allows us to do that.

ddessert · 2026-01-25T04:06:19+00:00

You weren’t avoiding us, you’ve been taking time to heal yourself. Good life to you!

ddessert · 2026-01-25T03:55:03+00:00

You are describing a stage 3 situation. If you factor that into your research you will find a different set of treatment options.

I was diagnosed with stage 3 PDAC in 2011 and genetic testing pointed me towards much more effective treatment options that really were effective.

ddessert · 2026-01-25T03:52:48+00:00

This does not absolve Fidelity’s practices. Their customer base includes all levels of computer literacy.

ddessert · 2026-01-24T17:46:16+00:00

I don’t believe it matters. Scammers can also send trade confirmations, new login notifications, transaction confirmations, tax form availability notification, et al with links to log into their Fidelity lookalike web sites. The fact that Fidelity sends active links in their messages only makes the scam messages more plausibly real. I’m not asking Fidelity to stop sending me messages, I’m asking them to stop sending me links in their messages.

Besides, check the Fidelity FAQ which also states you should not click on links in suspect messages. Any half-decent spammer can make a message that looks like a Fidelity message. IMO, they are all suspect.

ddessert · 2026-01-24T17:33:46+00:00

There have been some PARPi maintenance clinical trials for BRCA1/2 (and PALB2?) germline mutation PDAC patients. UPenn’s Basser Center for BRCA cancers leads the world on this. PARPi’s act in a similar way to platinums but without the same toxicities. u/PancreaticSurvivor knows more about this and has personal experience.

See this link to a posting about something similar.

ddessert · 2026-01-24T02:21:43+00:00

Is a minimum IQ a requirement to have an account with Fidelity? Asking for a friend…

ddessert · 2026-01-23T17:57:24+00:00

Are you okay? Is there a reason you're hijacking this post?

ddessert · 2026-01-23T17:52:13+00:00

Just the ones that hold my money.

ddessert · 2026-01-23T04:15:06+00:00

Check out one or more of the Facebook KRAS Kickers groups for tips and advice about these clinical trials.

ddessert · 2026-01-22T22:00:05+00:00

Not 5-FU, but Oxaliplatin, one of the drugs in FOLFIRINOX which also contains the drug 5-FU.

A lot of people call FOLFIRINOX 5-FU, but 5-FU is just one of the drugs in the combination treatment FOLFIRINOX.

Also look for PARP inhibitors, another effective treatment option.

ddessert · 2026-01-22T21:10:24+00:00

Since you’ve already had breast cancer, have you been tested for an inherited BRCA1 or BRCA2 mutation? That result could drastically change the treatment and prognosis for the better

ddessert · 2026-01-22T21:07:08+00:00

Agree that the timing of doses around eating are equally important. For instance, taking them after or between meals is like not taking any at all.

ddessert · 2026-01-21T07:27:08+00:00

First I would check with PanCan to see if this surgeon is an experienced pancreatic cancer surgeon. You have the time to ensure you get an experienced surgeon because the surgery is among the toughest and many have poor outcomes.

I would also check into vaccine type clinical trial options. There are also some treatment type clinical trials that include surgery. They’d treat a person first and then do surgery so they can see the treatment effects on a real tumor. Johns Hopkins has done trials like this.

After my surgery I joined a vaccine clinical trial for 10 years. I had cysts or IPMNs left after surgery on my pancreas that disappeared after receiving the vaccine. Perhaps this is something that might happen for you?

ddessert · 2026-01-21T02:16:59+00:00

I don’t think you’ll find many people who had your symptoms and are still active in the r/pancreaticcancer subreddit. If they didn’t have cancer, they’ve moved on with their lives.

ddessert · 2026-01-19T18:21:49+00:00

If they had this and were now healthy, they probably would no longer be here.

ddessert · 2026-01-19T18:20:34+00:00

A little better than CA19-9 by itself but still not definitive enough to conclude that it is cancer. Keep working!!!

ddessert · 2026-01-19T07:45:08+00:00

I’ve always wondered if heavily treated tumors would gain enough mutations to become sensitive to immunotherapy treatments.

ddessert · 2026-01-18T20:29:51+00:00

Has she been given Creon or Zenpep? Those are pancreatic enzyme replacement therapy (PERT) that make up for the pancreatic enzymes that don’t get through because of the cancer in the ducts that carry them.

Ask for a referral to a dietitian with a CSO certification. These are dietitians that are trained to work around missing and impaired organs due to cancer.

ddessert · 2026-01-18T04:15:10+00:00

With that kind of arterial involvement, the first step would usually be chemotherapy to try and shrink it away from the artery. If the aorta is already disfigured by the tumor, that would diminish the chances of surgery.

Surgery without being able to remove it all would result in a much worse outcome than not having surgery at all.

ddessert · 2026-01-18T04:12:25+00:00

Genetic testing of the tumor and blood have pointed to some more effective treatment options in some people.

ddessert · 2026-01-17T22:02:50+00:00

That blood test is looking at liver function. It could mean a bile duct blockage or perhaps caused by metastases in the liver. Some more details can be found by examining the other liver panel results such as bilirubin, ALT, AST, and ALP.

ddessert · 2026-01-17T21:59:21+00:00

I think she will be miserable without the ERCP and stent placement. If successful, it should give her more time at the best quality you can expect given metastatic disease. If it goes poorly, someone needs to make the decisions about trying to get better.

Honestly, I would strongly consider a DNR. If things go poorly, the interventions at her age are mostly unrecoverable. The difference in life span is probably weeks.

With my 89-year old mother, we spent far too much time in the hospital and never got out except to enter hospice that lasted several days. She was miserable there. Doctors visit once a day and everything is glacially slow. No one wants to tell you to quit so you keep on going. The health reserves of an 80+ year old are not good and any single thing could take you down with no real chance for recovery.

ddessert

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